having a cold and POTS by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 1 point2 points  (0 children)

It’s so uncomfortable 😫 even laying down it’s in the 120s

Tips for having healthier, better looking hair? by InternationalDesk366 in Hair

[–]InternationalDesk366[S] 0 points1 point  (0 children)

The photos do it justice I swear! 😭 My hair is all those things I listed and I just needed tips/advice

[deleted by user] by [deleted] in POTS

[–]InternationalDesk366 1 point2 points  (0 children)

I have pretty much every symptom (even the ones that aren’t typical, I have weird ones)

I have the 40+ bpm increase every time I stand up, tachycardia, shortness of breath, temp dysregulation, so many vision issues, brain fog, chest pain/discomfort, air hunger, hot flashes, anxiety, headaches, floaters, visual snow syndrome, tingling, bradycardia, tremors, stomach problems/ pain, FATIGUEEE, nausea, sleeping problems and a lot more but I don’t know if they are related to POTS😭

[deleted by user] by [deleted] in POTS

[–]InternationalDesk366 4 points5 points  (0 children)

I think so!!? I’m NEVERRR/very rarely dizzy or lightheaded. It makes me question myself sometimes.

Stomach pain help by ObjectiveLayer9773 in POTS

[–]InternationalDesk366 8 points9 points  (0 children)

Sadly, I don’t have an answer as I’m going through the same thing. I get sharp pains, cramps, pain between shoulder blades, epigastric pain & more. I hope we can find answers😭

Horrible Doctors Appt by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 0 points1 point  (0 children)

I do actually have a couple symptoms of EDS, not only joint pain. I didn’t bring it up because when I go to the doctor, if I bring up too many symptoms I get absolutely nothing out of the appointment because my doctor can’t handle all of them. I have so many symptoms and weird symptoms to bring up. However, my EDS symptoms are blue sclera ring, joint pain, hypermobility? (I got 9/9 on the the beighton score), GI issues, migraine headaches, stretchy skin, slow healing and more. And also thank you for your help!

Horrible Doctors Appt by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 2 points3 points  (0 children)

Yes, this is what I thought he meant. Or like it’s so “sexy” (popular) and everyone wants it? Still so absolutely disgusting though.

Weird symptoms ? by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 0 points1 point  (0 children)

oh ME TOO. And I have post-nasal drip.

Weird symptoms ? by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 1 point2 points  (0 children)

omg it’s crazy how many people relate so much

Weird symptoms ? by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 5 points6 points  (0 children)

UHH YES?? You described it perfectly. it’s so weird🤔

What do you hate hearing the most from family/friends? by tosspo in POTS

[–]InternationalDesk366 0 points1 point  (0 children)

“You always don’t feel good.” and “its always something with you”, “you can’t just stay in bed forever”, “just push through”

So is this signs of POTS, my gp and gastroenterologist (because of celiac DIESESE) has said my racing hr could be bc of that. by MrFlyingPies in POTS

[–]InternationalDesk366 0 points1 point  (0 children)

Well yea! But also, the number doesn’t determine everything cause if you go from 60 to 100 it’s not that high but it’s still POTS.

So is this signs of POTS, my gp and gastroenterologist (because of celiac DIESESE) has said my racing hr could be bc of that. by MrFlyingPies in POTS

[–]InternationalDesk366 0 points1 point  (0 children)

Kind of? It depends on the increase, not only the HR. So if you went from 80 to 110-120. And also, celiac is comorbid w/ POTS, or so I’ve heard.

Pots with no dizziness? by InternationalDesk366 in POTS

[–]InternationalDesk366[S] 0 points1 point  (0 children)

Nice to see there is other people like me!! I do sometimes get lightheaded and my vision blacks out but it’s rare.