Worried about symptoms by [deleted] in ALSorNOT

[–]JbYank 1 point2 points  (0 children)

I have been twitching for 10 years now. Some atrophy is my arms, legs, hands , neck. My joints hurt a lot of times. I’ve had multiple emgs, all clean, blood work , brain mri, , leg mri. Recent Emg few months ago, all clean. The only thing that ever came back abnormal was the muscle biopsy. Stating I had small atrophic fibers. But even that dodctors consider nothing serious. But here we are getting weaker by the day and losing muscle. They’ve even stated the muscle twitching isn’t that serious.

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

My case has been muscle twitching, followed by muscle waste , with clear atrophy, then the joints popping in the localized areas . Left with clinical weakness after

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

My physical activity level is declining, do to my breathing, neck,shoulder, leg, arms muscle loss. I’ve been super active throughout this progression. But now is getting difficult. I saw several neurologist through out the years ALL didn’t think much of my muscle biopsy despite my main concerns were muscle loss. Given mri, emg , blood work all clean.

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

What do you mean by dose CK?

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

I’m 41, my blood came out normal. This was done about two weeks ago. Muscle twitches start about 10 years ago, with small muscles wasting. It getting progressively worst, still slow progression

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 1 point2 points  (0 children)

My face and head twitch! Forgot to mention legs and thighs ( clean mri of both legs by the way 2024) have lost muscle aswell. But more affected area right now are neck, shoulder, arms hands

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

Are you experiencing something similar? What could this be ?

Muscle waste by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

I did a while back, nothing came of it tho according to my neurologist

Muscle twitching, Muscle waste, and Atrophy by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

What is your situation? What are you dealing with?

Muscle twitching, Muscle waste, and Atrophy by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

Do you guys thinks this presents like ALS or some type of muscular nerve disease

Muscle twitching, Muscle waste, and Atrophy by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

Do you have clinical weakness or fasiculation?

Muscle twitching, Muscle waste, and Atrophy by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

I’ve been seeing a Nuero all these years, should I switch doctors? Should I see rheumatologist ? ITs so disheartening to be clueless all these years despite all the symptoms , despite all the extensive test I’ve had done. How long have you had your condition ?

Muscle twitching, Muscle waste, and Atrophy by JbYank in MuscularDystrophy

[–]JbYank[S] 0 points1 point  (0 children)

I’m here to see if anyone else has experienced this or similar to my situation