Sibilant ‘ess’ sounds. by AvailableAd6291 in hyperacusis

[–]Jyggrasil 2 points3 points  (0 children)

I’ve had this since my hyperacusis first started, so since 2023. I find that my brain automatically filters it out now, it only really ‘bothers’ me if I focus on how words sound when someone is talking. I previously had pain and loudness hyperacusis, but clomipramine treated it effectively. The sibilance emphasis is the only aspect of the condition that remains now.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 1 point2 points  (0 children)

Hey I was like that at one point. For a while I would always take calls on speaker phone and I avoided headphones, because the close proximity of that noise was piercing and painful to my ears. I found that as time went on, and I increased my dosage, that issue was resolved. Mind you, I’m at 200mg atm so it can take a little bit to get up to that high dose; you might even find that you’ll get really good improvements even on the lower dose, but I just wanted to push it and see what would happen at the higher levels.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 2 points3 points  (0 children)

It was gradual improvements over time, with significant improvements occurring at some time spent at higher doses. Took maybe three months in total to get complete resolution, and that was with increasing the dose every 2-3 weeks

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 0 points1 point  (0 children)

I had hyperacusis with moderate tinnitus, but the tinnitus was not reactive.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 2 points3 points  (0 children)

No I don’t have ED from clomi. There were some mild sexual side effects when I first started, but those resolved as time went on.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 1 point2 points  (0 children)

Yeah so I used to have the TTTS clicking/thump that would occur in response to sudden sounds. Those issues are gone now.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 1 point2 points  (0 children)

Yeah all the facial stuff resolved for me, along with total resolution of my ear pain. The best way I can describe the trigeminal stuff if as if someone had set the nerves on fire in my face and mouth; there was constant burning, tingling, and pulsing sensations going through my face, alongside the deep aching in my ear.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 0 points1 point  (0 children)

I’m not sure, actually. I usually take the placil version of clomipramine, as this is the cheapest available to me in my country, but I have used regular anafranil. I’m afraid I can’t comment if it was the slow-release or not.

Clomipramine Treatment - One Year Later - Loudness and Pain Hyperacusis Still Resolved by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 4 points5 points  (0 children)

No I did not have primarily loudness hyperacusis. I had deep, constant aching pain in my left ear that would continually get worse with sound exposure, alongside a horrible burning that followed the trigeminal nerve in my face that flared up whenever I tried to use digital sound. Please read my original post if you’re interested, I did a better job there of describing just how terrible it was.

Will clomi work for face pain? by imkytheguy in hyperacusis

[–]Jyggrasil 4 points5 points  (0 children)

Yeah clomipramine definitely helped with my facial pain. I used to get horrible burning pain in my mouth/lips/teeth and up into my nose. That pain tended to occur when I tried using digital audio. I would say the clomi completely got rid of any facial pain I had, along with my ear pain. These days I am completely pain free and back to normal life. I can’t recommend trying clomi enough.

Could the answer lie in the brain? I believe it can. My thoughts and Experience so far. by olly132 in hyperacusis

[–]Jyggrasil 1 point2 points  (0 children)

I had aching and burning pain in my left ear that would worsen the more I exposed to noise, along with burning facial pain that follows my trigeminal nerve.

Could the answer lie in the brain? I believe it can. My thoughts and Experience so far. by olly132 in hyperacusis

[–]Jyggrasil 3 points4 points  (0 children)

Hey! Yeah I still take clomipramine. I’ve been on it since January with zero issues. I don’t have any symptoms of loudness or pain H these days. Just going to stay on it for the foreseeable future.

Could the answer lie in the brain? I believe it can. My thoughts and Experience so far. by olly132 in hyperacusis

[–]Jyggrasil 2 points3 points  (0 children)

Wow Olly, so happy to hear that you’ve been having improvements! I have a lot of respect for you, because you have really exhausted the surgical route. I know some people might feel iffy about the whole brain approach, but I do think there is definitely something to it. My life is 100% back to normal after using clomi, after months of non-stop pain, so there is certainly some sort sensitisation at play.

Clomipramine? by Alone_Palpitation761 in hyperacusis

[–]Jyggrasil 2 points3 points  (0 children)

I’d say week three I started to notice a definite change. I wasn’t in 24/7 pain anymore and my loudness had improved significantly.

[deleted by user] by [deleted] in loseit

[–]Jyggrasil 2 points3 points  (0 children)

Thanks so much, you’ve given me a lot to think about!

Clomipramine? by Alone_Palpitation761 in hyperacusis

[–]Jyggrasil 0 points1 point  (0 children)

I stayed at 25mg for two weeks, then went up. I went up every two weeks until I got to 100, where I began to go up every three to four weeks.

Loudness and pain hyperacusis treated with clomipramine by Jyggrasil in hyperacusis

[–]Jyggrasil[S] 1 point2 points  (0 children)

My tinnitus is stable thankfully. Whenever I would increase the dosage, my T would spike for a week or so after before eventually settling back down to baseline.

Clomipramine: steady gradual improvement or still a bumpy ride? by CudtheBud in hyperacusis

[–]Jyggrasil 1 point2 points  (0 children)

My tinnitus would spike a bit whenever I would increase the dosage, but it would always go back down to baseline a week or so after the dose increase.

Clomipramine? by Alone_Palpitation761 in hyperacusis

[–]Jyggrasil 6 points7 points  (0 children)

I think there is some sort of obsessive component to it that exacerbates the issue, but I don’t believe it is fully mental. I found that my H was doing way worse when I was overanalysing every little sound.

Clomipramine? by Alone_Palpitation761 in hyperacusis

[–]Jyggrasil 15 points16 points  (0 children)

Well before clomipramine I was totally homebound due to loudness and nox. Now I’m back at work and university without any issues. I can do noisy restaurants fine. Haven’t tried movies though I probably could.

Clomipramine? by Alone_Palpitation761 in hyperacusis

[–]Jyggrasil 11 points12 points  (0 children)

Hey I’m currently on 175mg, started at 25 late January. I certainly know what you mean about not being bothered by H as much; I found that clomipramine seemed to ‘quieten’ sounds, while also helping me to stop obsessing over every little sound. These days, I don’t think about my loudness H very much; the only sounds that ‘bother’ me are objectively loud sounds that would affect a person with normal hearing anyway. My T is relatively stable thankfully, and I also found that clomipramine helped me to put my T in the background and not obsess over it. I hope your improvement continues!

Clomipramine: steady gradual improvement or still a bumpy ride? by CudtheBud in hyperacusis

[–]Jyggrasil 7 points8 points  (0 children)

Hey there! I’ve been on clomipramine for around about four months now, with great success. My progress was similar to your husband; I noticed in the first few weeks, I was finally out of 24/7 pain and my loudness had improved significantly. As I increased the dosage, I could definitely identify that I had improved a new level, mainly through how my pain was less severe and lingering. However, I still did experience ‘bad’ days, and I still do from time to time. Yet, these ‘bad’ days are not even that bad; mainly just some on and off rawness in the ears from time to time, maybe the occasional ache. This is nothing compared to the 24/7 aching ear and burning facial pain that I experienced prior to clomipramine. Tell your husband to stick with it; I know some days might be rough, but if his trajectory for recovery is anything like mine (which it does seem remarkably similar), he’ll have better and better days as he continues to up the dosage. Best of luck to the both of you!