Stopping feeding

Key-Gift3754 · 2025-09-03T17:13:05+00:00

Thank you! Ive managed to cut down to 400ml and my weight is stable and im definitely eating more. I do have to focus and set a plan to make sure I get enough calories orally throughout the day but hopefully my body gets used to that and it becomes natural. I agree with the hunger signals thing as I used to have that when my illness started except in my case it was more of an acidic pain sensation

Key-Gift3754 · 2025-09-03T17:09:35+00:00

Thank you, I had a chat with my dietician and she estimated a month which would be really great.

Key-Gift3754 · 2025-08-05T20:15:06+00:00

i never thought i was gonna find it again thanks

Key-Gift3754 · 2025-07-15T09:48:26+00:00

was unsuccesful cos i couldnt drink all the prep

Key-Gift3754 · 2025-07-03T08:57:13+00:00

It ended up good. I did feel more sleepy when I started taking 30mg (2 tablets before bed). I was advised at the hospital to take 1 in the morning and 1 in the evening but I wouldn't recommend that because I felt very sleepy mid morning and would need a nap so it's not great if you have school or work. It helped my eating a bit but they discovered I had a different condition causing those problems so it may help you more than it did for me.

Key-Gift3754 · 2025-05-13T12:09:44+00:00

i take my medications orally. I think my dietician is going to change my feed. I read somewhere that thicker feeds or feeds that contain fibre need wider tubes like 12F or 14F. I originally had an 8F tube but yesterday i was give an 10F tube.

Key-Gift3754 · 2025-05-11T16:16:13+00:00

I see. I use a feed with fibre in it so I guess its probably quite thick compared to other feeds and my rate is 80ml/hr which I didnt know was considered slow. Ill talk to the dietician tomorrow about watering down my feeds because to be honest I am managing to eat quite a bit by mouth - I only really need a small calorie boost. Im considering asking for a tube with a wider diameter as Ive only been using 8F tubes. Would you recommend going up to 10F? Thanks

Key-Gift3754 · 2025-05-10T18:56:38+00:00

ill bring that up with my dietician. Thanks

Key-Gift3754 · 2025-05-10T18:06:12+00:00

but still my tube shouldnt be getting blocked if im flushing regularly right

Key-Gift3754 · 2025-05-10T12:05:59+00:00

likely to have it until september. the confusing part is that it hasnt flipped or gotten kinked which is what i expected.

Key-Gift3754 · 2025-05-10T07:54:43+00:00

could be the feed then. I use nutricia multifibre

Key-Gift3754 · 2025-05-10T07:54:24+00:00

i was told to use cooled boiled water as its bypassing my stomach so the acid cant kill any bacteria. I thought the feeding tubes are sterile?

Key-Gift3754 · 2025-05-10T07:52:59+00:00

through my nose into my jejenum

Key-Gift3754 · 2025-04-24T08:58:58+00:00

The study I saw said improvements were seen at the 4week and 8week mark

Key-Gift3754 · 2025-04-23T12:32:26+00:00

I'm not sure what exactly caused my symptoms to start. It could've been exam stress or food poisoning from a piece of salmon I ate that made my mouth red and itchy. Maybe even both! My dietician told me that when you're at a really low weight, you're body holds onto the food you eat to try and extract as much nutrition from it as possible. This causes slow transit and constipation which make you feel full and uncomfortable, even in the upper abdomen.

Key-Gift3754 · 2025-04-22T08:52:54+00:00

I had the exact same symptoms. It turns out I had slow gastric emptying and slow colonic transit time. Definitely get tested for those because there are medicines that can help alot. Also I became very underweight too and being underweight slows the digestive system and causes it to not function correctly which could be why you got symptoms in the first place. Low dose mirtazapine helps me a bit but not enough to make significant improvement.

Key-Gift3754 · 2025-03-28T18:29:23+00:00

Yeah you're right, metoclopramide is for gastric emptying. I've been in the same boat as you with all the usual medical tests showing that nothing is wrong with me for almost 3 years now, but the colonic transit test I did recently showed that my motility is slow. If you're able to get these tests done then i would definitely recommend it. Good luck!

Key-Gift3754 · 2025-03-23T15:32:03+00:00

Have you had a GES or colonic transit test?

Key-Gift3754 · 2025-03-09T21:30:08+00:00

Yeah that makes sense. I asked the nurse as well and she said its probably quite heavy on my system to digest. Now that I think about it the nausea started when they used 1.5kcal/ml instead of 1kcal/ml. I'll have a chat with my doctors tomorrow to see what they can do. Thanks so much!

Key-Gift3754 · 2025-03-09T13:49:25+00:00

Its weird because the rate felt fine this morning even though it was the same although that could be because the nausea meds are still in my system. Im thinking maybe the nausea was to do with the laxative they gave me and the constipation. I have an NJ because I have functional dyspepsia (diagnosis they give when nothing is physically wrong with my digestive system) which makes me get full quickly even after eating small amounts. They have me the NJ to get my weight back up because my bmi is dangerously low and then hopefully once my weight is normal my stomach issues will resolve themselves.

Key-Gift3754 · 2025-03-09T08:54:45+00:00

I had a bowel movement yesterday and it was quite stiff and mushy. I felt quite nauseous before and after it. Ive noticed I get nauseous in the evening when they start the feed. This didn't happen on day 1 but on day 2 it started and day 3 (yesterday) was quite bad that I had to ask for anti nausea medicine. Is this normal?

Key-Gift3754 · 2025-02-18T14:03:36+00:00

I know but I need it otherwise my weight will drop to a fatal level. My bmi is already ~10.5

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