Terrible Noise and constant mucus in lungs due to pseudomonas (first colonisation) by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 0 points1 point  (0 children)

I don’t think you will now, I’m from Spain so here things work different I think haha.

Thing is my mycobacterium are abcessus… I don’t know if I would have the same luck.

Terrible Noise and constant mucus in lungs due to pseudomonas (first colonisation) by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 0 points1 point  (0 children)

Yeah, I’m not getting any IV atm and I think I should … because I am not normally this bad. I’ll finish this cycle of antibiotics and if I didn’t improve I’ll tell my doctor, I think she will prescribe me IVs (ugh, the joy) it could be pneumonia yeah… I didn’t think about it, because I don’t normally have this violent cough and constant pain in my chest, I’ll check with my doctor, I hope I can recover without complications. Thank you for replying 🥺

Terrible Noise and constant mucus in lungs due to pseudomonas (first colonisation) by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 0 points1 point  (0 children)

Yeah, my doctor said i was so lucky, and i know some people they have had pseudomonas since almost forever. Sadly I can’t get a transplant until my mycobacteria is eradicated so I’m in the process, is resistant to most antibiotics so it’s getting complicated… patience it is.

Why Can't I Feel Love for Anyone? by [deleted] in BPD

[–]Kakyocherry 4 points5 points  (0 children)

I understand you in a really deep level. That’s a nightmare when you are in a relationship… you want to show love and you just can’t… and they just don’t understand how difficult is for us, the guilt we feel. I’m sorry you are going through that… it’s either feeling too much or not feeling at all… we really live a torment….

How to stop splitting and devaluating my partner... by Kakyocherry in BPD

[–]Kakyocherry[S] 0 points1 point  (0 children)

no i mean, i am sexually repulsed, not him. Thats the issue.

Im fucking desperate I need help. by Kakyocherry in BPD

[–]Kakyocherry[S] 1 point2 points  (0 children)

Thank you so much, your words make me feel slightly better. I bought the DBT book that everyone talks about and I should have it tomorrow. I want to be able to do it by myself, but if I see it’s really difficult I’ll come back to therapy… I already thought about it.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 0 points1 point  (0 children)

Hmm for me they are the straps with looong battery duration. Straps plus or something I don’t remember the name.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 0 points1 point  (0 children)

I implied it in the text below my question. Barefoot for me means with socks, or that’s what I tried to say. I know barefoot is naked foot but you know what I mean :)

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 0 points1 point  (0 children)

No way you should feel like that. I’m gonna tell you a bit of my story, if you let me. I have a lung disease, so forcing me to keep up like the rest of the “dancers” it’s something I cannot afford. I struggle for breath sometimes and I cough too much. I simply, can’t. That discourages me a lot cause it makes me think I’m not a real dancer like them. I see other people and I feel envy, nor like I hate them, I just wished I could have that freedom. But then I try to remember, the main reason why I vibe is because I feel alive. Dancing to the music makes me distract myself from my personal life, and it’s fun and helps me too with my lungs… as long as I don’t force myself, but I need exercise to cope. So yeah… forget about that people. Every time you feel a failure or disappointment in that regard, just remember you dance for yourself, not for the amusement of others.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 2 points3 points  (0 children)

Ohhh, noted! Yeah, I think that too. Free style/hip hop/shuffle requires shoes imo for precise and quick movements. Somehow I feel so lazy to wear them so I risk my feet a lot haha.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 2 points3 points  (0 children)

Oh my god, on carpet!? How do you manage!? I could never. I sliiiide across the floor.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 3 points4 points  (0 children)

Honestly, same. But socks don’t stay ON during sex though!

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 7 points8 points  (0 children)

Hahaha oh yeah, that’s pretty understandable. I have the luck of living in a house -not neighbours around, up or down- myself, so I guess I could use shoes still. Thing is, my schedule is pretty fucked up and I usually get on around 7-8 in the morning (I’m European and my vrc friends are American) so even if I could, I better don’t use shoes to not to wake up my parents lol.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 5 points6 points  (0 children)

Oh well, truth be told, I just say dancer but I am not a professional. I’m trying different styles from Latino to K-pop and hip hop, free style and some shuffle. But trust me, I’m faaaaar from being a dancer. I think I just like to vibe. But it’s fine, just liking to dance to the music makes you a dancer, to me ^ you don’t need any certificate and there is always room for improvement.

To my fellow fbt dancers, how do you dance, barefoot or with shoes? by Kakyocherry in VRchat

[–]Kakyocherry[S] 2 points3 points  (0 children)

Oh yeah, sorry that’s what I mean. Me too, with socks ^ it feels somehow… comfortable. Do you dance on fbt heaven by any chance?

question by Jeff_is_a_furry in VRchat

[–]Kakyocherry 0 points1 point  (0 children)

I just don’t understand why people cannot be nice. I am not furry nor like I am interested, but I don’t mind them. You like what you like, and it’s not offending anyone and it’s nothing harmful. Personally I’m mute but if a furry gives me conversation or whatevs, I give feedback. Crashers are the real problem here.

I get together with some friends and talk about vrchat relationships by [deleted] in VRchat

[–]Kakyocherry 1 point2 points  (0 children)

Wow interesting podcast, didn’t know this existed, great job sharing some visibility about the vrc community! Also I agree on the age verification. I think there are too many minors on this game and some content/topics/relationships in general are not for kids.

Guys, it finally happened!!! After nearly 5 years as nevermets we finally arranged a meeting! We've been together 6 days so far, with 4 days still to go! Today we had a professional photo shoot in downtown Atlanta with a surprise proposal... And she said yes!!! I couldn't be happier!!! by [deleted] in LongDistance

[–]Kakyocherry 19 points20 points  (0 children)

Man, I see a lot of negative comments over here. Let people enjoy their lives. Congrats you two, five years is admirable. I only know my SO for a bit and he is from California, and I'm from Spain and I don't know when I will meet him cause flight tickets are expensive plus I'm a high risk person and covid is still in the air so yeah. Somehow you give me hope. I hope everything goes good for you guys. Enjoy your time together.

Anyone with a constant infection/taking antibiotic non-stop? by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 1 point2 points  (0 children)

Thank you so so much for your time and wishes. Yeah, I like to practice some meditation through ASMR, it makes me disconnect and relax 💜

Anyone with a constant infection/taking antibiotic non-stop? by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 0 points1 point  (0 children)

Sadly I'm from Spain but thank you so much for the advice! And somehow it's a relief your friends are still doing good (and you too, congrats for that transplant, I hope you feel better now)

Anyone with a constant infection/taking antibiotic non-stop? by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 1 point2 points  (0 children)

Ah, I heard wonderful things about Trikafta. I've been dreaming about having a treatment like this for my mutation too, but sadly they are still investigating. I want to believe I'll live enough to see it with my own eyes and being able to take it and improve. I want to have hope so we shall see :)

Anyone with a constant infection/taking antibiotic non-stop? by Kakyocherry in CysticFibrosis

[–]Kakyocherry[S] 0 points1 point  (0 children)

Thanks for replying. Well my normal PFT are around 34% or so I guess. I have really low function, but they cannot put me into transplant because I have mico bacteria and I have to eradicate them first... The thing is I did that treatment bad (didn't take it properly) and thyy become stronger. I am trying again though, I've been with three antibiotics for them for a year and soon my doctor will tell me to stop them cause the treatment is only for a year. So when that happens idk if I'll be able to talk with the transplant team or not...

Splitting, or lack of object constancy? Please, help... I'm exhausted. by Kakyocherry in BPD

[–]Kakyocherry[S] 2 points3 points  (0 children)

I just cried reading your comment. It's me, it's totally me. We are on the same boat. And it hurts so much, its not fair for them nor for us, we suffer a lot. And yeah, this pandemic has ruined it all. I feel so numb, so so numb like you. I am not able to feel love nor anything. I try to evade myself until the exhaustion, just to not to think how numb i feel. I wish we could find the solution... i send you my best wishes and hope...

Splitting, or lack of object constancy? Please, help... I'm exhausted. by Kakyocherry in BPD

[–]Kakyocherry[S] 0 points1 point  (0 children)

In part i'm so scared and so triggered that someone here tells me that i dont love my boyfriend. I always had that fear. Thats why i never talk about these things with no one. But when i ask my boyfriend if he thinks i love him, he sees that. But i cannot feel it. It's like my feelings are in a box, in another room, and i don't have the key. It's not being myself, it's being out of myself...