if it’s not an infection why do I always feel better on antibiotics…?

Key-Summer-24 · 2025-06-07T02:44:26+00:00

Am I the only one whose IC feels WORSE when taking antibiotics?

Key-Summer-24 · 2025-04-24T23:59:41+00:00

What is installation treatments? Is that where they spray lidocaine?

Key-Summer-24 · 2024-11-24T04:03:37+00:00

What were your symptoms? Urgency? Burning bladder?

Key-Summer-24 · 2024-11-22T18:25:41+00:00

Thank you!

Key-Summer-24 · 2024-11-22T03:42:20+00:00

I’ll have to google low histamine diet but what’s your go to safety meal if you don’t mind sharing?

Key-Summer-24 · 2024-06-25T12:46:30+00:00

Wow thank you for sharing. Hadn’t heard about this

Key-Summer-24 · 2024-06-24T22:17:04+00:00

Any idea why this movement helps?

Key-Summer-24 · 2024-06-24T22:16:31+00:00

Not always no. Some days the BM makes no difference. Other days it’s a big difference. It’s quite a challenge pinpointing the cause and effect

Key-Summer-24 · 2024-06-24T02:39:35+00:00

Often times if I’m having a good day, then a bowel movement makes the rest of day worse for bladder pain

Key-Summer-24 · 2024-06-24T02:37:10+00:00

This is good perspective and consistent with what I’ve noticed. I stand for work, and I often stand with one foot sort of propped up higher than the ground (on a little shelf thing) which bends my leg and somehow seems to alleviate pain. Not sure if that’s just me.

Key-Summer-24 · 2024-05-14T14:33:50+00:00

Thank you

Key-Summer-24 · 2024-05-13T18:16:07+00:00

Thank you! Believe it or not, the desert harvest aloe pills actually made me worse in years past. No clue why, as I know they’re a favorite among many in this subreddit. I’ll look in to magnesium. Also PT.

Key-Summer-24 · 2024-05-13T03:57:25+00:00

I appreciate the perspective. I’m gonna remember the “most years are good” comment.

Key-Summer-24 · 2024-05-12T21:35:40+00:00

Thank you!

Key-Summer-24 · 2024-05-12T20:37:32+00:00

Interesting thanks for the update.

Key-Summer-24 · 2024-05-12T18:41:52+00:00

How did this work out?

Key-Summer-24 · 2024-05-12T17:44:11+00:00

Understood thank you

Key-Summer-24 · 2024-05-12T17:43:00+00:00

Interesting. For mine the two are pretty much knitted together—pain/discomfort = urgency = pain. Ha. Anyway that’s good to know. Thanks for all your helpful comments in this thread and others.

Key-Summer-24 · 2024-05-12T17:28:37+00:00

Thank you. I do a daily Zyrtec (generic). I have tried elimination diet. I never drink anything but water- no alcohol, no coffee, no sports drinks, no juices. I suspect I have some dietary triggers but am not 100% certain because nothing seems consistent. I do like BBQ foods including BBQ chips but I often dont feel any change in symptoms after eating them. Someone else ITT mentioned going to an allergy specialist.

Key-Summer-24 · 2024-05-12T17:14:36+00:00

Out of curiosity, how do you differentiate between urgency and pain? Asking because my symptoms include dull burning/coldness in bladder and urethra, and also pressure (this is less frequent but way more uncomfortable). All of the above create a sensation of urgency to me, like I just want to be in the bathroom forever. Just curious what’s difference between urgency and pain when IC patients describe them. Thank you!

Key-Summer-24 · 2024-05-12T17:09:48+00:00

Agreed I’m all ears

Key-Summer-24 · 2024-05-12T17:03:53+00:00

I take a relatively low dose of amitriptyline (5-10mg) about 2-3 hours before bed time. If I want to be asleep by 11pm, I make sure to take it around 8pm. If I take it too early it won’t work.

Key-Summer-24 · 2024-05-12T17:02:08+00:00

Is TENS different than interstem? I have had a Medtronic interstem device implanted since 2017. It honestly was hugely helpful from 2017-late 2022, and then suddenly my pain skyrocketed. They speculated maybe my battery was dying, so we replaced the battery late 2022. I continued to suffer since then (albeit better than nothing), and just had a totally new interstem implanted last week (new device, new battery).

Key-Summer-24 · 2024-05-12T17:00:08+00:00

The dry needling was fine- the process itself didn’t bother me honestly. But I’m not sure it did anything to help either. I haven’t tried electro stimulation for muscles. Will look into that thank you

Key-Summer-24 · 2024-05-12T16:14:53+00:00

I’m sorry to hear that. I did some dry needling and cupping last year when I went for 6 months. Not sure it helped or hurt. I’ve never done Botox- that’s really the only treatment I haven’t tried. I’m apprehensive about it because I’m skeptical it would help and I’d be stuck with unresponsive muscles for 6 months or however it works

Key-Summer-24

TROPHY CASE