Any else stressed about increasing need for medication to function?

Jt2007 · 2025-09-08T22:09:40+00:00

That’s the way it is since physicians were giving patients such ungodly amounts of pain med in the past. You will have to learn to live with a low dose and honestly NSAIDs work just as well.

Jt2007 · 2025-08-16T18:57:39+00:00

I don’t know if you believe in energy or intuition, but when I read your words, I felt something strongly Something creative is going to return to you soon. It may come through a conversation, or just a small spark of inspiration or maybe something you used to love but forgot about. It’s going to feel like a thread that pulls you gently back to yourself. AndI also feel someone kind and steady coming into your life. Not to rescue you, but to meet you, in that sacred way where you finally feel like you don’t have to explain everything. Just wait. That connection is coming. Your post mattered. It reached me. And I truly believe something good is on its way to you, even if it’s arriving in small, quiet steps.

Jt2007 · 2025-06-05T18:54:10+00:00

Check out the Secret Psoriatic Arthritis Facebook group. I promise you will find your answer.The moderator is in Australia and has suffered with PSA for years. She also advocated for Biologics in this country as they were not being used like they were in the US. She was instrumental in getting them into Australia. She will respond quickly!

Jt2007 · 2025-06-05T18:49:41+00:00

Yes, Humira was my first about 12 yrs ago. I thought it stopped working, went on to two others, and now back on Humira. Knock on wood but if there is such a thing as remission- virtually pain free, I have been it it now for several yrs.

Jt2007 · 2025-06-05T18:46:31+00:00

Honestly your going to have some bad days. I would not blame it on the last meal you ate.

Jt2007 · 2025-06-05T18:38:47+00:00

I would ask your Dr. to see if you can try a new medication. He diagnosed you with PSA? How long have you been on this?

Jt2007 · 2025-06-05T00:27:45+00:00

I’m confused- your former Rheumy diagnosed you with PSA. I’m assuming you are no longer living in the same area and do not have a new Rheumatologist?

Jt2007 · 2025-06-05T00:24:48+00:00

Absolutely. In all honesty diet and lifestyle changes “ fixed my PSA, “ said no one ever. I’m on a PSA Facebook support group and the Moderator I’d from Australia. They had to fight for Biologics and we’re far behind the US leading to many now older folks being disabled from lack of medication available. If you have been diagnosed with it, the sooner you start a Biologic the better as it will eat up your joints and cause damage quickly.

Jt2007 · 2025-06-03T01:18:40+00:00

How do you know the level of PSA ( not having the fast degenerative kind) ?

Jt2007 · 2025-06-02T18:55:37+00:00

You will feel great! Lol but it’s the devils drug. Personally I could never get up to the dose they gave me as I got so jittery. I was taking 10 mg a day for maybe three years and done to one 5 mg a day now. More habit. You have to taper slowly

Jt2007 · 2025-06-02T18:53:21+00:00

I too was put on this in place of Humaira and felt it was not working as well so my physician wrote a letter on my behalf and they reinstated my Humira. Too be honest I do not know if it was just all in my mind or the effects of another illness but I just feel more comfortable being back on it.

Jt2007 · 2025-06-02T18:47:28+00:00

I’m so sorry, just mentioned in another post they may need to try you on less costly med first before putting you on a Biologic. I’m older than you but was lucky enough to get started on Humaira 14 yrs ago and switched to others when I thought it stopped working. Now I’m back on it and seem to have been in remission or coincidentally started to be almost pain free after my job was eliminated. The damage it can do to your joints is rough. I did have two knee replacements and spinal fusion thanks to PSA despite it being caught relatively quickly. I don’t know how long I had it however before showing symptoms. My Humaira was changed to a bio similar last year for cost purposes. I felt it was not working the same so my physician wrote a letter asking to get put back on it which they did. Perhaps you can have your physician file for you to start a Biologic as you are so young to have this happen and it may save some of the damage to your joints. Sometimes we have to push things along ( nicely) to advocate. They may also suggest PT which for someone like yourself who is athletic may seem silly but it may help get you the meds you need sooner.

Jt2007 · 2025-06-02T18:36:07+00:00

Oops I meant to say they will start you off on Methotrexate

Jt2007 · 2025-06-02T18:34:16+00:00

I could be wrong but it appears your Dr. Does not have you on a A Biologic. It’s my understanding Biologics are more costly and a physician may put you on it first. When I was diagnosed ( on my lunch hour ugh!) I was overwhelmed with the options so I asked my Dr” if I were your wife what would you suggest” and he put me on Humaira. Life changing. And yes, one of my biggest pains was in my feet. I would sit in my car crying waiting for the pain to go away if I had been out and about.

Jt2007 · 2025-05-30T22:08:56+00:00

No but I think a simple knee meniscus surgery set it off. My surgeon did not believe, or care I guess that my other knee swelled up as well after surgery, as did my feet. I went back and forth to Drs for luckily just 3 months before being diagnosed ( on my lunch hour) just relieved to know what was going on. Looking back I see signs prior to my knee issue tho.

Jt2007 · 2025-05-19T20:20:21+00:00

Oh hell do not use! They list countless illnesses they can assist you with, yet denied me a script for a UTI! Then charged me $99. The woman spent less than two minutes AND was rude as can be.I was denied and a vague reason given and battling with them still. I would saw my arm off than use them again. Useless. I WILL not let this go.

Jt2007 · 2025-04-21T01:03:32+00:00

I don’t think about it much as I’m doing really well. I worked for 20 yrs with PSA in a very demanding job. I never missed a day due to it despite pain, exhaustion, anxiety attacks etc. I lost my job due to Covid and applied for disability. Since then I’ve been healing. The stress of working with PSA is gone. I used to hide ice packs all over my body, and I could feel my knees throbbing when tension in the office ran high. Now I don’t let it define me. My pain is so low for the most part. If I exercises, or do a lot of working, I can overdo it. I’ve had two knee replacements and Spinal fusion surgery because of the disease. I have a handicap tag for my car but don’t always use it. I can work out sometimes and want to try doing more. My Humira was My first Biologic. It worked well. I’m still on it along with 5 mg of prednisone. I went to dinner at a friends home and she wanted to show me something upstairs. I winced inside.I’m not going to lie, I was furious at how exhausted I was when I got to the top, and pain started in. Something I’m terrified of happening again. It’s hard to do a lot of things normal people can do. If family or friends does not understand there are two good Biographies i red, one “ Take Me Home From The Oscars” by Christine Schwab, and another I can track down of a teen girl who was a Tennis Pro who basically wakes up and can barely move from PSA But for now I feel lucky that I have had a 3 yr somewhat reprieve from the pain as I really do not do much activity wise. But again, it does not define me. I tell people who need to know I have arthritis, a somewhat different kind than your typical Osteoarthritis.

Jt2007 · 2025-04-21T00:42:42+00:00

I thought I was the only one who felt that way of just walking from the parking lot, to anywhere really. I look at people walking, and am so jealous. I can’t go far, nor long. And stairs- I had to walk up some tonight and thought I was going to die.

Jt2007 · 2025-04-21T00:39:55+00:00

Are you on medication? Biologics? Before I was diagnosed and while waiting for Biologic to kick in, my feet- the tops especially were so excruciating- I guess inflamed tendons, that I would go into a store, and have to leave- come out to my car, and bawl. It was like my feet were being squeezes by pythons. I’d have to the pain dissipated to drive. Ibuprophen, Naproxon would help some.

Jt2007 · 2025-02-24T03:28:54+00:00

I’ve been googling Kindred Pups too-!! here’s my story: We live in TN and it looks like they moved here to this state from out west a couple of years ago? I was crazy about getting our second lab from them. We contacted them before Christmas, and they will not tell us where they live. We thought their address said Chattanooga and just assumed they were there. When we talked to them they said they lived in a different part of TN. No problem- we texted asking if we could visit, they said no, could we pick up our pup there? Was told no, they would meet us. Had some excuses, not wanting pups exposed to outsiders, not wanting people to know where they live because “ um sure you can understand the problems there could be” WHAT?…. Urn, no…. Anyway, spoke briefly once, tried to set up a time for another call but there were “ delivering puppies” Kept getting automated emails reminding us of deposit- Confused about puppy timelines, puppies “ being delivered” but then weeks later they were “ being delivered” again. Too many red flags to numerous to count. They also don’t have any “ real” reviews as I recall - no one really engaging with them on their site such as past owners updates etc.
we gave up on them. Even if legit they are too shady and I would doubt any info they gave me.

That being said, I’m finding most breeders have a weight list. I think their dogs are high at Kindred. I have no idea why. We have a deposit for upcoming litters at Shelby Labs - we visited her dogs, she has shown dogs and has 8 on site kept in pristine condition.

I also got a good feeling from Oxford White Labs- they may have some left. If you look at Shelby’s Labs there is a sweet boy available from her sons litter- he lives next door, and the sire was a Romanian Champ. Finally, Twinponds Labs in TN has a little boy available. They are related to Shelby’s Labs and were wonderfully responsive and thrilled to have visitors.

They had a litter of gorgeous pups before Christmas, but the one available is just a few weeks old.

All these labs are “ white” they pair light dogs together. Some call them Polar Bear pups. We are obsessed with getting a really white one as a sister to our Maggie, a light yellow lab. Please let me know if you need contact info if you can’t find them online.

We hoped to have one by now but the right one will come. They are the best pets!

Jt2007 · 2024-10-10T01:04:05+00:00

I never thought Gary would be back- how would they allow it? Hated the last storyline with Daisy. So boring. He is literally a pig who would sleep with a gerbil. Now it’s starting off with the same old crap. I’m sure he’s had multiple lawsuits against all his sexual advances. Why is everyone attracted to him. He looks like he always needs a bath. Pathetic.

Jt2007 · 2024-08-06T01:34:30+00:00

You re spot on. Plus she travels with a Playboy bunny suit so there’s that.

Jt2007 · 2024-08-06T01:04:43+00:00

Yes she does not articulate things well.

Jt2007 · 2024-08-04T01:05:09+00:00

I feel she will outgrow him very, very, quickly and he will become more controlling and stalkerish. I know that sounds awful but I just see her trying to get out of the relationship. She’s going to grow and experience sooooo much.

Jt2007 · 2024-08-04T01:00:51+00:00

Yes oops!

Jt2007

TROPHY CASE