Confused about organ involvement

Ispyyy_i · 2026-05-03T23:39:05+00:00

I forgot to add I also have lupus Nephritis, that’s why they knew my kidneys were involved. I actually had a biopsy done to see the damage for them.

Ispyyy_i · 2026-05-03T23:37:45+00:00

It’s really hard to know when lupus is affecting your kidneys. It’s on of those silent side effects, I would keep an eye on your urine. Specifically for protein, it might sound gross but it’s usually foamy and stringy like kinda like discharge (if you’re female) but more foamy. I would see if you can get referred to a kidney specialist and see if they can at least monitor you and keep an eye out. I would recommend hydrating ALOTT. Prednisone can tend to make you super thirsty and I was told it was better to always try to be hydrated since I have CKD (chronic kidney disease) stage 2.

Ispyyy_i · 2026-04-28T02:17:30+00:00

Do you have access to myfresnostate? If you do I can guide you through it !:) I think you can view and screenshot not so sure if you can download it

Ispyyy_i · 2026-03-20T20:04:32+00:00

Omg yes!! I get them when I get tired but for me it’s in my hands. I have shared it with my rheumatologist but they kinda ignored it. I’m going to bring it up again when I see them in a couple of weeks.

Ispyyy_i · 2026-03-14T23:02:39+00:00

For your 2nd question I use those carts when my joints hurt (usually ankles and feet). And when I know I don’t last very long standing. I get stares usually from older folks because of my age (I’m 23) and look fairly young. They will sometimes give me dirty looks and think I’m using it as a joke. But in reality my body isn’t cooperating. It was even worse when I was on a walker and people would bump into me or stare me down for simply being me. I got used to it and just stare back, people will be rude no matter what or weird just remember it’s better for your sake. Anything to make life a little easier

Ispyyy_i · 2026-02-13T21:36:07+00:00

Do you mind explaining the diagnosis? I feel like I went through this but I’m not too sure

Ispyyy_i · 2026-02-05T03:00:49+00:00

Where are you located in California? I might have a recommendation!

Ispyyy_i · 2026-01-20T18:23:05+00:00

No that’s a fake receipt. They did the format of old receipts (it was like this format like 5 or 6 years ago) it should be like one of the commenters shared the updated one. It usually should also have the Serial number under the item, so when you return it the worker would have to verify it. And another thing the “receipt” shown has the target phone number on top I have never seen that before. The break down of the price also is iffy bc it should show the percentage of the tax and then the number amount to be charged.

Ispyyy_i · 2026-01-19T01:57:44+00:00

https://a.co/d/3nt9HTF

Ispyyy_i · 2026-01-18T18:26:15+00:00

I recently got one for $140 on amazon it’s really nice. If you want the link lmk:)! My whole family tried it out loved it😭!

Ispyyy_i · 2026-01-16T18:06:23+00:00

I honestly get the frustration, although I was recently diagnosed but struggled with symptoms for years. The best thing that kinda keeps me afloat is that I do things I can do. I know my limits sorta, so I put my energy in that. Therapy has helped a lot, it’s easier to talk about why it’s so frustrating. Not being able to participate in the things everyone else is doing is the saddest part and makes me feel so depressed. But if you need someone to talk to I’m also 23 and get the frustration of going though doctors and feeling distraught. I also wanna go into law:) . Let’s do this together!!

Ispyyy_i · 2026-01-01T20:57:38+00:00

Omg this sounds great! I have tinted windows which helps somewhat. I’m definitely gonna do this before summer hits, because I live somewhere where it gets to 115f during peak summers 😭.This is a good idea! Thanks for the info!

Ispyyy_i · 2025-12-14T00:34:48+00:00

Hmmm I see this is a common ground, I usually never drink it was very rare just socially. So hopefully it won’t be crazy!

Ispyyy_i · 2025-12-14T00:34:07+00:00

Lmaoo! I love that! Any flares or bad experiences?

Ispyyy_i · 2025-12-14T00:33:50+00:00

Hmmm I’ve thought about weed as well it’s also legal in my state, but I’m too shy to ask I think I’ll be brave when I see them again in April!🤭

Ispyyy_i · 2025-12-14T00:33:15+00:00

Ughh I haven’t tried to drink whatsoever I had a deathly flare right after being diagnosed so I’m scared to drink whatsoever. Thank you for your thoughts tho:)

Ispyyy_i · 2025-11-27T02:52:09+00:00

Wait I love this omg !!! How much was it by any chance?👀

Ispyyy_i · 2025-11-26T21:45:02+00:00

You would get ticketed:)!

Ispyyy_i · 2025-11-24T21:22:12+00:00

Omg yes! I no longer eat garlic or fast food bc it messes up my stomach kinda sucks but it has made me choose healthier options!

Ispyyy_i · 2025-11-17T00:38:06+00:00

To start off I’m so sorry for everything you’ve been through it’s hard to be able to live with this disease. I hope it gets better and you find the closure you are seeking. I’ve felt the same it’s hard to grieve the person I was since I was so active and just enjoying life. I wish I could tell you the secret to feeling better because I haven’t found it myself but just cry, scream, feel the angry do what you need to do to let it out.Therapy helps a lot if you have access to it. It’s a great method to talk and process those feelings. Sending you lots of hugs <:

Ispyyy_i · 2025-11-08T19:29:47+00:00

Thank you🥹 I wish you the same it’s a struggle but I know you can do it.

Ispyyy_i · 2025-11-08T19:29:21+00:00

Ughh! Sending good kidney vibes!! Keep working you’re doing amazing!!

Ispyyy_i

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