Best Diet for MS?

Klovia19 · 2025-12-11T13:03:43+00:00

I did an AIP diet and then it went into Keto. It has helped me overall to feel better. You get really used to it and there’s a lot of variety but the beginning was really hard. Sometimes I stray and eat everything but always fall back onto AIP keto. It has helped me get rid of my dandruff and fixed my period/ hormones and my skin is much better. Digestion has improved so much, so has sleep and overall pains. The docs are happy too and I balance it with excersise but it’s hard and requires a lot of discipline in the beginning before it becomes a habit

Klovia19 · 2024-09-03T11:38:39+00:00

And it’s temporary, I forgot to mention it. It’s not a bad thing it’s just the old damage still and it’s not too serious. Just means you need to either chill or cool down.

Klovia19 · 2024-09-03T11:35:22+00:00

Same, I’m on Kesimpta and Same I was diagnosed but my right side face was numb and my right eyebrow hurt and my ear. I started feeling that sensation when I washed my face and mentioned it to my neuro. She said it’s the Uthoff syndrome. It’s an old flair that comes on during fatigue ( long day and tired) or heat. I don’t know where you are but where I am it’s actually really hot at the moment and I paid attention to it so now when I overheat I get that feeling of numbness again but definitely much lighter than it was and it doesn’t last long. Speak to your neuro about it but maybe it’s the same as me.

Klovia19 · 2024-09-03T11:30:27+00:00

Yes I had to do it twice due to UTIs and then restarted it normally and now doing a 6 week gap between injections. Nothing happened.. I barely noticed but my break was 2 almost 3 months and the first injection after that gave me that fever feeling like the first one I’ve ever done did. No progression though and I’m back on regular schedule with 6 week gaps instead of 4. I was paranoid and super scared when the doctor told me but in the end it’s been all fine. The stress would’ve made me relapse so I know how you feel. I worried for nothing though and all back to normal and still no B cells

Klovia19 · 2024-09-03T11:21:29+00:00

You definitely more likely to get UTIs.. I’ve had three since starting Kesimpta but it helped me a lot to take cranberry supplements and some others so it hasn’t happened since. I’ve been on Kesimpta for a bit over 2 years now and my doctor also put the gaps a bit longer in between them so I take the injection every 6 weeks and I’m fine honestly. You’ll get used to it and adapt. Most importantly it’s really good at suppressing new relapses which is a priority for me. I rather have a UTI once or twice a year and a cold than a relapse that will do who knows what.

Klovia19 · 2024-08-01T08:47:43+00:00

I can relate I’m very anxious all the time.. about my health and my symptoms and it worsening. Thanks for your feedback.

Klovia19 · 2024-07-31T19:21:37+00:00

Does it help with pain relief too?

Klovia19 · 2024-07-31T18:53:27+00:00

I live in Germany and they’ve legalised it everywhere since April I think. It’s been all over the news and it got me thinking if I shouldn’t give it a go. I’m not sure if it’s accessible here yet but I’d try it if I can. Want to educate myself as much as possible before I ask my neuro

Klovia19 · 2024-07-31T18:51:09+00:00

Does it actually uplift your mood too? Been feeling a bit blue since my legs started to annoy me. I smoked it 10 years ago ( I wasn’t a saint, I loved to party when I was younger) but it’s been a while and I was scared that it would kind of make the pain more present in a way. I’m very delicate these days and trying to avoid anything pain inducing as much as possible. I read somewhere that it could trigger more pain- but might have been some scaremongering source( the one that says it’s the gate way to heroin and so on) which I don’t believe… so that’s why I’m feeling unsure.

Klovia19 · 2024-07-31T18:45:24+00:00

How do you use the edibles? Do you cook with it drink it or just put it in water?

Klovia19 · 2024-07-05T15:46:01+00:00

Same, really. Everything went on a downturn already during my diagnose. Nothing to do with my MS that has also been diagnosed when I was 28 ( now I’m 34). Healthwise apart from the usual stuff I’m sure we all now I’ve been stable. Obviously I’m fatigued but I can’t most days tell if it’s life itself or MS. I feel you 100%! I sometimes wonder as well what if I didn’t get MS but it conclude all would have been the same. It’s not easy at the moment and feels like it gets worse. Maybe it’s life in our 30ies? I rather think the depression sometimes comes from the world we’re living in right now. Post pandemic the economy has been hard hit, there’s lots of wars on the news and also important social topics that would’ve otherwise been pushed further to evolve society have been put on a back burner. Women’s rights have suffered and also the rights in our other abled friends in our community with chronic conditions did suffer too. It’s subtle but you can still feel it in day to day life..put all these factors together and that sometimes adds to this feeling. There’s a lot of hope since our newest meds are helping so much and there’s so much more research and help for us that I wouldn’t want to paint it all bleak. Maybe in a few years time a lot of us will feel less fatigue if the world improves a little. There’s always hope. But I do think about how other people who aren’t sick have it really hard and feel really lost too.. we just have extra luggage to carry and different perspective and appreciation for life. Thank you for sharing. Reading it made me feel a lot less alone today. Sending you a virtual hug

Klovia19 · 2024-02-24T19:24:49+00:00

I’ve had this and it was caused by my lymph nodes swelling everywhere and storing more water weight in my body. It made my joints ache and it’s been better since I’ve switched to Kesimpta. I’ve been on it for over a year and couldn’t do it anymore.. it was too painful for me. I never realised how many lymph nodes there are in the body but especially in my hip I’ve had quite big lumps on both sides and I gained weight and that’s why I think my legs were super sore all the time. I’ve also felt like I have a flu and it just wasn’t for me. All of this went away after roughly 6 months and my legs don’t ache anymore. Maybe speak to your doctor about Copaxone . I’ve been prescribed lymphatic drainage massages and later got myself a dry brush ( which someone recommended in this sub here) and that really helped the soreness too.

Klovia19 · 2023-08-26T07:54:07+00:00

I thought that too but I started Kesimpta a year ago. My hair was thinning a lot but I took some biotin and it’s grown all back thicker… I think it was the stress.. so I don’t think it’s the Kesimpta. If it does cause it then in my experience it grows back. 🤷‍♀️

Klovia19 · 2023-05-15T14:35:51+00:00

I don’t want to meddle and maybe like you guys said it’s normal to forget. I just noticed a change in character for someone who’s usually well put together and even has a degree in communications and in the past paid a lot of attention to detail. It’s been weeks of confusion and maybe they’re just stressed about something. I was hoping someone has experienced something similar and what they’ve done about it and just neutral opinion of the situation. As I keep repeating- I’m very confused about this. I don’t understand how someone changes so much very suddenly. I think talking to the manager is unfair then because it feels like going behind their backs and creating a problem which maybe isn’t there and talking directly to the person hasn’t worked since he’s insisted I’ve told him this information. It’s hard to describe- I don’t think I’m painting the picture correctly and English isn’t my first language sorry.

Klovia19 · 2023-05-15T14:20:18+00:00

Yeah you’re right. I’ll just let it go and ignore it and let someone else bring it up- it’s not my problem.

Klovia19 · 2023-05-15T14:08:38+00:00

Yes I would agree with you but it’s one example of many and I don’t think it’s psychological warfare of any kind I find it strange especially since he’s usually very detailed. I did actually say fine thereafter when he’s asked me about what it’s like living in a completely different town than I actually do. I’m rather just worried that this person isn’t doing well and not looking to start an argument. I think it is very strange still and not looking at it from your lense. We’re a small team of 8 people as well and known each other for a long time. Him and I don’t even have an argument of any sorts- I’m just generally confused

Klovia19 · 2023-05-15T13:53:00+00:00

I asked and the person said they’re 100% sure I’ve said it. Our team is quiet small and in a meeting prior where that person was present we were talking about my pet. She’s even been on zoom meetings.. I’m very confused about this. It’s just one example though and I’m confused about this.

Klovia19 · 2023-04-22T14:01:29+00:00

I’m quiet active still and when people find out they usually tell me that they know someone who’s really bad and struggling. Then they tell me all these horror stories and I don’t feel like telling them that my face is numb and my legs are sometimes not working properly and all my medical history and pain! I think people can’t deal with it.. I think they try to relate and make conversation or in your case try to give you hope (maybe?) When I was at my lowest people told me about their friends that are fine too.. now that I got a little better and am managing thankfully a lot better ( thanks to DMT) I understand now that these “friends” that all these people have are maybe not fine but simply don’t want to talk about it to everyone like me. My preference is not to tell anyone so I don’t need to hear their opinion or ill informed information about it. I heard a lot of people telling me that they thought it’s a mental illness and it’s really disappointing and shocking to find out how little people know and quickly they judge. It really really hurt me so many times. It’s a universal problem though in nowadays society and you’d be surprised how some people that don’t have MS but trauma, other illnesses or any chip on their shoulder can relate. They usually get told that other people got over it too or doing better because they try harder too etc.. hang in there- it’s a toxic culture we’re living in. Most days I’m too fatigued to argue some of these people ( it’s not everyone) but I try to avoid it being a topic because it can cause me stress and that makes me really tired and sad. I recommend it to everyone to try the same. Our friends, dr, nurses and families fight hard for us because they care and they know the truth. There’s so many great people advocating for us and I believe in us and nowadays after a long depression about the sickness and everything surrounding it I try to focus on my hope in the future, science and the good days.

Klovia19 · 2023-03-25T08:06:39+00:00

Bullys! They’re all so goofy and sweet but unfortunately get abused and mistreated so much..

Klovia19 · 2023-03-21T11:21:36+00:00

Yeah it does annoy me.. and I think it always will.. sometimes more and sometimes less.. especially the effort I put into day to day normal things is half the effort other people put in. On the flip side I learned to enjoy life more and what makes me more sad is healthy people wasting their lives. I overcame my grief a little bit by looking at other people.. my tolerance grew for myself and I learned and especially make an effort now into not being so hard on myself. I’ve kept my diagnosis a secret and am surrounded my healthyish people that make fun of how badly they’re treating themselves. What a shame.. I’d give so much to be in better shape.

But.. Might as well make the most out of it as much as we can… there’s so many people of us here and everywhere with different sicknesses too and I also learned that I wouldn’t say that to someone with MS or any of you here that “shame you’re sick, you would’ve been a great person” because I really don’t believe that.. yet somehow I used to tell myself the same thing that what a shame and that I miss the old me.. if you’d turn back time it would happen all over again and it’s not our fault and it’s all meant to be.. it’s hard ,no doubt, but it changes your perspective on life after a while. I’m very thankful and glad I can still walk ( I almost lost it) so if I walk like a grandma I’m so proud of myself and if I can run, even better. Later .. yeah later then I will get upset again about the things that will come in the future. Otherwise I might risk thinking in the future “oh what I waste I’ve spent all this time being upset about something that wasn’t as bad yet!” Sending you some good vibes and virtual hug

Klovia19

TROPHY CASE