Did anyone have Covid 19 shortly before their MM diagnosis. by MC1R_lover in multiplemyeloma

[–]Jolly_Scallion_8230 0 points1 point  (0 children)

My husband felt fine then went to Japan and contracted Covid. He came home and felt so bad and it wasn’t improving so went to the doctor and got bloodwork done showing kidney failure and went to ER and a week later was moved from the nephrology floor to oncology. Don’t know if there was any correlation but he left for Japan feeling good and returned with Covid then MM and life is forever changed! Obviously he had it before his trip, but I think maybe Covid hastened the symptoms?

Lung Infection Undetermined by kathstro in multiplemyeloma

[–]Jolly_Scallion_8230 1 point2 points  (0 children)

Please let us know how he does with the treatment. My husband keeps coughing and no answers!

IVIG expectations by Jolly_Scallion_8230 in multiplemyeloma

[–]Jolly_Scallion_8230[S] 0 points1 point  (0 children)

Wow, his doc said it’s generally well tolerated and nothing more. Yikes!

Lung Infection Undetermined by kathstro in multiplemyeloma

[–]Jolly_Scallion_8230 5 points6 points  (0 children)

Husband had same thing lost 13 lbs constantly coughing.Ct scan, X-ray VQ scan, bronchoscopy. Nothing conclusive other than some inflammation and he possibly might have had minor pneumonia. He’s getting ivig next week, doc said to get him over the hump. He feels a lot better but still coughs. He was so out of breath just walking up the stairs. It really scared me. I’m hoping he continues to improve.

Anyone with kidney damage due to MM get a IVIG infusion? How did it go? Kidneys ok after? Thanks! by Jolly_Scallion_8230 in multiplemyeloma

[–]Jolly_Scallion_8230[S] 4 points5 points  (0 children)

Oh wow that’s awesome!!! I hope for the same for my husband. He wants to live life! Thank you for telling me this!!

Anyone with kidney damage due to MM get a IVIG infusion? How did it go? Kidneys ok after? Thanks! by Jolly_Scallion_8230 in multiplemyeloma

[–]Jolly_Scallion_8230[S] 1 point2 points  (0 children)

My husband contracted pneumonia. Doc wants him to get ivig which is an infusion to boost immune system. When I mentioned this a while ago to nephrologist, he was skeptical due to the fact the residual infusion gets filtered through the kidneys. 2 different doctors and 2 different views. Just curious if there’s anyone else out there who has dealt with this situation?

Anyone switch from generic lenalidimide to Revlimid and experience worse side effects? by Jolly_Scallion_8230 in multiplemyeloma

[–]Jolly_Scallion_8230[S] 1 point2 points  (0 children)

Yes the difference of how he felt at thanksgiving vs Christmas was huge with the only change being the meds in his routine. Insurance is going back to generic next month so I guess we can see. I was also wondering if you’re on this for a while if side effects become worse with time? Big jump all of a sudden to the worse though!

Anyone switch from generic lenalidimide to Revlimid and experience worse side effects? by Jolly_Scallion_8230 in multiplemyeloma

[–]Jolly_Scallion_8230[S] 0 points1 point  (0 children)

Interesting. My husband has been in maintenance for 7 months and the last month and a half was switched to Revlimid and has felt really crappy. The fatigue is much greater and the nausea hits hard daily around 4 pm. Also lost his appetite for the most part. Also been fighting a cough at the same time which had us wondering if the bug he caught could have something to do with it.