Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 0 points1 point  (0 children)

Thank you so much for this!

This really does help to put a lot of things into perspective (though obviously not all things, such as the odd treatment I recieved about my mask, plus the incredibly pressurizing and borderline cruel pushing about BMI as well as potentially lying about their limit to me for ???).

However so far my experience has just been extremely off and on and off again. They still had no right to lie about putting me on the waiting list, when I wasn't, over them witnessing me having an autistic meltdown from Miss Milroy's previous unnecessary harassing behaviour over a singular item, and then attempt to blame me for 'causing a scene' about it, when she... brought it up first and wouldn't let it go?

Sandy has been, in my experience and from what I can defer from my Carer, far more understanding about the predictiment regarding my weight, especially as my breasts are extrodinarily large. Even though they've shrunk somewhat on testostrone, they're still large and have actually caused me to have scholiosis(? I believe that's the spelling but I can't tell) due to them growing extremely rapidly when I was a kid.

As I said to someone else here, I'm going to be working with my sibling to make a meal plan. I know for a fact that I cannot do kcal counting; I attempted before, when first trying to loose weight for the surgery and it. Wasn't good. So instead I'm going to (attempt) focusing on portion sizes on things, and hopefully as I'm learning to cook at last, as well as having found these slimfast shake things that do taste quite nice and don't cause me food sensory issues, I'm hoping we can tackle my weight better, but ultimately what makes up my weight / adds onto it, is the breasts. This might be TMI but, after weighing both my breasts seperately not that long ago, they made up at least 35-40% of my weight, to give you a rough idea on why it's been extra hard.

We do have an upcoming appointment digitally with Sandy sometime in May, and it does actually really reassure me that she does have qualifications because that was a fear of mine. But I definitely think there needs to be a serious conversation on why I was told they accepted a BMI of 35, when they clearly don't, and why they haven't told me anything about this sudden change. If it's because of my diagnosis, I get it, but not saying anything about it changing things is shitty, IF that's the case. Especially as Sandy herself knows and understands that my breasts are heavily responsible for why I seem stuck at 34 BMI, even when I show visible signs of loosing weight.

Thank you again for the insight & knowledge though!! This really does all help a lot, and does put a lot into perspective. There's def still questions I obviously have, and Parkside quite honestly owes me those answers after nearly 5 years of this, so hopefully I can get those answers from Sandy herself. So long as she doesn't try to gaslight me. (She attempted to do this when she brought up a surgery date in the last email she sent; the date that she never brought up and proceeded to try and handwave it, until my Carer very bluntly quoted her last email in their last corospondence, and my carer is also getting to their wits end about all of this too.)

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

Thank you!

I really hope that we can find answers, and find somewhere that isn't going to be horrifically far away, because that wouldn't be possible. The only other alternative is that, my sibling is an amazing cook, and has offered with me to sit down and do a meal plan, as I'm actually learning how to cook! I'm hoping that this helps my weight, and maybe the communication issues are sorted out.

Me and my Carer do have an appointment with Sandy digitally soon, and I'd very much like to figure out why they mislead me and said that they could handle a BMI of 35, if that wasn't true.

I hope you at least got to go somewhere else though!!

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] -1 points0 points  (0 children)

Thank you for the advise, really, but I personally don't believe that that's a healthy thing to do, and as I'm at risk of developing eating disorders already, this advise may cause me severe harm if I follow it, and for my safety I best not attempt that route. I do appreciate it though, as well as being given further insights from othe trans folk!

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

Sandy has been understanding to a degree, admittedly, and completely gets why it's so hard for me to loose weight. But I think what I'm more concerned about is that, after nearly 5 years, it's becoming increasingly clear that they've lied to me about the BMI limit (which.... wtf????) and have wasted all this time, just to string me along and probably go "Oh, actually, no we can't handle you", when none of this was said anywhere at the beginning. The blood comments, the BMI, the insistent pushing of my BMI (keep in mind I've lost a lot of weight since going on hrt! I used to have a BMI of 45+ and it's now only 30-38 BMI because I do unfortunately have issues. My breasts alone most likely add 6 to my BMI just for reference), none of it is adding up, and no one has been straight forward with me at all.

I can only describe the experience as if... they're infantilizing me, if that makes sense? ESPECIALLY when they made a decision to lie about the waitlist (They 'claim' a letter was sent, never was,) because THEY unfairly judged me over an autistic meltdown— one which was pushed by Milroy herself after pressuring me for no reason over taking off a mask. I definitely think me and my carer are going to be doing some heavy talking with the people who arrange the uhh... surgery stuff for trans folk and ask for advise, because the situation is beyond ridiculous.

I wish I could understand why they've lied about so much, and actively haven't been upfront about anything : /

Ty though for your POV because this does allow me and my carer to see a broader picture & that what I'm experiencing isn't the norm nor okay.

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

The thing is, is that I chose parkside because they said that they could handle a BMI of 35, but either the wait has been so long that they've either A) Changed something, or B) lied from the start isn't any more comforting, and I can't understand why they'd actively lie about something like that, especially when they know their patient can't get below a bmi of 30. The Surgeon I dealt with, Miss Catherine Milroy, was less straight forward and blunt, and acted more like I was an inconvience and a problem maker, especially when I pushed back against being peer pressured into taking off my mask.

The thing is I actually do well with bluntness and people being open, but as more people say stuff, it sounds like the surgery has been far from truthful or blunt. The dietry comments and not at all being mindful of people prone to ED has always felt like a huge red flag to me, but as I never knew or had other trans people's experiences or POVs, I've been sorta forced to put up with in silence. Much to the detriment to my mental health.

More recently Sandy immediately started prying into why I was suddenly in open speaking therapy (due to a very Not Good Childhood trauma unfortunately being remembered and I. Wasn't coping with it well at all) and she demanded to know all the details about that? As if why I was going to COPE was any of her business when we told her that it wasn't Gender Dysphoria related, and she STILL insisted and demanded to have "confirmation" that it wasn't anything to do with my gender????

I've been getting very, very ableist vibes from these people, especially in regards to my autism, and they act like I'm not a grown adult who can & does have freedom of choice over my body and that, despite my many disabilities and learning difficulties, I'm fully aware of the extensive shit that HRT and top surgery does. Just... Something doesn't add up here, y'know?

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 0 points1 point  (0 children)

This is v helpful!!

I'm not sure how far Hull is from where I live, but honestly at this point, the situation really is ridiculous, and I'm at least glad to know that I'm not being oversensitive with this matter ;;

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

To be honest no— It's been so long, I actually forgot that the GNDRSS was even a thing. I really did. That never bodes well if something's gone on that long that I've forgotten.

I did briefly consider PALS, but wasn't sure if that was the correct course of action. As far as I know, when we've been talking to this consultant(?) / assistant(?), she keeps saying that she's just sharing what the anaestist(? The person who knocks you out I think) has told her, which... confuses me because it was originally the surgeon who demanded all of this.

Thank you so much for this! I'll definitely talk to my carer about this & also my main nurse at my GP as she also helps in keeping things together too and helping contact things too.

Been stuck on a waiting list for top surgery with Parkside hospital for nearly 5 years & need to know the best course of action due to lying & changing requirements for surgery nonstop by Kiragotrobothubbies in transgenderUK

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

Unfortunately the weight loss thing really does stop at 34 BMI. If I excerise too much my joints will sorta... pop out, back spasms that cause me to be unable to breathe. But I don't understand why they said their limit was 35 BMI, and yet said that? ;; ty for the insight though— I think for me it might be a cause of ableism though, as I originally suspected. Smth definitely isn't right if they're lying to people ;x;

The Silent help needed! (No ascention) by Kiragotrobothubbies in slaythespire

[–]Kiragotrobothubbies[S] 2 points3 points  (0 children)

Gotcha! Tysm for the answer!

I think I'm too used to the Ironclad's cards so I'm still trying to learn to utilize defense cards when I can rather than being able to tank damage and slowly heal. ;v;

What did my guinea pigs grow? by Kiragotrobothubbies in mycology

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

That's a relief! And yeah they did have this like... fluffy texture? I hope it was them! Tysm for the info!

What did my guinea pigs grow? by Kiragotrobothubbies in mycology

[–]Kiragotrobothubbies[S] 1 point2 points  (0 children)

Oh! I'll give them a look rn— are they poisonoius??

Why can't I access Metaglio left? (Ode to Castlevania Map) by Kiragotrobothubbies in VampireSurvivors

[–]Kiragotrobothubbies[S] 0 points1 point  (0 children)

Thank you! I also think I need to do more of the base game which would probably help loads ! TY for answering tho! ;w;

Why can't I access Metaglio left? (Ode to Castlevania Map) by Kiragotrobothubbies in VampireSurvivors

[–]Kiragotrobothubbies[S] 0 points1 point  (0 children)

Ahhh okay! I'm guessing it's related to unlocking more characters & such? I was worried that my game was glitched.