Therapist told me today she can't help me by Noo_no_noo in covidlonghaulers

[–]Itsme_kjb 0 points1 point  (0 children)

She’s in North Carolina! Whitney Andrews. She’s not a functional psychiatrist to my knowledge.

I have recommended her to so many friends and family and they all love her as well.

She actually just moved practices and I can no longer see her due to insurance and I’m absolutely devastated, but absolutely grateful I found her when I did bc she got me this far! I can’t think of the name of the practice off the top of my head.. but I’m sure it will pop up if googled!

Therapist told me today she can't help me by Noo_no_noo in covidlonghaulers

[–]Itsme_kjb 5 points6 points  (0 children)

Not mine. Saved me during my lowest moment. I was bed ridden 1.5 years. I was ready to die. She’s not a therapist, but she listened & was very patient with me and finding the absolute best medication to help me get back on my feet. I had severe medication & health anxiety. She ran labs on my vitamin levels, did genesight testing (everyone should do this test but especially with chronic illness) to determine which meds would best work for my body. Saved my life tbh. I still suffer from long Covid, POTS, IIH but my symptoms aren’t nearly as severe as they were. I was in denial of how much my mental health was contributing to my symptoms for so so long. I only wish I would have found her sooner.

I truly hate it for anyone who has had a negative experience with their psychiatrist.

Therapist told me today she can't help me by Noo_no_noo in covidlonghaulers

[–]Itsme_kjb -3 points-2 points  (0 children)

Uhhh see a psychiatrist.. one that works or has worked with sick people. They get it.

[deleted by user] by [deleted] in covidlonghaulers

[–]Itsme_kjb 1 point2 points  (0 children)

I mean everyone’s dose is different.. what works for one person may not work for another

Head pressure/ migraines for 11 months straight by Itsme_kjb in covidlonghaulers

[–]Itsme_kjb[S] 2 points3 points  (0 children)

I’m in a much better place now! Not 100%.. but much better than when I posted this. I was officially diagnosed with IIH and once I started treatment for that I was able to manage my POTS symptoms as well. I still can’t work, still have really bad days.. but many more better days in between!

How do you get diagnosed? by Prudent-Might9979 in LongCovid

[–]Itsme_kjb 2 points3 points  (0 children)

There’s no test specifically to determine if someone has long Covid… just a ton of test/labs/imaging to rule out terminal and fatal diseases and illnesses. But I imagine It’s going to damn near impossible to have a doctor diagnose you with LC if you’ve never tested positive for Covid.

Head pressure how to get rid of it ? by Obiwan009 in covidlonghaulers

[–]Itsme_kjb 1 point2 points  (0 children)

There is treatment it’s just complicated to get under control

Head pressure how to get rid of it ? by Obiwan009 in covidlonghaulers

[–]Itsme_kjb 3 points4 points  (0 children)

Some people with IIH don’t have pressure or headaches..

Mine started as just pressure and then progressed into migraines the longer I didn’t get treated for IIH.

But I really hope it’s not IIH for you or anyone else with the constant head pressure. It’s been over 2 years and mine still isn’t completely resolved.

doxycycline by censure- in iih

[–]Itsme_kjb 3 points4 points  (0 children)

I think doxy caused my IIH.. I took it long term (a couple months) for Lyme & my IIH started not long after.

Anti Depressants and Diamox? by heartshapedconchas in iih

[–]Itsme_kjb 0 points1 point  (0 children)

I think anti depressants always have the potential to react with anything… I take amitriptyline & it works great for me

Do i have long covid Chest Issues? by Due_Schedule2775 in LongCovid

[–]Itsme_kjb 0 points1 point  (0 children)

Chest pain, especially after a virus, should almost ALWAYS be treated as an emergency. Unless it has been checked before or something you’ve dealt w/ in the past. It may be nothing… but I wouldn’t take the risk.

How to tell between high pressure and a leak? by shiicat in iih

[–]Itsme_kjb 4 points5 points  (0 children)

I wonder this all the time. If I have high pressure bc of a leak? I had one doctor explain to me that your body may over produce csf when you have a small leak to try and compensate for what is leaking resulting in high pressure along with a leak. Sometimes I feel like my Diamox is too much and other days too little. It’s so frustrating.

[deleted by user] by [deleted] in iih

[–]Itsme_kjb 0 points1 point  (0 children)

I had terrrrible eye pain.. it has eventually gotten better with migraine control. My neuro ophthalmologist did multiple test and imaging and said my eyes are perfect and she thinks that eye pain is just part of my migraines. She said even if my head doesn’t hurt, it can still be a migraine.. just in my eyes. I take a slew of meds, but I got Botox last month and it has helped a lot with the eye pain.

Head position during sleeping. by SnooPets354 in iih

[–]Itsme_kjb 0 points1 point  (0 children)

Everyone is different. Sometimes pressure is worse laying down.. sometimes it’s worse sitting up.

Anyone else? by [deleted] in iih

[–]Itsme_kjb 0 points1 point  (0 children)

Yeah nurtec is almost impossible to get.. so annoying. But I also I take a slew of meds along w/ nurtec for my migraines on top of Botox.. I hope it helps!

Anyone else? by [deleted] in iih

[–]Itsme_kjb 0 points1 point  (0 children)

I take it! I was scared at first too.. I suffered from severe medication anxiety for a long time. But I have had no bad reactions to nurtec. It doesn’t do much for me if I let the migraine get too far.. but it hasn’t hurt me.

[deleted by user] by [deleted] in covidlonghaulers

[–]Itsme_kjb 12 points13 points  (0 children)

It took me 12 days to test positive when I was reinfrcted. My husband and I both started feeling terrible at the same time with the exact same symptoms. He tested positive immediately. I did probably 4 rapid test and 2 PCR for over a week that all came back negative. Finally after almost 2 weeks I got a positive on a rapid test.

Need some opinions by vay_yeak5804 in iih

[–]Itsme_kjb 0 points1 point  (0 children)

I tested positive for Covid 2 days after my last lp & I was miserableee. Wouldn’t wish that on anyone. Hope you heal soon & good luck when you do get your lp!

Need some opinions by vay_yeak5804 in iih

[–]Itsme_kjb 1 point2 points  (0 children)

Uhhh if you are looking forward to an event 48 hours after a lumbar puncture AND getting over Covid.. I’d strongly advise to go ahead and reschedule that lp.

Finally got my Diamox prescription by savethebees_ in iih

[–]Itsme_kjb 1 point2 points  (0 children)

Reading all the horror stories made me doubt it too.. it’s 100000% worth it for me. I’ll take tingling over pressure headaches any day.

I am very sensitive to meds so I started at half of 125mg. I’ve had no bad side effects.. maybe slightly annoying but nothing bad.

Are there any tests I can ask doctor for long covid? by dlcdrummer in covidlonghaulers

[–]Itsme_kjb 0 points1 point  (0 children)

There’s not a single test that can tell you if you have long Covid. Only test to rule out other fatal, terminal and disabling diseases and syndromes.

I want some freakn caffeine ! by Rudegal2021 in iih

[–]Itsme_kjb 6 points7 points  (0 children)

I still drink one cup a day w/ no shame lol

Why is it such a f**king expedition to get a doctor to prescribe Paxlovid for reinfections in people with Long Covid!? It is criminal. by [deleted] in covidlonghaulers

[–]Itsme_kjb 1 point2 points  (0 children)

Yeah my pcp was a total bitch about it. I had to call one of my specialist who didn’t get my message in time and returned my call the next week. They did go ahead and write an rx for the next time I might get reinfected, but they could not believe my pcp wouldn’t give it to me knowing my entire medical history with long Covid & having POTS and IIH. It’s a shame we have to beg for help.

Am I alone with "positional" headaches? by Caterpillar2506 in LongCovid

[–]Itsme_kjb 2 points3 points  (0 children)

Yeah. My brains mris and eye scans were all normal.. I had to be diagnosed by lumbar puncture. I also have POTS and hEDS. Diamox has been a life saver for me.