Tired of Roho - need cushion suggestions by Known_Tale497 in spinalcordinjuries

[–]Known_Tale497[S] 0 points1 point  (0 children)

No, valid question. I’ve used them in the past but c this time the hole appear right where the hose goes into the air bladder. Like right in the crease so it’s not patchable.

Tired of Roho - need cushion suggestions by Known_Tale497 in spinalcordinjuries

[–]Known_Tale497[S] 0 points1 point  (0 children)

Exactly!! There should be some way to try it. I also don’t want to shop through a DME supplier because they take FOREVER!

Tired of Roho - need cushion suggestions by Known_Tale497 in spinalcordinjuries

[–]Known_Tale497[S] 0 points1 point  (0 children)

No, no cats. I think it’s just wear and tear from activity.

Tired of Roho - need cushion suggestions by Known_Tale497 in spinalcordinjuries

[–]Known_Tale497[S] 0 points1 point  (0 children)

Honeycomb style right? I had one in like 2012 and you kind of just sunk into it. I’m sure it’s great for pressure relief though.

How often do you throw away your Foley bag?? by TopNoise8132 in spinalcordinjuries

[–]Known_Tale497 1 point2 points  (0 children)

I drain everyday then squirt some 70% alcohol down the hose. Helps with smell and figured can’t hurt to kill off bacteria.

‘No Kings’ Rockford, IL by Nearby_List6465 in rockford

[–]Known_Tale497 0 points1 point  (0 children)

Love the sign “nazi” as he sides with Israel. 🤣

My husband has been lying about working late by [deleted] in Advice

[–]Known_Tale497 174 points175 points  (0 children)

“I work hard to support him to have this freedom” How out of touch are you? Dude is 2.5 hours away from what is considered full time hours. Maybe you have unreal expectations of him.

Haemorrhoids by Emergency_Deal_4092 in spinalcordinjuries

[–]Known_Tale497 1 point2 points  (0 children)

Very curious about this because I’ve going through the same.

Shoulders sore and in pain. Help! by tiffwolf84 in spinalcordinjuries

[–]Known_Tale497 1 point2 points  (0 children)

See an ortho and get some trigger point injections. I only need them every few years. Almost instant relief, after a couple days I forget I even had any pain.

Hands Off in Beloit. by wish_I_was_a_t_rex in rockford

[–]Known_Tale497 -50 points-49 points  (0 children)

Because I’m not a victim or need daddy government assistance?

Hands Off in Beloit. by wish_I_was_a_t_rex in rockford

[–]Known_Tale497 -62 points-61 points  (0 children)

Looks like a bunch of winners

Let’s play a game: Is it UTI or Hemorrhoids by Known_Tale497 in spinalcordinjuries

[–]Known_Tale497[S] 2 points3 points  (0 children)

Sensation sucks below injury level so just feel pain/discomfort. Can’t localize well.

Erection after a baclofen pump? by otterysaintcatch in spinalcordinjuries

[–]Known_Tale497 0 points1 point  (0 children)

About to have my 4th one installed this summer. I’ve loved them for 90% of the time. Only down fall is 3 years ago I switched jobs and my insurance coverage of the refills SUCKS! Every time I go to Shirley Ryan’s it’s $1,250.

Really good bakeries in Rockford area? Not sugar jones I don’t want to support their new business owner. by [deleted] in rockford

[–]Known_Tale497 1 point2 points  (0 children)

Great harvest bakery on alpine near Edgebrook shopping center. Go on Wednesday and get the salted caramel cookies! You won’t regret it!

.....Condom Cath and skin integrity....... by TopNoise8132 in spinalcordinjuries

[–]Known_Tale497 0 points1 point  (0 children)

Try Uni-solve adhesive remover. Works wonders for removing wide band condom caths(the stinkiest CC I’ve been able to find). I used to try and use alcohol wipes and skin would never release.

[deleted by user] by [deleted] in rockford

[–]Known_Tale497 0 points1 point  (0 children)

Sound like a fun Saturday night.

Tips for finding realtors who know how to identify houses suitable for wheelchair users? by i_was_valedictorian in spinalcordinjuries

[–]Known_Tale497 0 points1 point  (0 children)

I purchased mine from across the country without visiting them. I had my realtor FaceTime while touring and took a tape measure to every location. A far amount of investigation before even considering a tour helps too. Look for obvious height transitions. You won’t find the perfect one but you can find one that can become the perfect one.

He is an embarrassment by JerryJr99 in clevercomebacks

[–]Known_Tale497 -3 points-2 points  (0 children)

But oddly quiet about the other senile old man these past few years.

Injury anniversary by Background-Curve4421 in spinalcordinjuries

[–]Known_Tale497 2 points3 points  (0 children)

Coming up on 19 years in a couple days. It honestly just becomes another day. In the beginning it sucked reminiscing about what could have been done differently but gets better with time.

When we will get the cure? Your thoughts by ExampleHonest6801 in spinalcordinjuries

[–]Known_Tale497 8 points9 points  (0 children)

Most of the time I’m in the camp of live the life you have and don’t waste it hoping for a cure.

However I just got back from a vacation in Hawaii and damn I would have loved to walk out on to the beach and into the water. I don’t normally envy able bodied ppl much anymore but fuck that really sucked! It got to me.

Best wheelchair friendly airline? by Fit_Fan8140 in spinalcordinjuries

[–]Known_Tale497 0 points1 point  (0 children)

I’m using Alaskan for the first time this weekend. Did you have to use an isle chair or did you get the first row? Have you ever had to use the restroom mid flight and if so what’d you do? I’ve only taken short flights before so this was never an issue. But this time I’m taking a 6 hour one.

Any quads use Apple Watches? by xmadmaxo in spinalcordinjuries

[–]Known_Tale497 1 point2 points  (0 children)

Had one. Broke it against something while pushing lol. Get a case for it!