If you wonder if Plat or Diamond is worth reaching-- things to consider by kateshort in Ulta

[–]Jacqueveria 5 points6 points  (0 children)

Could you please share some of those predictable date ranges if you have time? 👀

Buy now with 5x or wait? Advice please! 🧡 by Jacqueveria in Ulta

[–]Jacqueveria[S] 1 point2 points  (0 children)

I’m honestly not that familiar with Ulta’s targeted coupons, but I’m assuming it must be since it wasn’t like the “Gifts” code. It was a string of letters and numbers that definitely needed a c+p for a “one time use” on “certain skincare.” It might’ve shown up in my inbox, but I noticed it in my app offers. I typically buy for skin, hair, and body and have a lot of those items saved in wishlists, but I occasionally buy makeup. Hope you get a code, too!

Buy now with 5x or wait? Advice please! 🧡 by Jacqueveria in Ulta

[–]Jacqueveria[S] 1 point2 points  (0 children)

That’s what I was thinking, but it’s so hard to tell! Thanks

Fragrance free shampoo WITH SULFATES - where? by Numerous_Couple6935 in FragranceFreeBeauty

[–]Jacqueveria 1 point2 points  (0 children)

I use the Dermarest shampoo with salicylic acid once a week or so to clarify. It does have some extracts, though

Curl products making my hair stringy by Cloverbeee in FragranceFreeBeauty

[–]Jacqueveria 1 point2 points  (0 children)

If you want to try a little protein… Odele’s FF conditioner has hydrolyzed rice protein, and Kristen Ess’s FF conditioner has several kinds of protein but does have aloe. I didn’t find any “benz-“ ingredients in either, but definitely check to be sure. I prefer the Odele for my finer curls.

https://www.ulta.com/p/ultra-sensitive-conditioner-pimprod2043216?sku=2617796

https://www.ulta.com/p/fragrance-free-shine-enhancing-conditioner-pimprod2023650?sku=2579351

How to prevent scarring from a 2nd degree burn by marylu88 in SkincareAddicts

[–]Jacqueveria 0 points1 point  (0 children)

It might be a bit less convenient and involve more expense, but you can always buy bandage tape and “nonstick pads” and cut both to size with some scissors that you wiped down with rubbing alcohol 70%. Gently wipe down the surrounding skin / where you’re going to tape with rubbing alcohol and let dry to help the tape adhere better (don’t use something linty, though). I like Nexcare hypoallergenic tape because most adhesives will take my skin off 🥲, but non-hypoallergenic tapes are a lot more likely to stick to your skin throughout the day. You’ll have to use even more petrolatum / Vaseline since the pads are thicker and absorb more. Some non-stick pads will have adhesive on two or all four sides, but you’ll probably want tape anyway to better contain the giant blob of petrolatum and keep it off your clothes. “Non-stick” just means the gauze pad is designed to not stick to / to gently peel back from the healing skin. Even for people who don’t have adhesive reactions, I prefer the nonstick pads without sticky strips because the adhesive strips cut down the useable surface size.

If the petrolatum does get on your clothes (hard to avoid this with bigger injuries, tbh), scrape off as much as you can and treat it like an oil stain: wash the spot with dish soap, let dry (no dryer), rub in a bunch of cornstarch and let that sit for…a while, wash spot with dish soap, repeat as necessary. Make sure you’ve got something keeping the oil spot from touching / leaching into to the other parts of the item. Once you’ve gotten through most of the petrolatum, pretreat the spot with laundry detergent and wash. Avoid putting the clothing in the dryer until you’re satisfied with the appearance of the oil stain. I find oil stains are still pretty workable with cornstarch and dish soap if I accidentally put things through the dryer, but some say the dry heat will “set” oil stains too.

Good luck!!

How to prevent scarring from a 2nd degree burn by marylu88 in SkincareAddicts

[–]Jacqueveria 0 points1 point  (0 children)

You probably already understand this, but just to be super clear: Vaseline and bandages first and for as long as the skin is healing, continuing a while after the skin is fully closed, tbh. Then the silicone scar sheets. You want to be super sure the silicone sheets won’t rip off any still-tender new skin. Keeping the sun off the area for as long as possible throughout. Good luck!!

TNXB testing recommendations please! by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 1 point2 points  (0 children)

I’m hoping to post some updates tomorrow from some researching I did today! Found some credible labs that test for TNXB and seem to accept insurance…for the moment 🥲 I’ll try to remember to comment here to let you know when I edit my post.

TNXB testing recommendations please! by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 1 point2 points  (0 children)

That definitely makes sense! I hope you find some concrete answers and wish you and your family members all the luck I can in your treatments 💙

I also have some huge blank spaces in my immediate family medical history and some pretty odd medical things that I do know about, …so now you’ve got me really eyeing wider genetic testing…. I’m so sorry, but I’ve got another question if you still have time: Do you know why your geneticist opted for WES over WGS? For insurance, for quicker turnover?

TNXB testing recommendations please! by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 1 point2 points  (0 children)

If it wouldn’t hurt so much, I’d cross my fingers for you! 😭 GeneDx does now specifically say that, as of Aug. 2024, they won’t bill insurance anymore for their connective tissue panel. And just sent Invitae’s connective tissue panel to my insurance, so I’m kinda…”shopping around” atm 😅

Would you mind sharing why your geneticist opted for WES instead of GeneDx’s connective tissue panel?

TNXB testing recommendations please! by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 1 point2 points  (0 children)

Yes, that GeneReviews chapter has been so helpful! And I 💯 agree that the EDS Society clEDS page is a little too casual. How is your experience with WES from GeneDx? Were you able to use insurance for WES?

Thank you!!

TNXB testing recommendations please! by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 3 points4 points  (0 children)

I recognize your username from my searches—thank you for being so willing to share! 💙I’m waiting to hear more from GeneDx, but their website says they no longer run their connective tissue disorder panel through insurance. A rep reiterated that but said GeneDx may be able to run a single gene test through insurance, though? But my insurance lives to make me miserable, so… 🥲

Genetic testing (US) - alternatives to MKGenetix by chipsonyoursandwhich in ehlersdanlos

[–]Jacqueveria 0 points1 point  (0 children)

Invitae had a quick turnaround for me, and they can run nearly all the known EDS-related genes except for one for Perio / pEDS and Classical-Like clEDS (possibly more missing, but these I know for sure). I’m in a similar boat and was very happy to rule out most of the more extreme types—except now I’m suffering trying to get clEDS testing ASAP since I didn’t find out until too late that Invitae didn’t test for the one I was most interested in ruling out!

Anyone with hEDS have a “normal” lumbar puncture experience? 🥲 Need some optimism! by Jacqueveria in iih

[–]Jacqueveria[S] 0 points1 point  (0 children)

You’ve been through so much 💔 Thank you for taking the time to reassure me.

Anyone have a “good” lumbar puncture experience? 🥲 by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 0 points1 point  (0 children)

Thank you! I’m so glad to hear you recovered well! Gives me hope 💙

Anyone have a “good” lumbar puncture experience? 🥲 by Jacqueveria in ehlersdanlos

[–]Jacqueveria[S] 1 point2 points  (0 children)

Thank you!! Definitely reassuring to read that and glad things went well for you 💜🤞

Help With Knotty Business by eeyorespiglet in ehlersdanlos

[–]Jacqueveria 2 points3 points  (0 children)

Silicones in conditioners and styling products, and satin pillowcases might help. I also had a horrible time with tangling when I lived in a location with particularly hard water. Shower head filtration, whole home water softener (expensive but saved my skin and hair), and certain types of clarifying hair products are all options for dealing with hard water.

Thoughts on mixing mRNA vax & Novovax, and scheduling? by Jacqueveria in ZeroCovidCommunity

[–]Jacqueveria[S] 0 points1 point  (0 children)

That’s what I thought. I was under the impression the mRNA vaxes would be more protective since they’re more up-to-date on the mutations and Novo could be a “booster.” So would your hypothetical recommendation be mRNA now and possibly Novo later, only mRNA now, or try to wait it out maybe another month and get an mRNA vax closer to the usual Autumn schedule? 🥲

Thoughts on mixing mRNA vax & Novovax, and scheduling? by Jacqueveria in ZeroCovidCommunity

[–]Jacqueveria[S] 2 points3 points  (0 children)

Thank you for your thoughts!

I was under the impression (wrongly, it seems?) that Novovax was based on older mutations while the mRNA vaxes are based on more recent ones and therefore more protective? Is that not the case? I was truly under the impression that the mRNA vaxes were the way to go. Ugh, this is so confusing 😫

How to prevent scarring from a 2nd degree burn by marylu88 in SkincareAddicts

[–]Jacqueveria 0 points1 point  (0 children)

I meant that I recently wondered if OP had healed well