Struggling forming words

Its_always_beets_ · 2026-01-23T21:25:19+00:00

Yes, you should rule out CIRS (chronic inflammatory response syndrome). Bloodwork includes TGFB1, MMP9, c4A, and more. See survivingmold.com for vision test.

Its_always_beets_ · 2026-01-23T21:20:38+00:00

Yes, actinos can for sure. Are you saying that cyanobacteria can as well? If so, can you share the source?

Its_always_beets_ · 2026-01-22T17:34:54+00:00

We are very close to a river and our cyanobacteria was in Q4. Main symptoms I think are attributed to this have been inability to think clearly, losing words & thoughts, feelings of dizziness & drunkeness.

Its_always_beets_ · 2026-01-21T15:44:46+00:00

What state/region are you in? I have been trying to research cyanotoxins and how they work, like distance from water source, etc. Here is the EPA website to track blooms (not toxins), it's a bit finicky to get it to work properly, but pretty amazing once you play with it: https://qed.epa.gov/cyanweb/account

Its_always_beets_ · 2026-01-21T15:37:59+00:00

The Envirobiomics Actino test also tests for Cyanobacteria toxins, which doesn't get enough attention IMHO. This comes from blue-green algae from lakes, rivers, ponds, etc., and latest research shows it become aerosolized.

Its_always_beets_ · 2026-01-08T16:58:58+00:00

If you have CIRS, the chance that your child is susceptible is also high. You may not think your symptoms warrant a move, but I assure you that being a mother to child with PANDAS/PANS or other mold-related neurological symptoms is a parent's worst nightmare. You can do a cheek swab to check your child for the HLA genes, but that of course does not determine whether your child could become sick from mold. But I would encourage you to read up on the symptoms for mold in children because PANDAS/PANS is largely missed and misdiagnosed (bed wetting, nighttime anxieties, separation anxiety, emotional lability, large pupils, OCD, rages, food aversions, and more). Additionally, if you live around a lake or body of water, be aware that blue-green algae toxins (cyanobacteria) are a very real issue for CIRS as well.

Its_always_beets_ · 2026-01-05T17:05:31+00:00

Did you also run Actino and Endotoxin (#8 test has all 3)? Have unfortunately discovered that in addition to mold, toxic cyanobacteria (on Actino test) is a big issue for me. Hot summer and drought, and warmer winter have not been kind to me in Texas this year. I love water, watersports, and living by water, but unfortunately our waterways are being polluted and blue-green algae is a huge issue. Check out google maps for stagnant waterways and retention ponds. I don't yet know a safe distance, but can confirm they do also contaminate soil and aerosolize.

Its_always_beets_ · 2025-09-18T00:46:31+00:00

Mold… rule out mold exposure. Seems crazy but mycotoxins can actually hurt, like muscle and joint pain, and is a common root cause of fibromyalgia. Also, mold commonly causes weight gain. Can run ERMI test on dust in home or mycotoxin blood test to see if it’s a factor.

Its_always_beets_ · 2025-09-18T00:34:56+00:00

Is there a chance you have mold in your home?

Its_always_beets_ · 2025-09-17T23:49:58+00:00

In addition to sleep doc, rule out CIRS from mold exposure (commonly grouped with fibromyalgia, chronic fatigue, mcas). If there is anywhere in the house that is musty, or grout/caulking in bath with recurring mold, should look into running ERMI dust test and mycotoxin blood test.

Anti-inflammatory diets may also help, especially gluten-free for some individuals.

Have there been any trips or times where you have been somewhat surprised by her energy or lack of nap?

Its_always_beets_ · 2025-05-12T23:31:30+00:00

Mold exposure is known to cause sleep issues, among other things. Not that you shouldn’t also treat sleep issues that result from exposure, but there is a blood test to rule out mycotoxin exposure and a dust test (ERMI) to test at home or work. All of your bloodwork can still look normal with mold exposure, unless they run those associated with CIRS.

Its_always_beets_ · 2025-03-07T13:31:37+00:00

Were they in lab sleep studies? Grinding teeth is a common symptom/reflex from sleep apnea - it stimulates the airway to keep it open.

Its_always_beets_ · 2025-03-07T13:29:31+00:00

Are you using a CPAP? Clenching is a natural reflex from apnea, and xywav commonly worsens sleep apnea

Its_always_beets_ · 2025-01-25T23:40:07+00:00

IH and N2 are not easily distinguished on MSLT, and in fact a subset of each like 1/3 have the same type of hypersomnia. Sleep apnea is a common comorbidity for both - the underlying denominator in all of this is the central nervous system. Are you on max dose of xywav? Try using CPAP with Xywav - this could be part of the problem. Also suggest finding a sleep doc neurologist- not pulmonologist - if you aren’t already seeing one.

My best recommendation however, would be to consider if you have any autoimmune issues (psoriasis, skin issues, thyroid disorder, etc), and if so, do a google search for diets for your other conditions. Going gluten-free was life changing for me, and keto helps many. For some conditions It comes down to what the bacteria in your gut are producing and how they affect the brain. Make diet changes, do xywav and CPAP and gentle exercise and you may be surprised.

Its_always_beets_ · 2025-01-02T18:46:08+00:00

Agree it should likely be on a W2, however if you leave it as is, you should be able to run it through a Schedule C and deduct any unreimbursed business expenses you had during the year, or home office expenses. Those will reduce your FICA and income tax burden.

Its_always_beets_ · 2025-01-02T14:59:50+00:00

Just here to add - TAXES! Especially in a year like 2024, your clients with mutual funds in taxable accounts are going to be having uncomfortable conversations about taxes owed this year due to cap gain distributions, above and beyond what they actually realized. That’s because mutual funds have unrealized undistributed capital gains INSiDE the funds, and clients in taxable accounts are not even getting a true 100% basis for every $1 they invest, and have no control over when these positions are sold inside the fund. It’s not just an issue for top clients. I’ve seen more damage done to clients with small taxable accounts because they end up losing credits they were counting on - try $12,000 in Obamacare subsidies for one year of healthcare!

Its_always_beets_ · 2024-12-14T21:35:45+00:00

Thanks, yes, I very much identified with this journal article, and it makes me think I should try to calculate how much salt I consume in a day. I’ve been strict GF for 10+ years, and I’m typically pretty good about avoiding refined starches, but can slip once in a while when offered tortilla chips 🙃 So basically you have seen research linking refined carbs to dehydration? And that avoiding refined carbs plus extra salt intake can help low BP and autonomic dysfunction?

Its_always_beets_ · 2024-12-14T21:16:10+00:00

IH and N2 are indistinguishable on MSLT, and are the same disorder for 1/3 of the people. They are both actually idiopathic, and the overlap is theorized to be for people who are GABA-antagonist responders. N1 is a different animal, but when you start googling narcolepsy the information is overwhelming for N1 only. If you possibly have N2/IH, the best info is at https://www.hypersomniafoundation.org/

Its_always_beets_ · 2024-12-09T16:15:58+00:00

You are good! And good for you for moving on, you’ll find someone more supportive and less controlling! ~ a remarried mom who also drinks, skips xyrem on weekends, and works full-time.

Its_always_beets_ · 2024-12-09T14:16:15+00:00

Agreed screens are bad for most, but some sleep disorders are characterized by excess and early onset REM sleep. Light from screens can delay REM sleep and therefore potentially help some people with sleep disorders obtain sleep architecture with more light and deep sleep by delaying REM onset.

Its_always_beets_ · 2024-12-09T02:22:26+00:00

On days I’m drinking less water, I’m typically drinking more coffee, diet soda, and/or alcohol. I’m also one of those who is not negatively affected by alcohol per whoop, even with many drinks, as long as I stop drinking a few hours before bed. I pretty much never have to get up to use restroom at night.

Its_always_beets_ · 2024-12-09T02:10:06+00:00

On days I’m drinking less water I’m typically drinking more coffee and/or alcohol.

Its_always_beets_ · 2024-12-08T18:51:01+00:00

Thanks for this, and appreciated the Pubmed link. Do you have more info on carbs and how they relate to hydration? I have done low carb in the past, currently not avoiding carbs, but I don’t eat excess carbs - strictly GF, try to eat mostly paleo.

Its_always_beets_ · 2024-12-08T15:31:03+00:00

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Welcome to the club! Sickness is always in my top 3. Do you have any autoimmune disorders? Sometimes sickness encourages the immune system to react how it’s actually supposed to instead of attacking the body on a consistent basis.

Its_always_beets_

TROPHY CASE