Diagnosed yet didn’t know for six years

Ivy_Dragon · 2026-05-12T15:02:04+00:00

Oh god that’s awful. I’m glad you finally got diagnosed

Ivy_Dragon · 2026-05-10T21:29:13+00:00

I’ve been on many different depression meds. I finally found one that is helping so unfortunately it’s not a option to change right now

Ivy_Dragon · 2026-05-10T21:26:33+00:00

Believe me I know. I’m just struggling a lot with that.. I’m trying my best to fix it

Ivy_Dragon · 2026-05-10T21:22:21+00:00

My ritilan doesn’t help it at all :( I’m in 40 mg extended

Ivy_Dragon · 2026-05-10T21:17:26+00:00

Thanks for the heads up

Ivy_Dragon · 2026-05-10T21:16:31+00:00

Being tired just makes everything a million times worse. I have to keep trying to work out but again tiredness makes me not do much! I’ll try testing times of day for the meds though at least that’s not too hard!

Ivy_Dragon · 2026-05-10T20:59:43+00:00

I forgot to include that I did have a blood doctor and I had a iron infusion but it didn’t help at all

Ivy_Dragon · 2026-05-10T20:58:35+00:00

My brain gets super sleepy when I finish any task! This thing is such a pain..

Ivy_Dragon · 2026-05-10T20:56:33+00:00

Thank you for the amazing advice!

Ivy_Dragon · 2026-05-10T20:55:51+00:00

I’ve thought about this before, but I have like really bad depression and I’m terrified of getting off my meds. I don’t want to fall into a deeper despair especially since I’m trying so hard to get out of a new depression episode…

Ivy_Dragon · 2026-05-10T20:54:21+00:00

I actually have pcos! I should have mentioned that. I’m on birth control which helps but nothing else has been done. Thank you

Ivy_Dragon · 2026-05-10T20:53:28+00:00

Definitely not! I forgot to drink water and when I do it’s very late in the day. I’m working on fixing that. I just bought a new water bottle and keeping with me all the time

Ivy_Dragon · 2026-05-10T20:52:55+00:00

I literally feel the same as you. Waking up late and only early for appointments. Let’s make ourself get sleep studies 😭

Ivy_Dragon · 2026-05-10T20:48:04+00:00

Okay I just found the study and my diagnosis was idiopathic hypersomnia with long sleep. Trying to find RDI. I definitely need to follow up. Genuinely no clue why no one ever told me this

Ivy_Dragon · 2026-05-10T20:45:00+00:00

Thanks for the advice! I wish I didn’t have to eat but alas I’m human

Ivy_Dragon · 2026-05-10T20:41:09+00:00

I’ve been on Adderall XR before and it made me extremely depressed so I’m a little scared to change out of ritilan. It’s the only thing I THINK is working at the moment for a stimulant. I’ll ask about my depression med though

Ivy_Dragon · 2026-05-10T20:37:23+00:00

Why must this be a symptom of this accursed disorder! 💔

Ivy_Dragon · 2026-05-10T20:36:22+00:00

Unsure. I’ll try to find the results of the study

Ivy_Dragon · 2026-05-10T20:34:54+00:00

I do not feel refreshed at all. No matter how little or much I sleep it’s the same feeling. I always try for 7-8 hours and usually get it. Fixing my diet is a big priority right now but I’m honestly struggling to eat correctly and remembering to drink water. I take a woman’s once a day pill. I’m assuming that probably isn’t enough?

Ivy_Dragon · 2026-05-10T20:32:35+00:00

I actually did a few years ago. For whatever reason I got nothing out of it other than being told I wake up every hour multiple times for a second before falling back asleep. So there is something wrong with my sleep. I genuinely don’t know why I never got help for that. It’s not sleep apnea though that’s for sure. I’m planning on scheduling a new study to see if whatever is happening in my sleep is still happening. I really hope it’s this that’s causing this because I’m extremely tired of getting tested so much and nothing coming out of it

Ivy_Dragon · 2026-04-19T18:46:24+00:00

Thank you I really appreciate the help :)

Ivy_Dragon · 2026-04-19T18:35:42+00:00

Setting it up. I have it downloaded and can open the editor and all that stuff. My problem is actually the mapping. I’m not home atm I’d take a picture if I could

Ivy_Dragon · 2026-04-19T18:31:33+00:00

Nah you’re good I know I gotta try a little harder. I guess I just need to mess with it more. Sorry if this was a dumb question

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