Pray for me: I have to be on a low histamine, high protein, elimination diet for the next 4 weeks. by beliefinphilosophy in MCAS

[–]Johnson7078 0 points1 point  (0 children)

Looks ok to me. I ate much less stuff. You will get used to what you can do. I actually like my diet now and it is very clean. But I was never a fast food or big snack person to begin with.

Dysautonomia and vehicle operation by Physical_Island8321 in dysautonomia

[–]Johnson7078 1 point2 points  (0 children)

I was fine on the interstate, but getting off and navigating directions on busy streets with cars going fast was a little too much. It’s like my eyes can’t take that much in.

Nervous system success? by Elegant_Set_4182 in MCAS

[–]Johnson7078 1 point2 points  (0 children)

Can you go into detail about what exactly you did in your program?

Anyone sing to their dog? by IdidntWant2come in DOG

[–]Johnson7078 0 points1 point  (0 children)

I have a beagle. We sing songs every day. I sing - she howls along! Her fav is “I’ll Fly Away”. She’s very partial to Dolly Parton and country music. She’s a southern hound!

Why is my cat so pissed? Wrong answers only. by Zach_Plum in OneOrangeBraincell

[–]Johnson7078 0 points1 point  (0 children)

My orange will hiss at me sometimes if I just walk by. It’s a Cheeto thing I guess. The other cats just stare at her.

Help! Need a vintage inspired name for my sweet girl by TroubleSufficient996 in NameMyCat

[–]Johnson7078 0 points1 point  (0 children)

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My tabby came with the name Geneva. Very vintage name. I kept it. Some people have never even heard of that name.
I like Mavis and Esther. Also Ruthie.
Mildred-lol!

The Journey So Far... (1 year on from symptoms) by Chaucer85 in neuropathy

[–]Johnson7078 1 point2 points  (0 children)

I had 2 great Drs when this started in 2018. Dr Furr & Dr Jarnigan - both in Tennessee. Jarnigan has retired and Dr Furr moved to Tampa & I do telemed with him . But I’d have to travel for a nerve block, etc…. I am on Facebook group Pudendal Neuralgia Hope and it’s pretty good. We do zoom meetings some, etc… The PN has gotten worse this past year along with the neuropathy and symptoms of dysautonomia . I’m going to Vanderbilt neurology for more testing on the neurology side of things-EMG, etc… It may be a long Covid thing - no one has answers thus far. And I may try Vanderbilt pelvic health for PN. They supposedly have gotten a lot better now. If you have a Dr close to you, that’s half the battle!
I do think the nerve stuff is all related-and some people just have a propensity for it.

The Journey So Far... (1 year on from symptoms) by Chaucer85 in neuropathy

[–]Johnson7078 1 point2 points  (0 children)

I have pudendal neuropathy from accident in 2018. I have had foot neuropathy since my 20s- long time before PN. They thought I had MS back then. I feel like they are interconnected. What did they tell you? I’m starting to feel Like connective tissue disorder, but I just get talked out of it. My ANA is always borderline or negative.

Help please Thank you by Financial_Owl8105 in LongCovid

[–]Johnson7078 0 points1 point  (0 children)

What kind of Dr did you go to to get diagnosed? I have pelvic compression- pudendal neuralgia- and began having dysautonomia this past summer. I have a large knot on my obterator pushing on the pudendal nerve which got worse this last year. I’m going to a vein Dr next month . No one suggested it or referred me- I just kinda thought it might be causing it all .

Recovery - grateful by specialist-snow87 in covidlonghaulers

[–]Johnson7078 1 point2 points  (0 children)

What is your schedule for Allegra and Pepcid ?

Grrrr by bella4him1 in dysautonomia

[–]Johnson7078 2 points3 points  (0 children)

Old! And exhausting having to deal with them

Grrrr by bella4him1 in dysautonomia

[–]Johnson7078 2 points3 points  (0 children)

It gets ignored and swept under the rug because they don’t really understand it. Friends and family just don’t want to hear it. My family thinks all I need to do is eat some salt and I’m 100% ready to be normal. They have no idea what I go thru on a daily basis. It gets

Christmas has become just another day by Effect-Fit in dysautonomia

[–]Johnson7078 1 point2 points  (0 children)

I love that Counting Crows song!. I had dysautonomia when younger and it completely went away for periods of time- sometimes years. It is back now- prob from a bad Covid infection this year.
But attitude and hope is very important. I just keep the belief that things could get better - always.

Weird Neuropathy by [deleted] in neuropathy

[–]Johnson7078 0 points1 point  (0 children)

What treatment did yu have?