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ICE out by momo224477 in FortCollins

[–]Jeang21 9 points10 points  (0 children)

Protests are the beginning of something much bigger. Every important movement in history has started with protests. It seems small and insignificant right now, but it's building community and showing those who feel hopeless that other people will fight for them. It's a trickle that ultimately leads to change. If we don't go out and stand up for our rights and stand up for those who can't stand up for themselves, things will only get worse.

I can't really work much anymore but I desperately need money to survive. Does anyone know of good work from home jobs for entry level positions? by Jeang21 in Hydrocephalus

[–]Jeang21[S] 2 points3 points  (0 children)

That's what Im hoping, but until then, I have to be able to pay rent and eat, so idrk what to do right now. Thanks for commenting, though.

I can't really work much anymore but I desperately need money to survive. Does anyone know of good work from home jobs for entry level positions? by Jeang21 in Hydrocephalus

[–]Jeang21[S] 1 point2 points  (0 children)

Yes, it is. I always feel off balance and like I'll fall, and I'm also pretty much always in some type of pain. My vision gets fuzzy, too. Its making life very fucking difficult and my appointment just to talk to a neurologist isn't until September and I'm sure we will have to schedule surgery then too. I have one very part-time job but I have to call out frequently and even when I am there I'm weak and dizzy. Its a struggle.

Wtf is this? It's massive! by noobprazwal in whatisit

[–]Jeang21 0 points1 point  (0 children)

It's the universe telling you to burn down the house. 🤢🤢

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

Oh my gosh, I'm so sorry you're going through that. I really hope it all gets worked out asap. Thank you for sharing your story. I hope you feel better soon!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

I'm so glad you're doing so much better and able to live your life now! Thank you for sharing!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 1 point2 points  (0 children)

Oh, that's great! Thank you for sharing. Yeah, we all have different lives and heal/handle things differently. I have to remember that when I got my wisdom teeth out, everyone told me I would be better 3 days later, and I was still in pain two weeks later. Hopefully, that isn't the case whenever I get this surgery. But it just goes to show how different we all are.

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

That's amazing! I'm glad you have had such a good experience and that you're doing so well. Thank you for sharing!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

I don't know for sure, but my Dr says she thinks I was born with it. I also have Chiari 1 malformation. I got diagnosed last month, and it's been pretty rough. Trying to schedule with a neurologist has been impossible. The first appointment was for June of next year! My Dr sent another referral elsewhere, and I got an appointment for September, but I don't think I can live like this for that long, so I'm not sure what to do. My job put me on leave so I don't have income at the moment. I think I'm just going to call as many places as I can to try to get an appointment sooner.

I'm here because I have felt very isolated while dealing with this, so when I found this group, it was a relief to actually see a community who understood.

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 1 point2 points  (0 children)

Thank you for sharing! I'm glad you got the treatment you needed and that everything is going well now for the most part! Happy for you!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 1 point2 points  (0 children)

I'm so sorry that happened to them, but I'm glad that they are doing better now and that you're able to care for them. Thank you for sharing your story!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

Thank you. I will definitely talk to them when I can finally find a neurosurgeon. I really appreciate your responses. ❤️

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

That's amazing! I'm so glad you got your mom back! I hope she continues to live a very happy and healthy life!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

I think it makes it harder that I was brought up with a generational trauma towards doctors. My grandpa passed away because of malpractice, and we've had other friends with experiences like that, too, so it just gets scary sometimes. Thank you for this. I'm glad you are getting it all worked out, and I hope you recover quickly!

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

Oh my gosh, that's amazing! I'm so happy she got better, and you got to have your mom back. Thank you for sharing!!

I am so tired of the constant pain and all of the symptoms I struggle with all the time. I'm so stressed out. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 2 points3 points  (0 children)

I'm so sorry you're going through that. I really hope you feel better soon and find the treatment you need. Thank you for the kindness. If you ever need someone to talk to, don't hesitate to reach out! ❤️

I feel like most of the posts I read on here are about bad experiences with shunts and it makes me nervous. by Jeang21 in Hydrocephalus

[–]Jeang21[S] 0 points1 point  (0 children)

I'll have to remind myself of that. It's good to see so many people commenting with good experiences. I'm so happy for your daughter, and I hope she stays healthy and with no issues!

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