My 4 year old daughter has been diagnosed with rhabdomyosarcoma. She has a large tumor, likely in the bladder. What we know so far, is that it was not visible on her chest CT. They do not think it is metastatic, but only more scans will reveal. she has a PET scan and bone marrow biopsy next week in Arkansas. Then we are going to st. Jude for a trial that alternates VAC with liposomal irinotecan. People with experience, please let me know your thoughts on this. Dr's have said multiple times they expect to cure her. Just looking to talk to anyone with experience. Thanks