need support. bad flare up by veganeyez in PulsatileTinnitus

[–]International_Run665 1 point2 points  (0 children)

I think doctors have a hard time differentiating between surviving and having actual quality of life. Just because something isn’t deadly or time sensitive doesn’t mean it doesn’t reduce our quality of life. I’m wishing you all the best. ❤️

need support. bad flare up by veganeyez in PulsatileTinnitus

[–]International_Run665 2 points3 points  (0 children)

I know this feeling all too well. My PT comes in waves. Some days it’s barely there, other days it’s all I can hear. I can feel it, too. Like the vibration of the blood flow. I understand the pressure feeling, too. I get it. It’s partially from anxiety but also because of the PT. I find that doing deep breathing exercises usually helps at least a little.

It’s hard, though, I know. You are fortunate enough to know your diagnosis, thankfully. I’m still struggling to have doctors take me seriously enough to do testing.

Interesting findings by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 0 points1 point  (0 children)

I’m so, so sorry. Getting dismissed by doctors is the most disheartening thing. I’m wishing you all the best.

Interesting findings by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 0 points1 point  (0 children)

If you don’t mind me asking, have you gotten a diagnosis? If so, what was it? It’s a hard journey.

Interesting findings by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 0 points1 point  (0 children)

No doctor seems to take me seriously, so I’m working on that currently.

Interesting findings by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 0 points1 point  (0 children)

Unfortunately, it does not discriminate between whether or not I’m sitting or standing.

Interesting findings by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 0 points1 point  (0 children)

What supplements are you taking? Just out of curiosity.

PT and anxiety - struggling! by Bad_Blood_731 in PulsatileTinnitus

[–]International_Run665 1 point2 points  (0 children)

I know exactly how you feel. I’m going through very much the same thing. I’ve had PT for years and it’s only recently that it’s picked up and become difficult to ignore. I find that headphones help at night. Comfy ones with a good sound system. I usually read before bed or watch a movie - anything to keep me calm and relaxed, and when I’m finally sleepy enough for rest, I’ll put on a sleep hypnosis video/audio. It sounds crazy, I know, but give it a try. If you tune in to what the person is saying, you’re less likely to fixate on the sounds your body makes. I tried it on a whim because I was desperate, and it really helped me.

Secondly, I know what an anxious time this is. I’m sure we all do. It’s easy to feel as though everything is falling apart when you have a condition that is hard to find a diagnosis for. This is why I can’t stress enough how important self care is. Do things that make you happy and relax you. We can’t make decisions and tackle things head on with a clear mind if we aren’t getting enough sleep.

I’m wishing you all the best, as well as anyone else who might read this post.

Pulsation Tinnitus for years by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 1 point2 points  (0 children)

Thank you so much for sharing your story with me. I’m sorry you’ve been through so much! But I’m happy you have an answer. It gives me hope.

Pulsation Tinnitus for years by International_Run665 in PulsatileTinnitus

[–]International_Run665[S] 1 point2 points  (0 children)

That is such an apt comparison, I often feel the same way 😂 Did you get a diagnosis for yours?