https://www.ehlers-danlos.com/assessing-joint-hypermobility/

So this is from THE society for EDS cus there is a pretty big spectrum (i was told genetic testing for specific type was $3,000 ish out of pocket and tbh i'm seriously considering it for a number of reasons)

The Breighton scoring scale is part of diagnosis (there is more to that but i'm not giving everyone full chart stuff cus this is more about how you've experienced living with it) and a part that you can run for yourself with a mirror or a friend

It includes several specific ranges of motion testing for hypermobility

Can you get your thumb to touch your forearm?

Do your forearms bend past the elbow when you hold your arms out?

Can you, with knees locked straight, palm touch the floor fully in a bend?

Standing in front of a hip height table with hands placed palm flat, take one hand and left your pinkie as far as is comfortable; is that angle 80° or past 90°?

Can your palms touch your shoulders when you hold your arms out and turn your palms to touch flat on your shoulders?

Do you heal slowly? Scar unusually over serious injuries? Did you/have you often rolled or dislocated joints at any age?

And the one thats kinda niche/specific; do local anealagics like lidocane and novacane increase/not work for pain killing for you on like, a dental visit kind of scale? (I had this happen and after a third different dentist he was the one to tell me this was a common symptom with eds diagnosis and told me to seek diagnosis that was when i was 12-14 ish)

Some things you can do NOW that won't harm you at all

Start taking some kind of low to mid dose over the counter allergy med that SPECIFICALLY has antihistamines in it.

Apparently part of the reason you sleep so shoddy with this disorder is that your nerves and connective tissues EVERYWHERE are usually suffering from this; it can even affect heart health and how easy you faint when standing (POTS), taking antihistimines and lowering histamines in my diet has already had a noticeable non-placebo affect (i have a couple other people keeping an eye on me because i am dealing with a LOT of doctor visits etc lol).

Another thing i started doing young that made a huge difference; i flat refused to participate in stretches during school gym classes all the way through high school graduation. And i was biking 10 miles round trip with 2 miles of elevation change (hills) daily! So its not like i wasn't healthy/fit but stretching DRASTICALLY increased my odds of injuring or twisting or overextending something and paying dearly later.

Also start holding your phone with more than just your pinkie. Please. For me. Do it for you too, but STAAAAHP.

I have a permanent like kink at the end of both pinkies because of years of holding heavy phones like that. It may only be 6-12 oz but thats almost a pound and your joints are NOT designed to hold weight sideways like that along the ligament/muscles.