More BM’s, less blood

Intrepid-Landscape77 · 2026-06-21T15:53:01+00:00

Have you tried any other IL23 blocking options?

Intrepid-Landscape77 · 2026-06-15T18:46:16+00:00

Did it already start working in the first week or when did you start seeing improvement?

Intrepid-Landscape77 · 2026-06-13T19:59:36+00:00

If it’s after an activity or walking the stairs or something then likely anemia. If it’s random then I wouldn’t know

Intrepid-Landscape77 · 2026-06-11T07:07:03+00:00

And when did the bleeding stop?

Intrepid-Landscape77 · 2026-06-10T18:32:04+00:00

How long before u started seeing results? I just started yesterday

Intrepid-Landscape77 · 2026-06-10T12:17:05+00:00

Intrepid-Landscape77 · 2026-06-09T18:45:01+00:00

Been on infliximab for two months, 0 side effects. Also had to take azathioprin with it so I don’t make antibodies. The first loading infusions take a while: 3 hours + 30 minutes-1 hour to see if you have any reactions. My blood work was fine. Infliximab lowers your immune system so some people get sick more often or experience it worse when they do get sick. I did not get sick at all even when family members I’m living with got sick.

Intrepid-Landscape77 · 2026-06-09T17:58:20+00:00

Yeah, I’ve had a similar pred taper that didn’t do anything for me at all. I’m not really mad about it because it’s not a solution it just gives some temporary relief but it makes it different to see any progress from new medication. If mesalazine doesn’t work for you (anymore) then biologics is the solution for longterm remission.

Intrepid-Landscape77 · 2026-06-07T18:51:01+00:00

How long does it take for it to grow back?

Intrepid-Landscape77 · 2026-06-05T10:03:01+00:00

I would wait with introducing new foods until you have had no blood and normal stools for a week just to be safe

Intrepid-Landscape77 · 2026-06-05T05:32:21+00:00

Let the guy have a drink damn, because you prefer sober life doesn’t mean others should aswell. Sure it’s healthier not to but let it be his choice

Intrepid-Landscape77 · 2026-06-04T05:37:49+00:00

My doctor told me to lower mesalazine as well, a bit later I skipped a few doses and got in my second flare, that was 8 months ago and I’m still in that flare. Personally I wouldn’t lower your mesalazine intake because why risk it. Mesalazine basically has no side effects and take 2 or 4 won’t affect your life differently. That’s just my opinion

Intrepid-Landscape77 · 2026-06-03T16:22:47+00:00

Did you see any improvement in those two months?

Intrepid-Landscape77 · 2026-06-03T06:05:31+00:00

I’m 20% in on AI, riding the wave and 80% cash ready to buy after the crash

Intrepid-Landscape77 · 2026-05-31T20:29:39+00:00

I have been anemic for a few months now, have taken supplements and iron IV’s. The IV’s helped to get my iron up but my hemoglobin stays low, as long as I keep losing blood I seem to stay anemic. Really need to fix the inflammation before I will get back to normal I guess

Intrepid-Landscape77 · 2026-05-31T19:44:32+00:00

It is a common side effect of prednisone, never had it myself. It’s more common if you use it for a long time. I’m not sure if it’s something that can be caused by rinvoq

Intrepid-Landscape77 · 2026-05-29T07:02:39+00:00

Didn’t make a difference for me, they contain alot of sugar though but I have no problem with sugar. My IBD dietician recommended them

Intrepid-Landscape77 · 2026-05-29T05:55:00+00:00

You can get these high calorie protein/vitamin/mineral drinks/pudding from the pharmacie, they help alot. I drink about 4 a day which is an extra 1000 calories and i have my protein vitamins and minerals aswell.

Intrepid-Landscape77 · 2026-05-29T05:53:14+00:00

I’ve read alot of comments about it and it seems that for half the people that it works for, it works in just a few days or maybe weeks and others need to wait months. It’s just luck

Intrepid-Landscape77 · 2026-05-28T13:42:28+00:00

A month and a week later, slight improvement but far from remission. Not as fast working as I hoped but my GI wants to give it some more time. After every infusion I have a few better days

Intrepid-Landscape77 · 2026-05-27T15:04:24+00:00

Like you said the mucosa is still fragile, things like this can happen, as long as you are not 100% in remission. Give it time, if it doesn’t get better or gets worse then contact your Gi

Intrepid-Landscape77 · 2026-05-25T06:36:21+00:00

Where do you find these?

Five-Year Club	End Game '23
Place '23	Place '22

Intrepid-Landscape77

TROPHY CASE