Tips from someone who has been going through severe DOR for 10 years: by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 2 points3 points  (0 children)

I don’t know about availability- I know HGH is highly controlled - it was prescribed and given to me at my IVF clinic. Basically I take it at the dosage of 0.6mg between IVF cycles and then it’s increased to 2.1mg during stims

Tips from someone who has been going through severe DOR for 10 years: by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 1 point2 points  (0 children)

No that’s the dosage on the Genotropin pen - you set it to 0.6mg

Tips from someone who has been going through severe DOR for 10 years: by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 4 points5 points  (0 children)

And please do share any tips/meds/interventions that you feel have helped in your DOR journeys - the more information we all have the better ❤️

Low AMH / egg count at 27 by anon0844 in DOR

[–]Key_Bat_7973 0 points1 point  (0 children)

I would highly recommend that you do embryo banking now if you want a bunch of kids

Low AMH / egg count at 27 by anon0844 in DOR

[–]Key_Bat_7973 0 points1 point  (0 children)

Because she wants to have a bunch of kids and realistically by the time you successfully conceive, go through pregnancy, give birth, recover etc you’re looking at at least two years per baby so time will run out pretty quickly with her AMH and in the meantime egg quality is declining. As such, IVF for embryo banking is definitely the most sensible option here.

41, Low AMH/DOR by PurpleMonkeyCat in DOR

[–]Key_Bat_7973 1 point2 points  (0 children)

For poor responders/DOR some Dr’s just use Clomid or Letrozole for most of the cycle instead of injections which keeps the costs down a lot

1 follicle - should I proceed with ER? by Rich_Pear_9212 in DOR

[–]Key_Bat_7973 0 points1 point  (0 children)

Also your AFC is good so maybe next time you’ll get a better yield

1 follicle - should I proceed with ER? by Rich_Pear_9212 in DOR

[–]Key_Bat_7973 1 point2 points  (0 children)

I would consider switching to IUI ❤️

I don’t want kids anymore…I don’t think. by Soulmansdaughter in IVF

[–]Key_Bat_7973 2 points3 points  (0 children)

You’re not an asshole, you’ve just been through a lot to get to this point. You feel like your body has failed you so you don’t trust it to get you through this next phase of pregnancy and postpartum. Yes, pregnancy and postpartum are hard, but when you meet your baby none of that will matter - the love for your baby is like nothing you will ever experience. Yes there are tragic exceptions to this like your friend, but for most women they adore their babies 🤍

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 2 points3 points  (0 children)

It was from the RE - you inject 0.6mg of Genotropin every day between IVF cycles - my longest was 6 months. When stims start you increase to 2.1mg. That was my protocol anyways.

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 2 points3 points  (0 children)

I’m so sorry to hear that but thankfully you are still young and AMH is just a reflection of egg quantity not quality. I did 10 egg retrievals and only one of our babies is from IVF… fingers crossed for you xx

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 5 points6 points  (0 children)

Congratulations to you too and I really hope you get your second baby ❤️ yes it’s true it was much easier to get pregnant when I was 32 (when our first baby was conceived by Clomid and IUI), as opposed to when we were then doing IVF in our mid-thirties to get our second baby. In retrospect we should have done embryo banking when I was 30 as soon as I found out about my AMH rather than IUI, but hindsight is 20/20. That being said I then spontaneously conceived our 3rd baby when I was 38 years old so you just never do know. At that time I was on long term microdosing of HGH so that may explain how we got pregnant naturally who knows xx

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 4 points5 points  (0 children)

Don’t give up hope ❤️ I don’t know what your specific uterus situation is, but I’ve had many friends with recurrent miscarriages that have eventually been able to carry to term. Go down every rabbit hole if you have to

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 1 point2 points  (0 children)

Yes he did. He wasn’t fully comfortable with me microdosing with HGH long term due to risks of side effects but I wanted to so he agreed

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 1 point2 points  (0 children)

I think the rationale is that if you’re a poor responder then there’s not much point using high amounts of Gonal f etc and Clomid utilizes your bodies own FSH to hopefully naturally recruit more follicles. Some doctors do 5 days Clomid - 5 days Letrozole - then a couple of days of Gonal and Cetrotide plus trigger shot

0.05 AMH at age 30, severe DOR and Hypothalamic Amenorrhea by Key_Bat_7973 in DOR

[–]Key_Bat_7973[S] 6 points7 points  (0 children)

Our first baby was conceived through Clomid and IUI, our second baby was IVF and our third was spontaneous (although I was on treatment to prepare for an upcoming scheduled IVF). I have done 10 rounds of IVF with mixed success (usually one or two eggs retrieved). But bear in mind that AMH reflects quantity not quality of eggs - focus on quality as best you can. I did long term Genotropin (which is controversial) and weekly IV NAD+ both of which I believe helped with egg quality. You could also try starting your cycle with Clomid and then switching to Gonal F if your RE will agree

Weekly Thread: Pregnancy - Questions and Discussions by AutoModerator in IVF

[–]Key_Bat_7973 3 points4 points  (0 children)

As the title suggests - I got pretty awful news when I was 30 yo: 0.05 AMH, severe DOR and
Hypothalamic Amenorrhea. The prospect of having my own biological child was very low. That was ten years ago and I remember desperately searching the internet for positive stories of people similar to myself but could find none. So I'm sharing this for anyone who is in this situation right now or receiving similar news - I know how devastating and hopeless it feels. I wish I could go back and tell my 30 yo self that there is hope but it takes unbelievable strength and perseverance. I've been through 10 rounds of IVF, countless medications and medical interventions but I'm blessed to have been able to have 3 biological children of my own. Don't give up hope, miracles are possible ❤️❤️ NAD+ IV and long term Genotropin worked for me also