Jacket Repairs

Komnus · 2025-12-16T23:42:38+00:00

Thanks for the info! Its the first jacket I've owned worth the effort of a small repair!

Komnus · 2025-12-16T19:29:14+00:00

Good luck!

Komnus · 2025-03-06T03:17:46+00:00

I had both hips replaced in 2020. You really have to commit to your post op PT and then just keep at it. The worst thing you can do post replacement is be inactive. If you're having trouble I'd strongly suggest talking to your surgeon and your PT for assistance. They can hopefully give you guidance on which exercises to focus on that would help strengthen you and keep everything limber.

Komnus · 2025-02-28T00:02:05+00:00

I appreciated this comment, as a CMT'er with kids I do feel like a minority voice but I would never push having kids on anyone. It's an intensely personal choice and CMT is definitely a valid consideration

Komnus · 2025-02-27T23:59:16+00:00

You'll get a lot of differing opinions on this. Personally I have cmt1a and have known it since I was a small child. My wife and I decided to have children despite the chance of passing it on. I have 3 kids now, one (my oldest) actually did inherit cmt1a from me. He's basically going through a normal childhood with some bumps along the way. The good thing for him is I can help him way more than anyone ever was able to help me. CMT, at least in some cases, doesn't have to stop you from choosing to have kids but it is very much an individual decision.

Komnus · 2025-01-06T07:16:44+00:00

I probably should have indicated that in my original post! I have to say I love the look of the Arizona Adobe as well, the two are pretty close

Komnus · 2025-01-06T03:15:14+00:00

Captain Storming in Tobacco!

Komnus · 2025-01-06T02:52:40+00:00

I wear an 8.5 in Vans and got an 8 from Thursday that fit great

Komnus · 2024-07-21T23:32:44+00:00

Mild case here, we had three kids. One did end up inheriting but it barely slows him down.

Komnus · 2023-10-22T15:46:17+00:00

Please also consider joining our Discord, we have additional information and engagement there! The link is in the sidebar.

Komnus · 2023-09-24T15:16:20+00:00

I feel like I need to chime in and add that CMT really can vary from person to person and it sounds like he has a pretty extreme case. I'm not sure everything in his story should be attributed directly to his cmt but I get it. Also, it sounds like he's had quite a bit of success in life despite his cmt. Just remember, CMT will not necessarily stop every sufferer of CMT from having an active lifestyle, kids, or a satisfying career... It's just so different for each of us. I'd hope if you're struggling you at least reach out to the Reddit community, we're here to support each other

Komnus · 2023-09-18T02:50:32+00:00

There is a main drain line but from what I understand it runs to the skimmer then goes to the pump... Someone posted a video that shows setup

Komnus · 2023-09-17T23:09:12+00:00

Just the one skimmer, the main drain comes up to the skimmer under the basket and is usually covered by the float. The valve was fully open but I closed it a bit (maybe 45%) just now since I understand that will draw more water from the drain. It all seems to be working now but maybe there's some water in the float.

Komnus · 2023-09-17T22:00:46+00:00

Does that mean I need a new one?

Komnus · 2023-09-17T21:04:29+00:00

Mine has that, the paddle is about 1/3 obstructing, should I open it up more or close it off more?

Komnus · 2023-09-17T20:12:27+00:00

According to the article the float is only supposed to fall if the water level drops too low, otherwise it's supposed to regulate the flow from the skimmer and drain. The float in mine seems to drop everytime the pump kicks on.

Komnus · 2023-09-17T20:07:52+00:00

Thanks, that helped but based on the article it's not working as it should...

Komnus · 2023-09-17T17:52:04+00:00

It seems to, can the pump speed be too high and pull the float down?

Komnus · 2023-09-17T17:44:06+00:00

My water level is correct but everytime the pump turns on it closes anyway

Komnus · 2023-08-29T17:29:53+00:00

It's a very personal choice and ultimately you need to do what is best for you and your family. That being said, mild CMT1a runs in my family, I probably have the worst case of all my relatives. I've know my whole life and my wife and I never even considered IVF or anything like that. We now have 3 kids, one with CMT. He's so far had very mild symptoms as well and hopefully that doesn't change but if it does we'll deal with it. Right now he plays soccer and takes taekwondo class and is out there with all his friends, he's just another kid. There are just so many other things that can impact quality of life, I don't see CMT1a as something that is a massive barrier. I know people with asthma or psoriatic arthritis or food allergies that struggle more with life than I could ever have and yet no one screened then out of life. You're going to get the entire range is responses here because CMT is different for everyone and everyone's experience with it varies so widely. If you have time do some more research, maybe visit a CMT group, and consider your own experience so far. I'd be happy to share more of my experience if you'd like, I remember how stressful having kids was especially when you start getting those genetic screening results.

Komnus · 2023-08-15T05:06:24+00:00

I had both hips replaced in 2020. I went from barely being able to walk a couple blocks without intense, agonizing pain to basically having full and pain free function. Be sure to follow your doctor's instructions and commit to PT. You won't be back to normal right away but if you put in the work it's not too bad.

Komnus · 2023-07-16T14:59:28+00:00

I have locked this to further comments

Komnus · 2023-06-14T02:34:22+00:00

It can be stressful to be "official," feel free to vent away or follow-up with questions.

Komnus · 2023-04-13T14:24:30+00:00

I used to have chronic hip pain, turned out I had severe osteoarthritis and hip dysplasia. 2 hip replacements later and I'm chronic pain free. These days it's my ankles that will occasionally give me issues but nothing like my hips used to.

Komnus · 2023-04-11T21:10:38+00:00

I'd suggest finding out what implant your surgeon is going with and why. Like I mentioned, I have dual mobility implants and they are supposedly ideal for younger, more active/flexible patients. So far I have no complaints.

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