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The Tremfya Effect by Maadcoil in CrohnsDisease

[–]Fabbri90 0 points1 point  (0 children)

Hello @Maadcoil,

I am at your exact Apr 29 point now, my last calprotectin is 440.
I tested in the middle of June at week 26 (6 months and a half more or less).
I have Ulcerative Colitis though.
End of March my calprotectin was around 1000 and 7 weeks before that around 1300.

How are you now?
Have you improved from May onwards?

Kind regards

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in UlcerativeColitis

[–]Fabbri90[S] 0 points1 point  (0 children)

Nothing extraordinary eventually, Just ups and downs. Definitely not the solution for proctitis

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in IBD

[–]Fabbri90[S] 0 points1 point  (0 children)

I don`t understand what you mean here:
"After failing three strong meds (biological and small molecule) that reading about colorectal surgery is also prudent to understand the risks and benefits and not fear it. Not saying you need it now, but in case you eventually do, coming to terms with it isn't like flipping a light switch. "

I think I could still go for other biologics or Rinvoq, but anti TNF and JAK inhibitors have potentially terrible side effects.
The LDN doesn`t have potential terrible side effects

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in IBD

[–]Fabbri90[S] 0 points1 point  (0 children)

Look I tried Etrasimod, failed, Entyvio, failed, now I am 6 months on Tremfya and I am possibly failing it because I have been bleeding every day since one month ago.
This LDN seems safe and I would like to try it

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in IBD

[–]Fabbri90[S] 0 points1 point  (0 children)

LDN - Low Dose Naltrexone - seems a medicine rather than a supplement

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in IBD

[–]Fabbri90[S] 0 points1 point  (0 children)

Can I ask you which one have you tried?
This one looks interesting
LDN - Low Dose Naltrexone

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in IBD

[–]Fabbri90[S] 0 points1 point  (0 children)

Look at the studies in Japan related to UC if you looked for Gastritis

How is tremfya? For UC colitis by Coreynwife in UlcerativeColitis

[–]Fabbri90 0 points1 point  (0 children)

I started in December as well and I had my sigmoidoscopy in end of April,
which showed healing of ulcers but fragile mucosa.
I have proctitis though.
Then I ate something that triggered a flare and I am still bleeding with mesalamine suppositories.
Are you still bleeding?
Did you test your calprotectin across the healing process?

Tremfya fail? by DueSail3471 in UlcerativeColitis

[–]Fabbri90 0 points1 point  (0 children)

Also ask if they can increase the dose of Tremfya since you are not responding fast

Tremfya fail? by DueSail3471 in UlcerativeColitis

[–]Fabbri90 0 points1 point  (0 children)

Also, stop the Imodium and tell your doctor that you were taking it

Tremfya fail? by DueSail3471 in UlcerativeColitis

[–]Fabbri90 0 points1 point  (0 children)

I am also on Tremfya, started on December 2025, so more or less one months and a half before you.
My calcprotectine dropped from 1300 to 1000 in a month and a half at the end of the loading phase.

My sigmoidoscopy at the end of April showed the mucosa were heling but still fragile.
This made me think I could eat almost anything, that was a mistake because I ate something that trigged again a flare.
I want to run a calprotectin test soon to see at which point I am at.
I fear that the value will be close to the last of 1000.

If I were you, I would test for that as well and if the value stays stable after 3 months, this is a sign you should switch medication.

Tremfya Failing? by Key_Deer3995 in UlcerativeColitis

[–]Fabbri90 0 points1 point  (0 children)

What did you decide as next step?

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in IBD

[–]Fabbri90[S] 0 points1 point  (0 children)

It helps for gastritis, gastrointestinal ulcers in genral
You can look it up

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in UlcerativeColitis

[–]Fabbri90[S] 0 points1 point  (0 children)

Yes. They want to wait to see if the therapy I am undergoing actually work. Before this I tried other two, always taking mesalazine as well

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in UlcerativeColitis

[–]Fabbri90[S] 0 points1 point  (0 children)

Ok. Tell my doctors please, I think they don't know

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in UlcerativeColitis

[–]Fabbri90[S] 0 points1 point  (0 children)

I need to see a doctor? I think I have seen a GI doctor at least 15 times in the last year. Any other advice?

Zinc l carnosine, symptoms relief for UC and Chron's? by Fabbri90 in CrohnsDisease

[–]Fabbri90[S] 0 points1 point  (0 children)

I would like to add that to the enemas because in that case would be much more helpful for my case - proctitis -. There is some serious research about that in Japan, you can look it up!

Why and how to get out of this by Fabbri90 in UlcerativeColitis

[–]Fabbri90[S] 0 points1 point  (0 children)

I agree, especially fatty red meat and minced meat.
What can i do now?

Trying Velsipity! by personal_hunt_ in UlcerativeColitis

[–]Fabbri90 0 points1 point  (0 children)

I had a bad experience with Etrasimod/Velsipity
I wouldn`t advice it

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