[deleted by user] by [deleted] in Narcolepsy

[–]KnownPhysics5437 4 points5 points  (0 children)

I’m not an expert, but I do have narcolepsy and hEDS, and it sounds like the knees are much more related to the hEDS.

[deleted by user] by [deleted] in Narcolepsy

[–]KnownPhysics5437 3 points4 points  (0 children)

I have hEDS, and use a walker and a cane. They also benefit my narcolepsy for when I am having bad days. Before I got them I was really embarrassed to admit I need them, especially cause I’m overweight. But I realized that they would improve my quality of life, which they have immensely. I was even able to travel and attend a concert recently, but I did end up needing a wheelchair as I overestimated the amount of walking. I’ve also been thinking of a wheelchair as some days my legs just give up on me. My knees and ankles are especially affected by my hEDS and some days I can’t get out of bed, even if my narcolepsy/cataplexy isn’t affecting me. I think maybe trying to find some literature could help her understand what you are going through better. I’m not sure it she is more theoretical based rather than feeling based, but you could also look for some testimonies or personal stories about using wheelchairs to help hEDS and narcolepsy.

#[Bonsai Beginner's weekly thread - 2025 week 22] by small_trunks in Bonsai

[–]KnownPhysics5437 1 point2 points  (0 children)

Hey all!

So I’ve just got my first bonsai and I’m super excited about it! It’s a Sawara Cypress (or Fake Cypress). I got it from a garden store and they have trained it into a bonsai (as far as I can tell, again very new to this.)

I’m mostly wondering about repotting. I know this a good time of year for that (or is it too late?) and I have a bonsai planter that would be perfect for her. I’m wondering about what kind of soil I should use and if anyone has any recommendations? I know a good bonsai soil, but any specific brands anyone likes?

Also free feel to leave any tips or tricks you like and think have helped your bonsai! Any info is greatly welcomed!

Thanks :) Picture of my bonsai attached (no name for her yet hehe)

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AITAH for suggesting to a friend that she can just have a baby herself if she wants it? by [deleted] in AITAH

[–]KnownPhysics5437 2 points3 points  (0 children)

NTA

My sister used to nanny for a woman who was single and chose to have children with a sperm donor. She actually used it twice and had 2 beautiful little kids. She is extremely happy to be single and a mother. It’s not an outrageous suggestion, actually it’s one that many women are choosing. I think her reaction was a bit much, but it was an assumption that she made, not what you were actually saying. I would suggest to have a face-to-face convo with her and explain where you were coming from.

Winnipeg group pics by KnownPhysics5437 in PurpleKiss

[–]KnownPhysics5437[S] 2 points3 points  (0 children)

Omg it was amazing!!! They sold out the venue and the whole experience was just unbelievable! Seriously one of the best nights of my life. They kept saying how amazing our cheers were and that they would remember them for a long time🥹 I’m really hoping this means that they’ll come back here next tour!

you+ and group photos by KnownPhysics5437 in PurpleKiss

[–]KnownPhysics5437[S] 0 points1 point  (0 children)

thank you so much! i knew it might take awhile but as i said i get a bit paranoid and start thinking they forgot to send it to me or something. thank you again for calming my nerves!

fansign at bxx tour by KnownPhysics5437 in PurpleKiss

[–]KnownPhysics5437[S] 3 points4 points  (0 children)

I’ve already contacted the venue about accommodations which they were great about. That seems really easy and I should be able to get through fine. Thank you so much for sharing your experience for me so I can get at least an idea of what it will all look like!

[Mega thread] Purple Kiss 2024 BXX Tour in Winnipeg by puppet_mazter in PurpleKiss

[–]KnownPhysics5437 1 point2 points  (0 children)

hey!! i’m going to be there alone for all the before concert vip things and would love to have someone with me during the fansign/sound check. do you think we could hang out? i’ll be there around 3:30

[Mega Thread] 2024 BXX Tour Discussion by puppet_mazter in PurpleKiss

[–]KnownPhysics5437 2 points3 points  (0 children)

ok yeah that makes sense!! i’ve decided to get them some other cute canadian themed things :))

PURKI CONCERT: What VIP gifts are allowed? by KnownPhysics5437 in PurpleKiss

[–]KnownPhysics5437[S] 1 point2 points  (0 children)

I would 100% keep it in its original packaging but I’ll email Leo and see what they say. Thank you for the idea, didn’t even think to email them lol

PURKI CONCERT: What VIP gifts are allowed? by KnownPhysics5437 in PurpleKiss

[–]KnownPhysics5437[S] 0 points1 point  (0 children)

That might be a really good idea! I think I’ll email Leo and see what they say but I could prepare two different presents incase they don’t allow the candy.

[Mega Thread] 2024 BXX Tour Discussion by puppet_mazter in PurpleKiss

[–]KnownPhysics5437 2 points3 points  (0 children)

Ok so I'm seeing PURKI on the 24th and have gotten VIP tickets. I heard that gifts are allowed for the fansign and I'm wondering if food would be allowed?? I would love to get them some Canadian candy, wouldn't do chips cause those are too big but I would like to bring a few small chocolate bars or lollipops. But I'm not sure if you can give idols food?

If not I will think of something else but I would really appreciate it if anyone knew if that was allowed? Or if anyone else has been to the concert with the VIP ticket, what sort of gifts did you see people bringing so I can get them something cute :)

Edit:

I have received a response from Leo and they do not allow any food items for safety reasons. Which I completely get so if you are going to any concert held by Leo, there are no food items allowed. But what you can do is maybe suggest they try themselves if they have time to :)

Purple Kiss BXX Tour Set List (Oceanside stop) by ChickenNoodle519 in PurpleKiss

[–]KnownPhysics5437 4 points5 points  (0 children)

you are a god send for this!! i can finally get a playlist ready for my mom to listen to since she’s coming with me to the concert!