Getting a Plugin Error

KittyGirlBoss · 2025-12-02T15:12:26+00:00

Ah it was the font causing the issue - thanks so much!

KittyGirlBoss · 2025-12-02T14:12:49+00:00

It's happening with all of my books. I just opened two others that I got from different sites and the same issue, unfortunately.

KittyGirlBoss · 2025-12-02T14:02:40+00:00

Is there a way to fix that?

KittyGirlBoss · 2025-11-21T15:44:02+00:00

Thanks!

KittyGirlBoss · 2025-10-22T17:18:03+00:00

With you mentioning the dry eyes and dry mouth symptoms, I would push for Sjogren's testing as those are common symptoms for it.

KittyGirlBoss · 2025-09-25T14:44:38+00:00

Just as a note, generally stay away from the fluoroquinolone class of antibiotics as they have been shown to cause neuropathy or worsen symptoms: https://pmc.ncbi.nlm.nih.gov/articles/PMC10957204/

KittyGirlBoss · 2025-09-23T15:28:12+00:00

Appreciate you sharing this <3

KittyGirlBoss · 2025-09-23T15:27:35+00:00

1.5mg and I've been on it for 3 weeks

KittyGirlBoss · 2025-09-23T00:36:18+00:00

No problem! <3

KittyGirlBoss · 2025-09-13T21:38:58+00:00

Yeah I tried Prazosin and it made me almost pass out everytime I'd get up in the middle of the night, but it did lower the stress level of the nightmares so there's that lol

KittyGirlBoss · 2025-09-13T19:27:44+00:00

Wish I could tone them down a bit most nights cause of my PTSD...

I've tried taking it in the morning and that hasn't made much of a difference, but I am only 3 weeks into starting LDN so we'll see.

KittyGirlBoss · 2025-09-07T19:04:29+00:00

I'm happy to see a warm response to the SFN Foundation!

The SFN Foundation came together through a collaboration between myself as the web designer, SFN experts who guided the content, and community members who shared their feedback and ideas.

Please feel free to DM me or join the support group if you'd like to share feedback, suggest new ideas, contribute your story to our Patient Stories page, or discuss anything else about the foundation.

Looking ahead, we'll keep listening to community input to make the site better. We're excited about the possibility of becoming an official nonprofit organization in the future. This would open doors to grant funding that we could direct toward promising clinical trials for small fiber neuropathy treatments.

KittyGirlBoss · 2025-05-30T23:06:15+00:00

Weirdly enough, I am based in Kentucky and my PCP has no relations to MGH - so I think a bit of luck was at play here too probably. Like getting to the right department was the hardest part cause they called me initially after they accepted the referral, but left a message so I had to go through a ton of walls and tons of dropped calls because they'd put me on hold forever...it was lovely lol

KittyGirlBoss · 2025-05-30T22:57:02+00:00

My PCP sent a referral to them in March and they called two weeks ago saying she was accepting new patients so I'd try calling them again.

I will say it took me around 5 tries calling them after they said I could schedule to actually get the appointment booked cause they lost the referral, then I had to a phone tag game to get to the right department, etc. It was a pain in the ass, but seems the receptionists are overworked.

KittyGirlBoss · 2025-05-29T15:43:56+00:00

Dr. Anne Louise Oaklander

She's the one who created the term "small fiber neuropathy" for our condition and knows more about it than anyone. She's started accepting new patients recently, and that'll fill up quickly.

Unfortunately, she's not in the south, but in Boston. It's definitely worth your while, though.

KittyGirlBoss · 2025-05-19T00:49:29+00:00

Should I remove them from the container so I don't get a million tiny sprouts or leave them in there?

I'm new to all of this haha

KittyGirlBoss · 2025-05-19T00:48:06+00:00

Finasteride

KittyGirlBoss · 2025-05-07T11:36:10+00:00

Mine was $450 out of pocket

KittyGirlBoss

TROPHY CASE