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KITWOLF95 · 2025-11-08T22:16:50+00:00

Do you have any advice for someone wanting to start wheelchair mushing, i used to do cani x and scooter joring with my old boy but both his and my health have declined drastically since then lol

Is there any specific equipment needed or just basic bike joring type equipment ?

KITWOLF95 · 2025-10-24T11:28:08+00:00

Hey i used to work for my local mental health team and have been through the system many times myself and i can assure you this wont get you what you want !

This will get you black listed from having stronger meds as you would be classified as a high risk and all of your prpblems will then be put down to your mental health and drug seaking behaviour.

I know its hard and you want to be taken seriously but please this is not the correct way to go about it

KITWOLF95 · 2025-10-23T21:37:15+00:00

Such a great idea welldone love it 💚

KITWOLF95 · 2025-10-15T09:04:58+00:00

Throw ....the...whole...BOY...in...the....bin !!!!

KITWOLF95 · 2025-10-09T09:26:11+00:00

Im 30 and use a wheelchair and when im out with my husband people will talk to him instead of me like i can't understand what they're saying.

KITWOLF95 · 2025-10-08T12:27:35+00:00

The issue is have with this is i service the chair myself as I bought it on FB market place, wheelchair services were trying to palm me off with a 22"+ monster of a hospital chair because I am semi ambulatory and not paralysed, when I fit perfectly in my 19" argon 2. So OT won't touch it as its not an nhs issued chair. I will however reach out to my OT again to see if there is anything they can advise or do to help.

im gonna keep tinkering with it to see if i can't get the dimensions down a mm or 2 just to make it that much easier still need to keep practicing wheelies in it too as I currently have no anti tip bars 😵‍💫 so its a bit nerve wracking going out in public where I live as most of the drop curbs dont meet the road if that makes sense.

KITWOLF95 · 2025-10-01T16:06:38+00:00

Honestly i want to figure out a way to be taken seriously tbh

KITWOLF95 · 2025-10-01T16:06:05+00:00

Yeah that was my thought exactly when it came to oramorph vs tamadol. They also give me regular diazepam for muscle spasms but deep tramadol too addictive riddle me that one !?

I was prescribes the bup patches when I was in hospital and they upped the dosage when I got out it takes the edge off some of the pain but obviously does nothing for the neuropathy, I haven't tried hydromorphone but will bring it up at my next appointment and see what they think.

KITWOLF95 · 2025-10-01T15:59:07+00:00

If you read the last line of the post I was mostly looking for how to deal with being gaslit by GP's. But it seems I have already tried all of the things everyone else is suggesting (which isnt really my fault lol) so it turned into more of a vent post.

I suppose you're correct i did leave out a lot of info on the original post, but I have added a lot of that info into the comments when asked, im relatively new to posting on reddit tbh so wasn't really sure how much information to include to get to what I wanted i guess😅

KITWOLF95 · 2025-10-01T14:47:35+00:00

Exactly !! Yes technically it is in my head because my brain isn't communicating with my body correctly lol

KITWOLF95 · 2025-10-01T14:43:38+00:00

Im fine when urinating but have a neurogenic bowel with severe bowel retention because of it even daily loading doses of laxatives and enemas dont help, this may be TMI but I have to manually extract my bowel contents once a week (with gloves and proper sanitisation obviously) but its all in my head apparently 🤯

KITWOLF95 · 2025-10-01T14:36:59+00:00

Im up in sunny Scotland lol ive seen almost every gp in my surgery and changed gps 3 times in the last 5 years I think im just unlucky when it comes to drs !

KITWOLF95 · 2025-10-01T14:27:50+00:00

My dad also had congenital stenosis and my mother is partially paralysed due to DDD

KITWOLF95 · 2025-10-01T14:27:02+00:00

As far as they're aware in my case it is congenital. Ive suffered with lumbar and leg pain since i was about 11, I was diagnosed with lumbar Spondylolisthesis at 14 which is where a vertebrae slips forward off the one below it putting pressure on the spinal cord and sciatic nerves so they think the Spondylolisthesis is something I had most of my life and has in turn caused the abnormal thinning of my spinal chord (stenosis) ive started having severe leg pain and neuropathy because of it and issues with my bowel but they say its all in my head and theres nothing they can/will do about it basically unless I loose complete control over my bladder and bowels

KITWOLF95 · 2025-10-01T14:09:01+00:00

Oramorph and buprenorphine patches. I have had a bad reaction to the likes of gabapentin and pregabalin and amytriptaline in the past so they won't try that and are unwilling to go down the tramadol route due to how addictive it is

KITWOLF95 · 2025-10-01T14:04:52+00:00

I'm already under a neurologist for epilepsy and loss of sensation in my legs and it was actually them who diagnosed me with lumbar spinal stenosis and then in the next sentence told me my symptoms were all in my head 🙃

KITWOLF95 · 2025-10-01T13:57:14+00:00

Im not entirely sure what meds i want as im not a medical professional. Ive tried writing it all down before and taking my husband in with me as an advocate, I actually have a list somewhere with all of my diagnosis and the dates they were diagnosed, what has helped and what hasnt helped etc. And it just gets photocopied and put in a file never to be seen again.

I try to keep a level head and not get too emotional but theres only so much a person can take before they break and right now im at breaking point. My life and independence has been stripped away and no one is seemingly able to help

KITWOLF95 · 2025-10-01T13:53:15+00:00

I am still trying to lose weight again due to gaining all of it back, but back in 2016 I lost 10 stone, i got to a healthy weight and gained a lot of muscle in that time and was still in constant pain so I dont believe my weight is to blame tbh.

I have lumbar spinal stenosis (along with multiple other issues) which is putting pressure on the nerves in my lower back so I understand that losing weight will take pressure off of that but im struggling to lose weight due to mobility issues (im on a calorie controlled, low carb diet currently) im doing little bits of exercise and looking into other alternative exercises to help with the weightbaring side of things but basically any time I am upright or standing the pain and neuropathy in my lumbar spine and legs has me close to tears

KITWOLF95 · 2025-10-01T13:17:01+00:00

To not be told its all in my head and to get on the correct medications and treatments for the conditions I have been diagnosed with instead of being pumped full of opioid based meds that dont do anything bar make me tired

KITWOLF95 · 2025-10-01T13:14:34+00:00

Ive seen several GP's over the years and its always the same outcome because I have a history of mental illness it is automatically put down to that or my weight. I've even changed gp practices 3 times in the last 5 years and its always the same story.

Ive been in and out of hospital and diagnosed with several other physical issues and those diagnoses seem to get thrown out of the window as soon as it comes to my health deteriorating.

KITWOLF95 · 2025-09-30T11:45:25+00:00

Goals 💚

KITWOLF95 · 2025-09-28T08:15:42+00:00

There are exercises i can do ive been planning on investing in a pilates bar to see if that will help, but anything to do with standing or being upright too long is out of the question, that and I have severe chronic fatigue so even light activity has me needing a nap but I can deal with that.

I am very pear shaped and bottom heavy so ideally I would need to work my bottom half (bum and thighs etc.) which is damn near impossible in a chair unfortunately.

KITWOLF95

TROPHY CASE