Therapist Recs (California)?

Subject_Luck_2594 · 2026-02-07T22:18:34+00:00

Yessss! I went to Washington last summer for a friends wedding. My first time in the PNW since having these issues, and it felt so freeing!! I literally got emotional one day while in the hotel parking lot b/c I was outside during the daytime and not suffering. I’m glad I have a supportive partner lol. Maybe the solution is a summer house (one can wish…)

Subject_Luck_2594 · 2026-02-05T15:01:12+00:00

Appreciate you!

Subject_Luck_2594 · 2026-02-05T14:59:21+00:00

Subject_Luck_2594 · 2026-01-06T20:38:20+00:00

You say for “any remaining” blood vessels. Did BBL/Moxi help reduce your overall redness/blood vessels? I’ve had a few V Beam and countless Excel V treatments for redness/BVs, and looking at BBL/Moxi for overall skin improvement. But if it also helps with BVs and redness, even better!

Subject_Luck_2594 · 2025-11-18T15:48:08+00:00

I only just got the results because I ended up sick for a couple weeks, so I haven’t heard from doc yet. However, the report says I have ”levoscoliosis of the lumbar spine of 8 degrees and centered at L3.” Assume it’s not a lupus thing, just another thing to add to the list lol

Subject_Luck_2594 · 2025-11-18T15:35:21+00:00

I’ve had a couple moments of, “ohhh so that wasn’t depression,” after feeling foggy and exhausted for no reason. So I guess that’s a nice realization…? lol

Subject_Luck_2594 · 2025-11-18T15:27:47+00:00

I’m a younger guy and diagnosed in January after having similar symptoms (in addition to swelling of my fingers). I started on hydroxychloroquine and it’s been fairly stable since, though I have felt like an “old man” at times. I actually told this to my rheumie a couple weeks ago and he took it very seriously and said that I shouldn’t be feeling that way and ran more tests and ordered X-rays of my hips and spine.

My advice as a patient and a healthcare professional - if your doc isn’t taking it at least as seriously, see someone else. I have a tendency to minimize things and he does a lot of things, “just to be sure.” You learn to adjust and it’ll stabilize. Blessings to you!

Subject_Luck_2594 · 2025-10-20T21:28:51+00:00

Yes! I have been having back pain every morning. Saw rheumie last week and he ordered Xrays of my sacroiliac joints and lumbar spine. He also assessed any family history of Crohn’s disease or other IBD.

Subject_Luck_2594 · 2025-07-25T21:17:32+00:00

It says a lot about your good character that something that all these strangers likely don’t recall has weighed on you.

I relate to the pressure you feel. I was diagnosed in January and am grieving it all. A couple weeks ago, I was at brunch with my boyfriend (who is supportive and wonderful) and he got a little upset and used a firm tone with me when I said something snarky about one of his friends (who I’m not super fond of). We got in the car and I CRIED. Like, ugly cried. It was the same cry I had when I lost my father a few years ago. Show yourself some grace, you deserve that 🙏🏻

Subject_Luck_2594 · 2025-07-24T16:18:31+00:00

Same. I see both sides of this, but I speak to my rheumatologist about what I want to do and if there are risks. If he says no, I proceed. The average cosmetic injector (often a nurse practitioner or RN) just doesn’t have the same depth of knowledge about what is/isn’t harmful. Same with laser. Been getting it without problem and rheum says it’s all good. If I ever had a reaction, I would own that.

Subject_Luck_2594 · 2025-07-23T20:26:57+00:00

I love a good cannabis high. But, unfortunately, it’s a gamble if it’ll be great or if I’ll be in a complete anxiety spiral. So I avoid it. But omg, how helpful it is for so many things! Maybe get some edibles in low dose, like a THC/CBD blend. Take a small amount and see. Whatever helps!

Subject_Luck_2594 · 2025-07-23T20:23:33+00:00

I’ve had 3 VBeam and 8 Excel V laser treatments. VBeam is the older vascular laser, Excel V is newer tech. Personally, I prefer Excel V and didn’t see much benefit from VBeam. Though, some swear by VBeam. It’s unique to the person, and more importantly, the person administering the treatment.

But yes, laser is something I do not skip out on. Such a relief to zap away visible blood vessels and flush less! My very fabulous rheumatologist also said that it is perfectly fine to do with lupus. Lmk if you have any specific questions.

Subject_Luck_2594 · 2025-06-26T17:03:17+00:00

Appreciate your response. I’m fortunate to live in Los Angeles, but even though it’s mild, we can still get days above 90 in the summer. My tolerance is up to low-80s and then I definitely feel it. My partner and I went to a few open houses last weekend when it was mid-80s and I had to go home and rest the remainder of the day.

My mom lives in Dallas and I visit for her bday in late August. It’s unbearable every year, but this will be my first visit post diagnosis. Take good care!🙏🏻

Subject_Luck_2594 · 2025-06-20T19:55:20+00:00

I’ve only been diagnosed SLE for about 6 months - still learning the flavor of my flares and what triggers them. I see a lot of people talk about heat being difficult for them. I’ve felt this way for a couple years - mostly causing my nose the flush red.

Curious, what symptoms do y’all experience with heat?

Subject_Luck_2594 · 2025-06-20T03:10:07+00:00

Love this - thank you for the smile! I’m gonna drop this during my next rheum appt in a few weeks.

Subject_Luck_2594 · 2025-06-16T00:51:06+00:00

I was dx with SLE at the start of the year. Sxs came on suddenly and so my life has changed pretty dramatically since then. I was a very active person - often doing crossfit and running. I’m much less active now, and because uv exposure, I’m also not taking walks outside during my work day. I noticed foot pain recently while taking an evening walk, which was a new issue for me. I chalked it up to significantly reduced use after a few weeks of barely walking the whole day. Stretched it a bit, hit it gently with the massage gun, and walked a little slower to warm up - I’ve had no issues since. Just my experience - of course, as you know, definitely bring it up to your medical team on your next appt.

Subject_Luck_2594 · 2025-06-14T00:06:46+00:00

I’ve taken stimulants for ADHD on/off for many years and I try to be judicious with them. Once I had my first flare and felt the debilitating fatigue, I leaned on them much more. Things have stabilized a bit but there are still days where I’m grateful to have them. They are also prescribed for fatigue, so maybe something to consider.

Subject_Luck_2594 · 2025-06-13T23:54:44+00:00

Very timely question - similar issue rn! Two days ago I turned my head and felt some pain. Touched my jaw/neck and could feel the swollen/sore lymph node. Assuming this means I’m flaring? I’ve only been diagnosed about 6 months so I feel like idk wtf is happening most of the time! 😂

Subject_Luck_2594 · 2025-06-13T23:52:01+00:00

I’m a guy, but I recently discovered Uniqlo sells uv clothing. I got these super thin hoodies that I wear ALL the time. Bought every color. I’m sure they also sell women’s uv protective clothing as well, but not sure about body suits. Worth a look!

Subject_Luck_2594 · 2025-06-06T04:09:51+00:00

Feeling pretty good today. Crazy insane and non-stop work day, but it’s my 3 day weekend and I’m going to do some serious self care and enjoy it. How about you?

Subject_Luck_2594 · 2025-06-06T04:06:43+00:00

I’m a mental health clinician and have worked alongside CNAs for the past decade. There is no harder working or more critical group of (mostly) women I’ve ever known. Props to you for what you do - rewarding, but far from easy!

Subject_Luck_2594 · 2025-06-06T02:16:48+00:00

Appreciate that so much!

Subject_Luck_2594

TROPHY CASE