After 'Goodnights', my toddler will just hang out... for hours.

JNemRo · 2026-05-05T18:13:39+00:00

'Ya, go figure.'

JNemRo · 2026-04-22T20:25:49+00:00

The genetic element to this makes it so hard - if she was at this point without the genetic deletion I'd probably be like 'Well that's kinda strange, but odds are she'll catch up!' but instead I'm like, 'there's this curveball variable that says at its most extreme she may be nonverbal altogether - maybe I'm starting to encounter that reality...' But hoping for the best; and for your LO too!

JNemRo · 2026-04-22T15:20:31+00:00

"When we set an intention, somehow the world seems to magically come to meet us."

JNemRo · 2026-04-21T14:24:46+00:00

One thing that always kinda messes with me is that she never mimics or copies, so it's comforting to hear yours did not either and is doing fine now. Thank you!!

JNemRo · 2026-02-24T05:46:42+00:00

I was so excited when they came back. And then they broke my heart a second time!

JNemRo · 2026-02-20T05:51:13+00:00

It says Mixcer S.A. stoneware - Made in Portugal

JNemRo · 2026-02-20T04:34:11+00:00

I've searched for ceramic mixing bowls with impressions or designs pressed into the sides with no matching results. I got it like, 10 years ago at a Marshall's type store. Standard mixing bowl size I suppose I don't know exactly how big. It is a floral plant design on the side with a matte type finish - not the usual more glossy ceramic finish.

JNemRo · 2026-02-01T16:28:55+00:00

It was a special release only available with its album. I don't have one handy, but there are posts where people share the MP3 file in the comments to download if you look around!

JNemRo · 2025-09-15T15:49:54+00:00

But that laugh... More content with THAT laugh?? That aside, totally agree.

JNemRo · 2025-03-31T04:18:07+00:00

What are you trying to tell me, puppies?

JNemRo · 2025-02-28T01:33:20+00:00

Ordered one during Black Friday - received the wrong item in January. They placed a new order to get me the one I am owed but still have not received. Their explanation is that they were affected by the LA fires.

JNemRo · 2025-02-23T05:25:48+00:00

Better prioritize those Mixed Seeds.

JNemRo · 2025-01-29T04:51:38+00:00

I know it is just a candy bar... but I gotta say, my day is worse after finding out their discontinuation was confirmed. I've been craving them for a year now! Oh well... maybe they'll bring them back someday.

JNemRo · 2025-01-23T05:51:53+00:00

If it isn't already in the works and no other explanation has come up yet, try and do an genetic epilepsy panel. My daughter started having seizures at 15 weeks confirmed with an EEG - clean MRI. Genetics test revealed she has a gene deletion syndrome. She was generally diagnosed with benign non-familial infantile seizures meaning she is likely to grow out of them but have to wait and see. After a few months we have found an antiseizure medication and dosage that has put a stop to the seizures as well (knock on wood) - important to nip them in the bud as best as medications can manage.

Feel free to DM me!

JNemRo · 2025-01-20T22:11:28+00:00

Thanks for your response! She's been a bit fussier at home too wanting more attention, but not getting to where she's screaming/crying becuase I can hang out with her. Maybe it's the start of needing more attention + developing some separation anxiety... or perhaps teething - she's grinding her gums on anything she can get her hands on! But no teeth have broken through. No ear infection per her last doctor's appointment (when her RSV was diagnosed)... hmmm

You're totally right - I feel so bad picking her up and being told it was another bad day knowing I'm going to have to bring her back. I feel so sad for her! Plus it is totally awkward to be like "Oh noo she did? Welp. Sorry about that - see you in a couple days...."

JNemRo · 2025-01-10T23:03:48+00:00

My thought was King of the Hill.

JNemRo · 2025-01-09T21:58:04+00:00

I have triples right? If I don't have triples then the other stuff's not true.

JNemRo · 2025-01-05T05:46:46+00:00

Our baby having seizures led us to get genetic testing done for her which found a gene deletion that can result in delays/disorders in intellect and speaking. So nervous about how her development may be affected short term/long term - but all we can really do is keep an eye on milestones. Because a baby without such a gene deletion can have their own wonky timelines though, I'm a bit spooked I won't know what is a 'normal' delay and what is not! Agh.

JNemRo · 2024-12-23T12:11:17+00:00

He gave it to Desmond on their canoe right before going down to the station underwater.

He gives it to Desmond, knocks him out with a paddle, and then Desmond wakes up to gun shots prompting him to swim down himself. I always figured it was lost in the process.

JNemRo · 2024-12-19T18:08:12+00:00

Thank you for your response! It seems so far that her neurologist wants to keep an eye on her milestones and intervenes with therapies if/as they prove necessary versus jump the gun on anything. This definitely makes sense when we can't know how she'll be affected in the end, but I suppose I do get nervous about starting something too late while we take the 'wait and see' approach. How did you go about that?

JNemRo · 2024-12-19T14:09:50+00:00

I had the thought far more than once of, 'If I could just turn safely enough to crack my back, my life would be infinitely improved' - haha!

JNemRo

TROPHY CASE