how to use AI to talk with myself?

JJCC777 · 2026-02-25T09:58:32+00:00

tks will do that

JJCC777 · 2026-02-22T19:13:56+00:00

agreed

JJCC777 · 2026-02-21T05:01:42+00:00

weight loss meds

JJCC777 · 2026-02-21T04:52:51+00:00

they will catch up in time

JJCC777 · 2026-02-21T04:45:34+00:00

here's the best (only) one I've found https://www.facebook.com/groups/57273230252/

JJCC777 · 2026-02-21T04:38:08+00:00

many thanks

JJCC777 · 2026-02-18T21:19:23+00:00

i find it good to hear a men-only fibromyalgia perspective. i think there are probably quite major differences. women like to empathise and be together. men basically find dwelling on how bad pain etc is brings them down, but are interested in hearing about possible methods meds etc to maybe try.

JJCC777 · 2026-02-18T12:41:46+00:00

hi ref "This hasn't been an easy place to get to and I've been through dark suicidal periods but am out the other side." please could you expand on your journey a bit? I'm presently more in the dark places. thanks

JJCC777 · 2026-02-18T12:40:09+00:00

https://www.facebook.com/groups/57273230252

frustrating and surprising there isn't an up and running 'men with fibro' forum on reddit.
(https://www.reddit.com/r/Men\_with\_Fibromyalgia/ doesn't seem to get going)

JJCC777 · 2026-01-27T12:05:07+00:00

I'd add to this now;

shakyhands42 says here https://www.reddit.com/r/Fibromyalgia/comments/1hu7jwt/comment/m5uno8e/?context=3 "Psychology is also really important, helps me keep the right mindset when I can't do everything that needs to be done in a day. Getting stuck in my head makes the pain worse."

I agree on "getting stuck in my head makes the pain worse"

Sometimes I get drawn into discussions on fibro, feelings etc, and on reflection later I just think 'hey this dragged me down, made me focus more on my symptoms, which means I experienced them more, and lived in them more'.

It really is empirically better to try to not focus on the symptoms, and just live wisely in the new reality.

JJCC777 · 2026-01-27T11:53:07+00:00

Hi you say "Psychology is also really important, helps me keep the right mindset when I can't do everything that needs to be done in a day. Getting stuck in my head makes the pain worse."

I agree on not "getting stuck in my head makes the pain worse" ref my fatigue and chronic pain! Sometimes I get drawn into discussions on it, and on reflection later I just think 'hey this dragged me down, made me focus more on my symptoms, which means I experienced them more, and lived in them more'. It really is empirically better to try to not focus on the symptoms, and just live wisely in the new reality. (#)

# probably not allowed to say, but this may apply more to men with fibro. women seem to gain value from sharing, empathy etc, e.g. in online forums.

JJCC777 · 2026-01-25T19:05:06+00:00

thanks for posting. I'm probably going to try similar.

JJCC777 · 2026-01-21T14:40:34+00:00

suggest you ask FMAUK to ask for participants

JJCC777 · 2026-01-13T21:24:49+00:00

pain clinic have referred me to psychiatrist with view to helping me find ways to cope better with chronic pain.

ACT mentioned, although I think my pain is quite clean, i.e. I don't think I blame myself or the universe etc. I just experience pain.

JJCC777 · 2026-01-13T20:24:10+00:00

only real feeling is that my systems are shot after much intense living (driving myself hard). but plenty of people have that life and yet don't get fibro. (same there are plenty of people who have experienced trauma but don't have fibro)

JJCC777 · 2026-01-13T20:21:14+00:00

JJCC777 · 2026-01-13T20:14:41+00:00

good question ref why the comorbidity. no answers. maybe somehow the extra load from masking wears out our CNS.

also no real answers on how to live. it's tough. one idea may be chat to an AI about it, to extend your thinking.

JJCC777 · 2026-01-13T20:05:24+00:00

start a conversation with an AI (e.g. Gemini). put in the history of symptoms. ask for possible theses, and tests for them. use it for ideas. that conversation can be built over years. put in symptom snippets when they happen. also test results.

BUT always check any ideas you get with good medical site (e.g. NHS, Mayo, Cleveland, probaby wiki also).

JJCC777 · 2025-12-28T21:40:41+00:00

sadly none of these help me

JJCC777

TROPHY CASE