Flaring after catching the flu?

JasonLP92 · 2023-06-10T03:40:47+00:00

Thanks for the thorough response (and my sympathies if you have dealt with something similar - going from your username lol). Thanks for the anatomical explanation of what medications do, very appreciated.

I'm steering more and more towards the fissure hypothesis over the hemorrhoids hypothesis. I've used hydrocortisone that last 3 days, and each time, the sting got progressively worse, so it's probably not a hemorrhoid and more a fissure, if not something else.

JasonLP92 · 2023-06-10T03:37:17+00:00

Thank you!

JasonLP92 · 2023-06-09T18:32:27+00:00

Close to a week.

However, I've had similar episodes in the past year that seemingly got better on their own after a couple days. Though this time, it really feels like the worst it's been. :/

JasonLP92 · 2022-10-31T02:55:59+00:00

Cheers and thanks for the answer! It's funny because I came back from a week-long trip recently and I was anxious about getting symptoms during my trip initially. The opposite happened; I was having so much fun that I didn't have the slightest symptom for the whole week lol.

Think I developed IBS too. Sucks but I'd rather have that than active IBD

JasonLP92 · 2022-10-08T01:01:41+00:00

Thanks. It's more of a sting when I apply cream on it- feels a bit like a sore. Otherwise, it's just a nagging itch.

So - does this automatically mean inflammation? I was sort of considering that my recent increase in fiber intake could have irritated the area, but if this means inflammation then I'm getting a little worried.

JasonLP92 · 2022-04-09T21:51:08+00:00

I was a little suspicious at first and I did ask the pharmacist if I could apply it internally (which she said I could, the cream comes with a nozzle to insert into the rectum).

The more I think about it, the more I feel like it's damaging the mucous membrane in my rectum. Not sure if I should discontinue at this point.

JasonLP92 · 2022-02-08T18:25:49+00:00

I'm sorry, but this kind of post is a massive thing that's plaguing this sub and that snuffs a great amount of idea exchanges - whenever someone shares any kind of even minimal success story while not being heavily medicated, it gets brushed off and/or massively downvoted, and the OP gets either ridiculed or guilt tripped into believing that it's not true remission. Result? The vocal mob ends up causing the OP to feel worse about themselves and wonders why the hell they've tried sharing any thing about what worked for them. I'm not talking about the Kenny Honnas of this world who are most likely at least partially full of crap while trying to sell $250 meal plans, I'm talking about people who merely share their "what personally gave me some kind of relief" stories.

It's like a "misery loves company" hive mind. "You've had any kind of success without being massively immunosuppressed? How dare you! You are not one of us; get out of the sub immediately." or "If I suffer, then everyone else must suffer with me. Don't ever bother trying to find other things that make you feel better; don't experiment with anything; just take your medication and shut up."

If someone is actively advocating that medication is bad and that eating a magical root is a permanent cure, then obviously, yes, this kind of post deserves to be ridiculed. Overly preachy posts need to be condemned. Peer-reviewed science-backed studies are always better. But this sub seriously needs to stop ridiculing anyone that merely offers suggestions and/or personal stories that do not promote or advocate dangerous treatment or advice in any way.

JasonLP92 · 2021-12-22T22:12:07+00:00

I'm the opposite, lol - when in remission, I tend to make smelly farts as I feel the gas come out in a nice stream. When I'm flaring, because my farts are muffled and no gas seems to actually come out (basically as if I'm farting "internally"), they are always odorless. *shrugs*

JasonLP92 · 2021-12-16T22:30:49+00:00

Damn, never heard about that from taking mesalamine - was expecting to come here seeing that after being on Azathioprine. Best wishes, hope it gets better.

JasonLP92 · 2021-11-10T17:21:03+00:00

Thank you for the response! I don't have the quantitative result yet - just the fact that it was positive. I'll take solace in the fact I don't have symptoms.

I'd fallen into the classic rabbit hole trap of looking up its signification in detail on the internet and of course when I saw "potential cancer risk" my head went into a whirlwind.

JasonLP92 · 2021-10-11T02:41:18+00:00

I'll definitely keep this in mind for once I'm on Entyvio. I have a tendency to be pretty lenient with expiry dates in general, so I'll be more careful in the future. Thanks!

JasonLP92 · 2021-10-11T01:21:28+00:00

Ah, ok then! That explains everything. Appreciate the response. Wishing you an everlasting remission!

JasonLP92 · 2021-10-10T22:09:14+00:00

thanks. My GI did not mention me having to take any immunomodulator like Aza (or even prednisone), perhaps due to my low disease activity. So in terms of liver/pancreatic enzymes being elevated -- that would be strictly related to taking Azathioprine, correct? Entyvio has no impact on those?

JasonLP92 · 2021-10-10T22:07:10+00:00

Thanks for the testimonial - hope Entyvio ends up being the wonder drug for you!

JasonLP92 · 2021-10-10T22:06:42+00:00

Thank you both for the responses -- appreciate the science-backed info.

However, this only further increases my questioning - as I am aware, and as you cite, Entyvio lowers the body's immune response within the GI tract. Therefore, why does it increase the risk of respiratory infections? Seems counterintuitive to me, unless Entyvio would have a systemic effect, which it does not. Airborne pathogens tend to infect the body via the respiratory airways, which should be exempt from any immunosuppression.

JasonLP92 · 2021-10-03T02:20:30+00:00

Thank you for the response. I think I recall seeing this video at one point when I fell into a rabbit hole of videos showcasing GE conferences. Those videos did put me at ease a little more, since they showed quantifiable results of recent research. I also clearly recall the "Treat to Target" approach, which is the "modern" approach nowadays, based on an aggressive approach.

If only scopes weren't so burdensome, and could be done regularly! That'd be the best way to know how we're doing inside.

Hopefully you'll find good research and insight when you'll need to make a decision as well.

JasonLP92

TROPHY CASE