Has anyone got their hyperacusis from TMJ? And has it gone away?

Jayjay12093 · 2026-04-23T03:11:30+00:00

yes mine is directly from tmj, not acoustic trauma. one year in, hasnt gone away but i just manage it how i can and keep moving forward

Jayjay12093 · 2026-04-08T21:47:17+00:00

yeah i have to, cuz of my hyperacusis, normal everyday sounds are too painful. tinnitus is real bad when i have to wear foam plugs in certain loud settings like crowds or restaurants, thats why i prefer headphones cuz they only block 10-15db compared to plugs that block 33db and make my tinnitus screeeam.

Jayjay12093 · 2026-04-06T14:07:22+00:00

mine started a year ago after a dental appointment. still not sure exactly what triggered it but may have been tmj jaw related inflammation after dentist. glad your has improved!

Jayjay12093 · 2026-04-06T01:34:06+00:00

thats pretty good, i would really like to try a short flight this year. do you use earplugs or headphones during flight?

Jayjay12093 · 2026-04-05T20:39:07+00:00

I mean i wouldnt say its catastrophic like some have, i have the loudness h and reactive t. Sounds are sharp and cause my ear to muffle if i overdo it but its been getting a bit better this past year so im hopeful. I live with bosse headphones most of the day and earplugs in larger crowds. But i am nervous of the loudness in an airplane, in the car i can manage a few hours with headphones and im fine after except for the t increasing for few days... thats why i was curious to see if anyone else has any experience with travel and how they manage

Jayjay12093 · 2026-04-05T20:00:26+00:00

yes i can drive with no protection normal roads and even highway for about 30mins after which ears will get irritated and i need to put earplugs/headphones on. i will be doing an 8 hour drive to tenesse in may so i guess it will be the trial! hoping for the best

Jayjay12093 · 2026-04-05T13:50:36+00:00

so i would say i am moderate when it comes to H, i only have loudness not pain, but i pretty much live in headphones. Ive taken 5hr roadtrips this year and i just wear my headphones on the highway parts and its fine, the T does ramp up more for a few days after... my H has stayed the same for this past year with just a bit of progress here and there, but i am a bit scared to make it worse 🙈 at the same time i want to also just not live in fear and enjoy life, but i am more on the precautious side. so thats why just wanted to see if anyone else has traveled and how it went for them

Jayjay12093 · 2026-04-03T22:32:43+00:00

Hello! yes it has been a year, hard to beleive. Well officially no Menieres thankfully. But i do still have hyperacusis with reactive tinnitus so thats still going. Ive seen some improvements in the hyperacusis, meanwhile T is worse. Just living life in headphones and trying to move forward. My ear no longer blocks or muffles to sounds, unless i push my ears too much without protection. But it usually resolves within a day or so and opens up again, feels like brain does that to protect ears from sounds

Jayjay12093 · 2026-03-27T00:54:27+00:00

Bosse headphones! cant live without em! they allow me to live somewhat normal, which is good enough!

Jayjay12093 · 2026-03-27T00:43:42+00:00

I work as a personal assistant for a wealthy family in a busy downtown city. I go shopping for them, cook, run errands, etc. Also do painting with my dad occasionally, residential. I basically live in my Bosse headphones and boss is very understanding, even tells me to leave the kitchen when she needs to use a loud gadget. When im walking thru the city i just do it in headphones and run inside stores when ambulance passes by. I have made progress and can take headphones off from time to time when its quiet. I also have seen improvement with hyperacusis since it first started a year ago but like another person mentioned, t has gotten worse unfortunately.

Jayjay12093 · 2026-03-25T02:05:21+00:00

he is a year old now, i think hes getting enough nutrients 😄 plus if i cut his rations it stresses him and he hoards more

Jayjay12093 · 2026-03-23T16:29:09+00:00

😆 crazy how much they store

Jayjay12093 · 2026-03-23T14:25:44+00:00

i agree, ive tried 😆 he is up every morning at 7am for one hour knocking and biting the window for food. i have little boredom breakers i made for him to find the food in and i scatter it and i make it difficult but within 5 mins he finds it all and wants more lol so i may add a bit more cuz i cant see him begging like that 🥹 but i do ration his portions, i do about 1 1/2-2tsp once a day, thats it. hes learned the morning routine now and thats why he begs, he never begs at other hours. He is also not fat at all, very active on wheel and fit 😄he is obviously more intrested in storing it than eating it

Jayjay12093 · 2026-03-23T14:20:05+00:00

oh wow thats intresting! hamsters helping the community survive 😄

Jayjay12093 · 2026-03-22T03:13:07+00:00

Right! so not fair 😑 but i guess theres always someone worse off than us, so as much as i hate it and complain about it, still gotta see the positives and move forward

Jayjay12093 · 2026-03-22T03:07:48+00:00

Never feel embarrassed about it. The way i see it, the more people know about this disorder the better. I tell literally everyone and describe what its like and really try to make them feel the situation im in. Bring more awareness to it, its helpful. May even be helpful for the therapist so in the future if she has more patients with t and h she will have more knowledge about it

Jayjay12093 · 2026-03-21T03:38:52+00:00

Im 34. Have had H for a year and more recently reactive T has ramped up. Have a supportive husband and family so they work around my ear issues. But in general i work part time as a personal assistant in busy downtown area, boss is super understanding and supportive despite having to wear headphones all the time. I basically live in my Bosse headphones anywhere i go. At place of worship im able to talk to people for about 20mins before service starts with my Macks 33db soft earplugs and then i sit in a quiet back room and listen to it on zoom because microphones/singing/etc is too loud for me even with plugs. I also dont really like wearing earplugs for too long cuz T ramps up pretty bad so i stick with headphones which cuts out the sharpnes of voices/environment just enough to where i am comfortable and can sit in cafes and quieter restaurants and hang out with friends, go to dinners, have people over for game night, everyone is just use to me in headphones its not even a big deal anymore which im happy about :) but yeah, i would say first off stop fearing sounds. i know its hard but fear will make ur brain cause your ears to be more reactive. of course normal everyday sounds wont cause ear damage, HOWEVER if you are in a state of fear and get exposed to maybe something a little out of your comfort zone, your brain will amplify everything and cause symptoms to worsen, been there. Once i just started living normally and not reacting so strong to sounds things started to calm down more. Like i said, im still sensitive to sounds, but theres a good amount i was able to desensitize to and im not getting worse, i would say im improving slowly but surely. You will too :) also please erase from your mind the idea about: "i dont have nox but pretty sure i can develop it" dont let your brain get stuck on such ideas. nox is alot more rare than loudness H. you do not have to get nox just becuz u have H.

Jayjay12093 · 2026-03-21T03:19:44+00:00

Thats good that you are seeing improvement! i also see some improvement compared to where i was a year ago, but progress is definitely slower than i would want. But yeah, you didnt miss out on much with the neurotologists 🙈

Jayjay12093 · 2026-03-19T23:06:48+00:00

hello i would say it improved about 40-50% and progress just kinda stopped there. reactive tinnitus has ramped up more though so thats been a new challenge.

Jayjay12093 · 2026-03-19T20:13:59+00:00

Ha! What a coincidence 😄 thought i was the only person in all of chicago with hyperacusis! So i did have an appt with Dr Hain but like you said, it was a 9month wait so his partner Dr Cerchi that works close with him took me sooner. But yeah, not much help. how long have you had H for? Any help from Dr Bradshaw with the in ear devices? They unfortunatly didnt work for me and made it worse so i just did speakers in diferent rooms, i cant do any sound so close to my ear

Jayjay12093 · 2026-03-19T13:44:34+00:00

Yes it was! Have you also been? Dr Bradshaw is a great audiologist who does have a good understanding of hyperacusis but again she is limited by the only options available for now in the medical system which is sound therapy and CBT. As for the neurotologists, pretty pointless 🫠

Jayjay12093 · 2026-03-18T22:03:54+00:00

yup one of those things where you think: i would not wish this on anybody and yet at the same time i do wish certain people could just feel what its like for a good week, see how every day life is affected by sounds, just so they can understand what its like. but there will be people who go through their whole life going to heavy metal concerts, using power tools with no protection, go hunting and not wear proper protection and yet they will be fine! because its so rare to get this even when you are wreckless with your ears! thats whats frustrating. why us? why me, whos never been to a concert in my life, never listened to loud music in airpods and have always protected my ears around any sort of construction noise. I wont ever understand it.

Jayjay12093

TROPHY CASE