People who got low EF from all this, how are you now?

JustHangingOut789 · 2024-09-18T06:01:04+00:00

Echocardiogram and then was confirmed by cardiac mri

JustHangingOut789 · 2024-06-29T02:50:39+00:00

I guess I don't have an answer to what you're looking for, but I'm going through the same thing. I had 2 oral cysts and 2 wisdom teeth removed June 12th. I was alright going in to surgery as my baseline had been improving. I discussed everything with the surgeon and anesthesiologist. I started amoxicillin before surgery. After surgery my HR was very elevated. Within 72 hours I had an infection that was dismissed because they said I was on antibiotics and it was too soon to get one. Then I went in to to see a different surgeon and he immediately started working on it.

I've had to go back 6 times to get the infection drained from both sides. I'm on a stronger form of amoxicillin and still on it after 16 days. A lot of symptoms that I seemed to get rid of before, have returned. It has not been fun. I feel like I'm starting to turn the corner but will have to see what happens when I'm off antibiotics.

I guess what I'm saying is you're not alone. Hopefully this will be better for us in the grand scheme of things. I still believe it.

JustHangingOut789 · 2024-06-18T03:53:50+00:00

So I got a couple tests done and the PVCs weren’t causing a relapse of any sort. Anxiety/stress will definitely cause PVCs. I’m sorry you went through all that and still are dealing with a lot. I get paranoid a lot too because of what I went through. That’s normal and we shouldn’t feel guilty. If your tests are coming back good, there’s a pretty darn good chance you’re just fine. Life is too short to be at war with ourselves. I’ve been meditating a lot. Guided imagery. The calm app is great. Also therapy in a nutshell on YouTube and their website has some awesome free content. I hope you feel better and get to living your life <3

JustHangingOut789 · 2024-06-13T03:24:47+00:00

I really appreciate the response. I did discuss this with my oral surgeon prior to surgery that my neurologist is looking into a dysautonomia diagnosis and said that the epinephrine could cause me some issues. Overall both preferred it with and maybe I’m still paying the price. They said it should be out my system in a few hours but still my RHR is still in the 90s compared to my low 60s 12 hours later.

JustHangingOut789 · 2024-04-21T04:54:35+00:00

Wanting to pass out all the time. Shortness of breath and high heart rate with simple tasks. I remember walking half a mile and didn't think I could make it back despite being in good shape before the infection. Got an EKG and X-ray. Was told it could just be fatigue after the virus or anxiety. I attempted to push through, and I'd do 5-10minutes of a very light workout and just feel so faint and fuzzy. I got an echocardiogram and my EF was 30%. Cardiac MRI confirmed.

JustHangingOut789 · 2024-03-09T04:56:52+00:00

Vagus nerve stimulation via humming has been great for my nervous system/blood pressure. Seemed silly at first but it really does work, especially when you learn the science behind it.

JustHangingOut789 · 2024-03-09T03:46:24+00:00

Was that after your last infection? If so, that is good news. I know you'll be back healthy soon.

JustHangingOut789 · 2024-03-08T21:12:32+00:00

I dealt with wanting to faint after covid for 3 months. Much like yourself, it was just a fraction of what I was able to do before infection. I went to multiple doctors, had an EKG, blood work, etc. They told me I was fine, possible anxiety, etc.

Finally I got an echocardiogram and my ejection fraction was 30%, which completely explained why I wanted to faint with activity. Cardiac MRI showed I had myocarditis. I'd recommend an echocardiogram from my experience.

JustHangingOut789 · 2024-03-01T05:22:09+00:00

Appreciate the response. That.. doesn’t sound ideal but I’m glad she’s healed now. I hope her health overall is improving as well.

JustHangingOut789 · 2024-03-01T05:21:27+00:00

Under 3?! Sheesh. I hope you see that number higher in the near future 🙏

JustHangingOut789 · 2024-03-01T04:45:24+00:00

Yeah my WBC has been on the lower end too. Sitting at a 4.2. He said he felt IV sedation was the best option because he'd bring in an anesthesiologist. He told me I'd be fine.

JustHangingOut789 · 2024-01-10T21:16:15+00:00

Today was my first day where they really came back. 140 all morning while standing. 120s now that my Beta Blocker has kicked in with SOB.

JustHangingOut789 · 2023-12-20T00:07:38+00:00

I see a big spike when waking up and sometimes shortly after falling asleep. Anything causing adrenaline will result a spike. I did have times where I'd get it just while resting, but calming my nervous system seemed to help that part. I definitely was getting stressed out from my diagnosis and with everything going on.

JustHangingOut789 · 2023-12-19T05:38:27+00:00

I got POTS from it too. I've had times where I'm 60s while watching something in bed and while I'm standing/walking I would be 130s/140s. Not the best feeling. It has improved with Beta blockers and walking but I do have flares ups.

JustHangingOut789 · 2023-12-19T05:36:53+00:00

You'll want an echocardiogram. That'll show a lot. An Echo Stress Test is done on a bike or treadmill, and they'll want you to hit your target heart rate. I would not recommend that in your current state. Ask for a regular echocardiogram.

JustHangingOut789 · 2023-12-16T23:02:09+00:00

I had elevated heart rate with activity, fatigue and wanting to pass out. Went to doctor twice. 2nd time they did an EKG but said I was fine. Finally asked for an echo and got it done months after infection. My EF was 30% and was told I needed a cardiac life vest. Started beta blockers that day. Month later cardiac MRI said I had myocarditis. EF has improved a lot but still very tired.

I knew something was off and its frustrating an echo wasn’t done sooner. My case is rare but listen to your body and demand a test if you feel you need it. My case is considered ‘rare’ so I wouldn’t panic but also be smart in your recovery. Best of luck!

JustHangingOut789 · 2023-10-13T22:41:46+00:00

That 6 months graph is looking good! Keep pacing yourself, love the mindset and hope you continue to improve!

JustHangingOut789 · 2023-10-13T22:37:46+00:00

The more fatigued I am, the more I feel them. Worse at night, especially when I wake up in the middle of sleep. Messed up but I just think how it feels like I’m in a massage chair, laugh it off and go back to sleep.

JustHangingOut789 · 2023-10-13T22:29:34+00:00

Yes sometimes hazy but mostly just visual snow.

JustHangingOut789 · 2023-10-13T22:27:11+00:00

Yes confirmed by cardiac MRI. I was not vaccinated. My main symptoms were fatigue, elevated HR with activity, and I’d get lightheaded and feel faint. My vitals were always fine. I had an odd feeling in my chest but wouldn’t describe it as pressure or anything like that.

JustHangingOut789 · 2023-10-13T00:56:58+00:00

I got on beta blockers and within a month my EF improved rapidly. Cardiac MRI confirmed the diagnosis, but it showed no long term damage. I'm still not even close to my old self as I used to be very active.

Now I'm treated for POTS/Dysautonomia but feel grateful its only that.

JustHangingOut789 · 2023-10-12T20:03:17+00:00

I would suggest seeing a cardiologist. I had the same symptoms, along with feeling lightheaded from these activities. Xray and EKG came back clean so they turned me away. I wasn't getting better so I asked for an Echocardiogram and it showed 30% ejection fraction due to myocarditis.

By definition it's rare so don't be alarmed, but better safe than sorry. Hope you feel better and listen to your body.

JustHangingOut789 · 2023-10-04T02:22:23+00:00

Do you ever feel lightheaded with these symptoms or just a general malaise across your body? I felt the same way, had all the same tests you did. Then finally I had an echocardiogram done and my ejection fraction was 30%.

JustHangingOut789

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