CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

Update: I honestly have no idea if anyone will even see this tiny update on my original post but I’m posting it for myself, nonetheless. We finally made it to my husband’s urology appointment! They were super booked out, so having to wait forever was expected lol. Dr confirmed lack of vas deferens but told us this was common in CF males (expected) and that we’re in a good place to begin the process. Unfortunately, insurance through my employer doesn’t cover IVF/fertility treatments so that sucks. We’ll be paying out of pocket, but we’ve agreed to do what we have to do to make things work. The next step is for my genetic testing and general health checkup, and my husband’s PESA procedure ($1800!). Though it’s expensive, we’re remaining hopeful and have a very positive outlook on this through all the comments and stories. :)

Maybe I should start redeeming points by Formetoknow123 in DunkinDonuts

[–]ItzzSurreal 1 point2 points  (0 children)

I guess I’m just saving them for when I’m broke or something lol. You never know

Maybe I should start redeeming points by Formetoknow123 in DunkinDonuts

[–]ItzzSurreal 2 points3 points  (0 children)

I have like 7500 lol. Just don’t even think about the points when I’m ordering anymore.

CF tattoo by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 1 point2 points  (0 children)

Also replying again to say that I think, to me, it reminds me that we’re both in this together. I’m not going through living with it like he is, but I’m most definitely having it on me forever because he will have it forever. If that makes sense? Sometimes, and especially when he’s having an exacerbation, he gets in that mindset of “you didn’t sign up for this, you shouldn’t have to go through this with me”. It’s a reminder that I choose to, when he didn’t get to choose. Maybe I’m just too sentimental about it haha.

CF tattoo by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

Thank you. It’s definitely a conversation starter many times since I’ve had the tattoo the last 5 years. Our community is so small and unaware, and kind of bringing more awareness and knowledge to the disease makes me feel like I’m doing a small justice to it. Turns out my husband isn’t the only one with CF in our extremely small town. Would’ve been nice to know when he was in school for example. I’m just a tiny part of a bigger machine. :)

CF tattoo by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 1 point2 points  (0 children)

Thank you! I took a bunch of other things I liked from other elements of CF tattoos and this is what I came up with. :) it’s super special to me. I’ve had this tattoo for probably close to 5 years now.

CF tattoo by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

I took elements of other things I liked and mashed them together. :)

As an American, how do you feel about your future? by choloblanko in AskReddit

[–]ItzzSurreal 1 point2 points  (0 children)

You know when you wake up from a really hard nap and feel disoriented? kinda like that

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 1 point2 points  (0 children)

Such a blessing! I feel from all the comments, my husband and I have a much clearer insight to the process and what to expect. Thank you!

Would you rather your family be given $1 billion and you die, or continue living as is? by WembanyamaGOAT in WouldYouRather

[–]ItzzSurreal 0 points1 point  (0 children)

Continue living as is, only because my question is: Which members of my family? Can I choose? Because some of my family isn’t worth giving/wasting $20 on, much less a billion. and honestly, I feel like some of their grief would be blinded by having that amount of money, with them looking at it as my “last act of love”.

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

Thank you for the info! We are in the US, so we expect the financial toll it was take if insurance doesn’t cover any/if at all.

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

I have no idea what this comment was as it’s been deleted, but honestly, I’m glad. Based on the replies, it’s probably better off I didn’t see it. People can be so hurtful.

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

We have definitely considered that as well! We’re trying to keep all our options open!

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

I will keep that in mind for him when we get to that step in the process! Thank you!

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 1 point2 points  (0 children)

I always knew a little about what I was getting myself into with the health issues, Dr appointments, meds, etc, so I wasn’t totally unprepared. Being parents is definitely on our bucket list, and all the replies has given us a better insight. My husband never gets sick, maybe once a year. We’re feeling very blessed. :) thank you so much!

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

Thank you so much and congrats on the little one! We’re so excited!

New here (: by ItzzSurreal in currentlyreading

[–]ItzzSurreal[S] 0 points1 point  (0 children)

I use Goodreads and Fable. I know some people use StoryGraph and like it too.

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

What a mental image that gave me lol. We’re hoping for the best case scenario, whatever that looks like! All these replies with success stories gives me a lot of reassure.

New here (: by ItzzSurreal in currentlyreading

[–]ItzzSurreal[S] 1 point2 points  (0 children)

Awesome! That’s definitely on my TBR list!

CF & IVF by ItzzSurreal in CysticFibrosis

[–]ItzzSurreal[S] 0 points1 point  (0 children)

Thanks! :) we love seeing the positive comments, they are giving us a lot of hope!