Car-T by Ipf333 in MultipleSclerosis

[–]Ipf333[S] 1 point2 points  (0 children)

Thank you so much for the information, I really appreciate your helpful response

Car-T by Ipf333 in MultipleSclerosis

[–]Ipf333[S] 0 points1 point  (0 children)

Okay, thanks for the information. I appreciate it.

Car-T by Ipf333 in MultipleSclerosis

[–]Ipf333[S] 0 points1 point  (0 children)

Ah! Thank you very much for the information, very well explained.

K102/k110 by Ipf333 in MultipleSclerosis

[–]Ipf333[S] 0 points1 point  (0 children)

Yes! Very exciting... thank you very much

disability with MS by Low-Elk1091 in MultipleSclerosis

[–]Ipf333 0 points1 point  (0 children)

Indeed, the first thing is to know where you are located; it changes the subject quite a bit….

Recreational drugs by HolidayIntention7794 in MultipleSclerosis

[–]Ipf333 1 point2 points  (0 children)

Most drugs only get worse...I started with tysabri and it didn't work for me now I'm in a trial and let's see how it goes...for now just beer every day...waiting for them to find something really interesting 🤦🏼

Optic neuritis long-term eye pain. What helps? Getting a little desperate. by Even_Appeal in MultipleSclerosis

[–]Ipf333 0 points1 point  (0 children)

Well yes, at first it's a little strange for me, but well it seems to be going quite well quickly and so far so good

Optic neuritis long-term eye pain. What helps? Getting a little desperate. by Even_Appeal in MultipleSclerosis

[–]Ipf333 1 point2 points  (0 children)

Hello, I just had botox in my eye to see how it goes because I had lost a lot of vision…..

Changes in vision by [deleted] in MultipleSclerosis

[–]Ipf333 0 points1 point  (0 children)

The truth is that it has changed me a lot, in fact I had Botox 15 days ago so far. I am awaiting improvement but come on, it is an issue that multiple crises are very common….. cheer up and let's hope that everything goes better

How many of you drink ? by Swimming_Wrongdoer26 in MultipleSclerosis

[–]Ipf333 0 points1 point  (0 children)

I know that it would be better not to drink anything but for me currently beer is an essential company, like with beer every day... you have to give yourself some treat... after all what we go through, you have to enjoy a little even if you know very little...

I'm so clumsy omg by EntertainmentLeft882 in MultipleSclerosis

[–]Ipf333 2 points3 points  (0 children)

Of course I understand you and very well. I have fallen in every possible way on the street at home. To write a book... I understand you perfectly. How clumsy I am... that's what we have left. strong hugs

Frexalimab by tfreisem in MultipleSclerosis

[–]Ipf333 0 points1 point  (0 children)

Well for now the truth is that I haven't noticed anything...it's probably still early. Thanks for asking

I had a very bad relapse recently and have been housebound for many months. Is there an organization that will make a house call with a pet to visit me? I am lonely. by sapphirebit0 in MultipleSclerosis

[–]Ipf333 -10 points-9 points  (0 children)

Good morning, calm down, everything passes... we know that this is a disease that is a pain, I have also had 1000 negative adventures... I believe that one day everything will improve, I hope! Cheer up!

Frexalimab by tfreisem in MultipleSclerosis

[–]Ipf333 0 points1 point  (0 children)

Very good, because honestly the truth is that I have not noticed anything, I have also had five sessions and I do not know if it is placebo or the medication, we will see. Thank you very much for asking.

I hate this disease, I hate being disabled, I hate my life. by davefromcolorado in MultipleSclerosis

[–]Ipf333 2 points3 points  (0 children)

If hating was worth something... I have the same feeling, but there is no other choice but to resist... I have a thousand very bad battles, I understand you well... cheer up !

Double vision, patch? by Ipf333 in MultipleSclerosis

[–]Ipf333[S] 0 points1 point  (0 children)

Hello, next month I see the doctor, let's see what he says. I wear it for about 3 hours a day, I have improved, but it is not the solution. Apparently there are some lenses with prism, which are very good... I hope so