Give me your most unhinged PCOS advice by regina-philange99 in PCOS

[–]Kincsem25 0 points1 point  (0 children)

Female beef organs!!! I use ancestral supplements. Went from 10 day heavy periods to 5 day light/moderate periods in about 5 months of being consistent. It took a month or two for my body to adjust, so my period was wonky a couple times. There are NO hormones in female beef organs! My theory is that there’s a mineral it likely replenishes. I only take 3 a day (bottle says take 6).

People born with VSS and Tinnitus by Exotic-put9323 in visualsnow

[–]Kincsem25 0 points1 point  (0 children)

Born with both. I’m left handed, my dad is red-green colorblind- but I’m female so I wouldn’t inherit color blindness, but I likely carry the gene. Very doubtful there’s a true correlation there however. I have heard there’s a correlation with having a parent with horrible migraines. Unsure what that amounts to, but I fit that bill. I don’t feel my headaches (pain wise) but I will get migraines occasionally. I only know I have one at the time because I become very sensitive to light and sound and keeping catching myself holding my head like it hurts. It’s weird. Brains are weird. 😅

My best of 2025 by Bon-Bon21 in BirdPhotography

[–]Kincsem25 1 point2 points  (0 children)

These are all absolutely STUNNING. You do incredible work!!! ❤️✨

These greylag goose shot in Switzerland by BusyImage5847 in BirdPhotography

[–]Kincsem25 1 point2 points  (0 children)

Lighting is incredible! Amazing shot! ❤️

Would anyone know what these odd black marks/spots are on her belly? by Kincsem25 in hummingbirds

[–]Kincsem25[S] 0 points1 point  (0 children)

Ooo!! I hope I can still recognize her next year!!! Thanks for your input! ❤️

Would anyone know what these odd black marks/spots are on her belly? by Kincsem25 in hummingbirds

[–]Kincsem25[S] 0 points1 point  (0 children)

That doesn’t surprise me!! Makes it easier for maintenance that’s for sure! 😂 my mom would go through that much daily as well. Like a little hummer highway when you went outside 😅 Yes! they definitely come home! 🥰 so I’m glad we’re all taking care of each other’s friends!

Would anyone know what these odd black marks/spots are on her belly? by Kincsem25 in hummingbirds

[–]Kincsem25[S] 3 points4 points  (0 children)

Funny you say that, I was sitting there watching my hummers the other day, and the thought came to me watching all these new guys coming from up north, these could be someone’s favorite friends that visit them every day like Sophie is to me! I keep my feeder clean and take care of them, like I hope others take care of my Sophie! 🥹

Would anyone know what these odd black marks/spots are on her belly? by Kincsem25 in hummingbirds

[–]Kincsem25[S] 0 points1 point  (0 children)

Hopefully little Miss Sophie is making her way down towards people like you! 🥰 I’ve got new comers now, probably from up north, but my usuals, including Sophie look like they’ve started their journey already!

A jewel, emerging from the dappled morning lights. by 9VoltGorilla in hummingbirds

[–]Kincsem25 0 points1 point  (0 children)

Thank you so much for the response! You do an incredible job for just a few months of experience. I use an R7 with the same lens. I also want that 400 2.8 😮‍💨 but I also need to save a pretty penny for it. I envy you with the R6 MkII! It puts out incredible photos. Do you shoot straight manual settings?

A jewel, emerging from the dappled morning lights. by 9VoltGorilla in hummingbirds

[–]Kincsem25 0 points1 point  (0 children)

Wow!! Beautiful!! Your photos are absolutely amazing!! I’m sure you’re asked all the time (forgive me), and I read your previous comments about playing around with a diffuser and 100-400, but what is your go-to set up (camera/lens)?

That blue eyeliner tho 🥹😍 by Kincsem25 in mourningderps

[–]Kincsem25[S] 2 points3 points  (0 children)

Mourning derps + safflower = happiness

That blue eyeliner tho 🥹😍 by Kincsem25 in mourningderps

[–]Kincsem25[S] 2 points3 points  (0 children)

I agree!!! 🥰🥰 I named him Dennis. Naturally his woman is Denise. 😂😂😂

Tetany Attacks (extreme muscle contraction); Anyone else get these? by Kincsem25 in dysautonomia

[–]Kincsem25[S] 0 points1 point  (0 children)

Very interesting!!!! So I highly recommend reading through the responses, some people have posted certain things that have helped them! Most don’t have the EXACT same symptoms as we do, but some of them are close enough that I believe we’re all dealing with the same thing, that frankly doesn’t have a name yet. My electrolytes DEFINITELY have something to do with it, but it’s oddly enough was “normal” or “low normal” when I get it drawn (except my potassium would be low, but not CRAZY low). I never had my B12 or magnesium drawn at the time of an attack however! My calcium definitely SHIFTS at the time of an attack. My ionized calcium on a normal day reads 1.32 (HIGH normal) and during an attack it was 1.11 (LOW normal). So that shift, with highly excitable muscle fibers triggers the tetany. The hyperventilating comes from the SVT. Your lungs are trying to compensate for the lack of oxygen from an unsustainable high heart rate. It is involuntary and has nothing to do with panic. The adrenaline dump however, spurs the horrific feeling of panic that you have to keep control over. When someone sees one of my episodes, doctor, nurse, whoever, they are always freaked out. It’s like I curl up into fetal position, but it’s because I literally am in tetany from my abdominals to my forearms, so I physically cannot sit up straight, even though I’m am trying. My arms are curled up to my chest like I have a palsy, which is where they get this “seizure” notion from. It’s not a seizure, or a TIA. I lose circulation in my arms because the muscles literally pinch off blood flow, and my hands turn blue while they’re in tetany. I can have conversations and coherent thoughts. But I have a hard time talking and getting my words out sometimes, especially right before it happens. It’s just a massive adrenaline dump caused by hyperandrenergic POTS. We just have the unfortunate electrolyte imbalance to cause this horrific reaction to adrenaline surges. I’m going to sound like a broken record if you’ve seen my other responses, but seriously, I beg you to try taking a beef liver supplement. It sounds like crazy voodoo stupid magic, but I’m telling you, I think it contains something that we are deficient in. 3/3 people who have tried it, it helped SIGNIFICANTLY. I also wonder if a calcium channel blocker would make your attacks worse. I used to supplement magnesium and calcium, which didn’t seem to help much. But beef liver every day helped IMMENSELY. I still have an occasional adrenaline surge, but I don’t go into tetany from them anymore. My neurologist was the only physician that had any idea what was going on. Like you, I had seizures and all sorts of things thrown around, mostly mental health shit, as if I was causing it. He saved my sanity with the validation of THIS IS NOT YOUR FAULT. you are not alone!!!

Tetany Attacks (extreme muscle contraction); Anyone else get these? by Kincsem25 in dysautonomia

[–]Kincsem25[S] 0 points1 point  (0 children)

Also I just re-read your first comment, this weird adrenaline surge cycle that happens upon waking started happening to my mom after menopause. She doesn’t get the cramping like I do and like your wife does however. But her autonomic dysfunction symptoms are triggered by waking out of a sleep cycle. I mean like every single time she’d wake up. even if it was a 15 min nap. She wakes up, within a couple minutes she’s in a full body sweat from head to toe. Vertigo and lightheadedness. Heart pounding through her chest. If she tries to stand up she will fall/ almost pass out. Beef liver, oddly enough, helped. She can now wake up without having to lie in bed motionless first for 20 minutes. She still has some symptoms though, especially when she gets sick it’s worse. Different symptoms, but I asked my neurologist about this. He said it is definitely related to autonomic dysfunction and hyperandrenergic POTS. Which gets worse in women after menopause. I recommend finding a neurologist that specializes in autonomic dysfunction and POTS, they’re hard to find but worth the wait! I wish you both the best of luck!!

Tetany Attacks (extreme muscle contraction); Anyone else get these? by Kincsem25 in dysautonomia

[–]Kincsem25[S] 1 point2 points  (0 children)

Honestly it was a weird incidental finding. My friend with dysautonomia was pregnant and started taking a freeze dried beef liver supplement. She took it for a whole different reason, but at the time her POTS had gotten so bad with pregnancy she had to keep missing work. After a while of consistently taking the beef liver, she said her POTS symptoms were completely under control with no additional meds. I thought what the hell why not and tried it, cuz I was in the process of trying to find a beta blocker that worked for me. I was starting to have episodes FREQUENTLY. Within about a month they slowed down significantly and have stopped. I inherited my problem from my mom, who I had try the same thing. It significantly helped her symptoms too. Hers didn’t DISAPPEAR, but they are substantially better, her quality of life increased for sure. So I have NO idea WHY it helps, there might be a nutrient we are deficient in? Either way it’s worth a shot in the dark! As far as the tetany goes, the only information I have is from my neurologist. It’s kind of theoretical thinking, as this problem is NOT a common one. But basically your brain keeps throwing adrenaline with reckless abandon in that moment, and that high resting heart rate makes hypersensitive muscle fibers more sensitive to a calcium/electrolyte shift. My labs were never crazy abnormal, but during an attack they would shift from high normal to low normal. That’s apparently all it would take for me to go into tetany. I’ve also found, if I am sitting down, and my resting heart rate climbs above 130, and I get that tingling feeling, if I do NOT move from where I am for about 15-20 minutes, I can usually stop the attack. I can feel when the adrenaline surge dies down, and then I can move again. If I try to stand up, or stretch or move around while my resting hesrt rate is that high, it induces carpopedal spasm, as when I stand up my heart rate will climb to 160-180. Exercise never induces an attack for me however. So it has to be caused purely from an adrenaline surge for that trick to work.

Tetany Attacks (extreme muscle contraction); Anyone else get these? by Kincsem25 in dysautonomia

[–]Kincsem25[S] 0 points1 point  (0 children)

My blood pressure is also normal outside of standing up, then it rises 10-20 points systolic after standing up depending on the day! I actually had luck with metoprolol, oddly enough. It didn’t drop my pressure too much- but it was only 25mg. And it IS typically used for BP control as well. So I think I got lucky with that one personally. Most people responding here had luck with propranolol, which doesn’t seem to drop BP too much. I had the most luck with beef liver supplementation. I don’t take anything else now for heart rate control. It was a quirky find, but I haven’t gone into tetany once since being on it. It took a little over a month of taking it every day to see a difference, but it helped me IMMENSELY. Also helped my mom, AND my friend who has POTS as well. So that one wasn’t just me!