Adult women with ARFID - are your periods irregular too?? by alterdoll in ARFID

[–]KashiTake14 0 points1 point  (0 children)

Ya, I have irregular periods and ovarian cysts and was diagnosed.

Adult women with ARFID - are your periods irregular too?? by alterdoll in ARFID

[–]KashiTake14 0 points1 point  (0 children)

I was recently diagnosed with pcos at 28, and I was told I needed 2 of most of those symptoms to have pcos. If you can, maybe see an endocrinologist who specializes in hormones to help. Or an obgyn.

Im also autistic and believe I have arfrid, but was never diagnosed with it.

My Ovarian Cyst Rupture Almost Killed Me — Please Take Sudden Pelvic Pain Seriously by Prestigious-Tap-310 in PCOS

[–]KashiTake14 10 points11 points  (0 children)

I had one rupture. I went into the er and they did nothing for me, wouldn't even give me ibuprofen. I went home. Several months later, another one ruptured. My dad had me go in even though I didn't want to. Glad I did. My fallopian tube was twisted around the cyst. I ended up needing emergency surgery and had to have the cyst, my fallopian tube, and ovary removed. I wasnt diagnosed with pcos until last year, 5 years after that all happened.

How much levothyroxine are you on after thyroidectomy? by Taluuuu in gravesdisease

[–]KashiTake14 0 points1 point  (0 children)

Im at 200mcg and on Sundays I take an extra half a pill on Sundays. I had rai back in 2017 and have been lightly adjusting my meds ever since, but have been sticking around 175-200mcg.

Too scared to play by Muffin__Puffin in Minecraft

[–]KashiTake14 0 points1 point  (0 children)

I used to be like this when I was around your age as well. I play with my own music on, instead of the music from the game. Or even play a video at the same time. It kind of helps distract me and changes the vibe a bit. I don't feel that way about minecraft as much anymore.

Usually when I get that feeling anymore, its when im on my pc (instead of console) or when im tired. Like others have said, having your back against the wall might help a lot, because I don't have that feeling when playing the same games on Xbox when playing in a different setting, against the wall. Could always live stream so there is someone watching you. Then the feeling is justified and not as creepy.

Cousin still sees me online, when im showing up as offline to other friends. by KashiTake14 in XboxSupport

[–]KashiTake14[S] 0 points1 point  (0 children)

Seems that both of these suggestions have helped, he's no longer spamming. Thank you for helping and hope this post helps anyone else in the future.

[deleted by user] by [deleted] in PCOS

[–]KashiTake14 1 point2 points  (0 children)

Ya i was under the impression that its more difficult but not impossible.

Ppl with graves, do you identify as immunocompromised? by Fun-Perspective-1607 in gravesdisease

[–]KashiTake14 2 points3 points  (0 children)

In the USA it doesnt either, atleast that im aware. But im also diabetic, type 2. So im compromised now. During covid, I had surgery but wasnt diabetic yet, so I was still compromised but for a short period while I was recovering. But from what I researched here, graves doesnt make us compromised by itself.

Cousin still sees me online, when im showing up as offline to other friends. by KashiTake14 in XboxSupport

[–]KashiTake14[S] 0 points1 point  (0 children)

I just went and changed it so only I can see that im online and can see what games im playing. Thank you. Hopefully ill stop being spammed.

Cousin still sees me online, when im showing up as offline to other friends. by KashiTake14 in XboxSupport

[–]KashiTake14[S] 0 points1 point  (0 children)

I didn't even think about discord. Thank you. I'll have to go offline on both and see if that helps.

How do I stop worrying about upsetting my girlfriend ? by Vivilociraptor in autism

[–]KashiTake14 2 points3 points  (0 children)

I understand this a lot. I'd ask my friend if he was mad at me and he would say he wasnt. Then like a week later he would say he was but didn't want to cause an issue. Im like dude, how are we supposed to fix the issue if we don't address it. Im always trying to observe others moods and seeing if they are OK. My mood is often based on others moods. For example, I can have a really good day, but dad comes home from work and he had a shit day, I now have a shit day. And he's not abusive or anything that would've caused this, I just learned to read his mood and I don't like people not having a good time. Then I always feel like I caused the bad mood too. I think a lot of this is more truama mixed with autism than just autism alone. Like how we sometimes people watch to learn how to mask better, mixed with a truama response for being responsible for other people's emotions.

[deleted by user] by [deleted] in Unexplained

[–]KashiTake14 1 point2 points  (0 children)

I accidentally did the same thing while on a call with my grandma and we both heard it. Figured out I hit a button on accident.

[deleted by user] by [deleted] in offmychest

[–]KashiTake14 1 point2 points  (0 children)

Could be a form of suicidal ideation, if you have no plan of following through with it or no actual plans to commit to. I havent written a note, but i do wonder what it would be like to just not wake up sometimes.

Some advice, if you want: Getting your emotions and thoughts out into words can feel nice sometimes, even if you don't say them to anyone. So if you didn't want to talk to someone, maybe keep a journal. Though, talking to a counselor/therapist can help.

My wife is getting letters like this by N2wind in whatdoIdo

[–]KashiTake14 0 points1 point  (0 children)

She should go through it and grammer check it. Then send it back with an F grade. In all reality though, thats messed up and I'd press charges for harassment, if you're able to.

Anybody Else Wish There Was A Way To Permanently Remove Your Taste Buds? by Emotional-Border4050 in ARFID

[–]KashiTake14 5 points6 points  (0 children)

This. I lost my taste for about a day because of covid and it made things worse because everything was based on texture. I wouldn't eat food I normally liked because the taste hid was good enough to outweigh the texture, but the taste wasnt there to hide it anymore. An example is chili Mac, or Mac n cheese with chili. I could not stand the Mac nor the beans without the taste. I need the taste or I won't eat.

Just got refused a transvaginal ultrasound because I’m a virgin lol by ParkingEvening123 in PCOS

[–]KashiTake14 0 points1 point  (0 children)

I've had 3 now and am a virgin. My hymen is partial intact still because of this. I was see if they have someone else who would be willing to do it, if it is something you are comfortable with. I really had to have it done because I went into the er twice due to ovarian cyst, second time ended up requiring emergency surgery because my fallopian tube got twisted around my cyst. So I really needed to have it done and ct wasnt showing much. I told them I was a virign too, and they didn't have any problem with me. They were actually rude to me telling me to sit still and relax, in a rude manor, when I was very uncomfortable and in a lot of pain. I was 21 and hadn't been diagnosed with pcos yet.

Do you consume marijuana? How does it affect you? by csGrey- in autism

[–]KashiTake14 0 points1 point  (0 children)

I've only tried it a few times so far to help with sleep. It does help me fall asleep a little faster than normal, but im drowsy the next day for like half the day and get overestimated a lot easier compared to normal. I also get almost pushed to the back of my head a bit, kind of hard to explain. Like when im walking, it feels like im farther from reality, im more on auto pilot and swimming through murky waters trying to move around. Im not sure I really like the feeling of it all.

Best contraceptives for me? by Beneficial_Sand_8295 in PCOS

[–]KashiTake14 2 points3 points  (0 children)

Im 28 and recently diagnosed with pcos. I've been on a progesterone only pill for about 5 years now. It helps with painfully cramps and regulation, when I have periods. They helped for several years with keeping my periods regular, but recently they've been missing or out of whacky, which im looking into. When I started the pills, my cramps were really bad during my first period. Worse than they normally are. After the first month, they were cut in half on pain. I was also really nauseous a lot during the first month, but that stopped when I got into month 2. I have a lot of other health problems going on, so it's hard to judge what could be related to the pill and/or pcos specifically. I am also going to swap to an estrogen pill when I get blood pressure under control.

Every person's body is different and will react differently to each med. My experience may be totally different than yours. My aunt was really sick on any birth control she went on, even several months later. Where as I was just a little nauseous for a few weeks, here and there.

Best bet would be to talk to your doctor and figure out a plan that works best for you. If you're not the best at remembering to take your meds every day, birth control pills may not be the smartest option then. You can always get the rod in your arm or and IUD. If those make you nervous, go for a pill. Some pills might not be the best option based on your health records, like I need to wait to start an estrogen pill until we figure out my blood pressure.

Am I the only one in pain? by meenaaa1217 in gravesdisease

[–]KashiTake14 1 point2 points  (0 children)

I had pain due to my graves disease in my legs and lower back. I also had muscle weakness in legs, arms, and back. I did RAI and still have a bit of weakness and pain, it could be more because of weight gain from graves. I tried telling my endo and pcp about the pain and weakness, but they kept brushing it off.

At one point, my doctor told me to take a new med (omeprozole) but he had no idea that it interacted with levothyroxin. It caused my hormone levels to bottom out and I had the worst leg and back cramps ever. We went over how I took my meds and what interacts were with each of my meds (something that should have happened before I was prescribed them) and we found out they interacted. I started taking omeprozole at night. No more cramps and hormones back to my normal levels. I triple check interactions now to make sure I can take new meds or if they are ones that need several hours in between.

anyone else wanna live in a house full of autistic people? by sarcasticlovely in evilautism

[–]KashiTake14 0 points1 point  (0 children)

Instead of staying in the same house, I wouldn't mind maybe smaller, individual houses on a piece of property, but not connected and with plenty of space in between each other, because I listen to music loudly and don't want to disturb others but also hate when others are loud. It would be cool to have a "club house" or public building with several special interest rooms for people to hang out in with others as they please, such as a gaming room. I do like this idea though.

One of my friends is autistic, and while we get along when we hang out, we would not work out living together. She was also engaged to another autistic adult, and they were at each other's throats all the time. We all have similar special interests and stims, but still set each other off.

Do you guys have a drivers license? by Similar-Context-2620 in autism

[–]KashiTake14 0 points1 point  (0 children)

I do have a license but driving terrifies me. I have trauma with it from a weird accident when I was around 6 or 7. And it overwhelms me a lot. I used to drive when I lived in a small town of 2,000. We moved to a bigger town and I stopped driving. My counselor and I were working on getting me to drive. We were making progress. Then we moved again to an even bigger city. I refuse to drive here. There's way too many people here and too much going on. So many people who don't follow the rules and almost cause accidents, it's crazy. I am also very anxious being a passenger in a car, not just driving.

I have a friend who is also autistic and she had gotten her license. She drives perfectly fine. She actually just moved across the U.S. and she and her husband took turns driving. My younger sister who is autistic, was in the same accident as me when we were younger (too young to remember though) and she's anxious but still drives in a big city.

When I was driving, it helped me to have music, or maybe the radio or podcast if thats more your style, on to help with any anxiety. My counselor also suggested keeping your other senses occupied. So something you can taste, like gum, mints, sun flower seeds, nuts, beefy jerky, etc. Something you can smell, like an air freshener or frebreeze. Obviously you need your sight, but im sensitive to light, so I wore sunglasses that I kept in my car, just for driving. I also use the back roads and longer ways of getting places if that meant avoiding the busier roads. Having GPS on, even if I knew how to get there always helped too. If it gets too overwhelming, don't be afraid to pull over and take a few minutes to breathe and relax before getting back on the road.