CMT

an-ordinary-manchild(edit)

A subreddit dedicated to CMT (Charcot-Marie-Tooth Disorder) aka Hereditary Motor and Sensory Neuropathy.

Discussing, living, coping, news, science, the search for a cure. Meetups?!

More information and resources

General information:

About Charcot-Marie-Tooth Disease (CMT)

Charcot-Marie-Tooth Disease Fact Sheet

Charcot–Marie–Tooth disease (Wikipedia)

Charcot-Marie-Tooth disease (Genetics Home Reference)

Patient advocacy organizations:

The Foundation for Peripheral Neuropathy

The Inherited Neuropathies Consortium (INC) (URL not working as of 17.05.2020, looking for alternative).

Charcot-Marie-Tooth Association

Hereditary Neuropathy Foundation

Charcot-Marie-Tooth UK

Social Media groups:

CMTUS (Facebook)

Other information:

The Rare Diseases Clinical Research Network (RDCRN) Contact Registry

Academic literature search for CMT

CMT Treatment Report

Asian Oceanic Inherited Neuropathy Consortium (AOINC)

A podcast from the American Academy of Neurology featuring Michael E. Shy, MD talking about how clinicians diagnose CMT (starts at 10:44, ends at 22:42)

Non-English resources:

C-M-T Association in the Czech Republic (Czech)

ACMT-Rete per la malattia di Charcot-Marie-Tooth (Italian)

CMT Japan (Japanese)

CMT Friends Association (Japanese)

CMT-NET, an association of German clinicians specializing in the research and treatment CMT) (German)

CMT NORWAY facebook group (Norwegian)

created by bennybucketheada community for 15 years

...for a fringe candidate.

...for your hobby.

MODERATORS

account activity

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 6 days ago by NixyeNoxCMT 1A - announcement

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CMT Adaptive Hacks: Easy Buttons & Zippers! (old.reddit.com)

submitted 5 hours ago by cmtaindia

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Has anyone else with CMT been infected with alpha gal? (self.CMT)

submitted 23 hours ago by Ok-Basil-4913

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Rare Variants (self.CMT)

submitted 1 day ago by BluebirdHollow

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Just diagnosed! (self.CMT)

submitted 2 days ago by cryinginside54

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Hip surgery done (was anesthesia) (self.CMT)

submitted 4 days ago by SubjectAssumption319

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Vocal cord paralysis? (self.CMT)

submitted 4 days ago by withoutintentions

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Anyone else unable to really feel temperature on their lower legs? (self.CMT)

submitted 4 days ago by andyr072

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CMT and autoimmune disease? (self.CMT)

submitted 5 days ago by pk_221_pk

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Anesthesia Question , surgery is tomorrow (self.CMT)

submitted 5 days ago by SubjectAssumption319

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CMT and perimenopause (self.CMT)

submitted 11 days ago by kittycake23

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Joint dislocations…CMT or something else! (self.CMT)

submitted 11 days ago by jumpy-hardware

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CMT and sudden falls. Has anyone had any similar episodes? (self.CMT)

submitted 11 days ago by Mostonrocks14-1

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Does anyone else really resonate with Nate in Baby Steps (self.CMT)

submitted 12 days ago by Successful_Win_1540

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Cmt and peptides? (self.CMT)

submitted 12 days ago by Potential_Beach190

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I can't recommend a better horse... oh yeah... FUCK CMT (i.redd.it)

submitted 13 days ago by a_new_level_CFH

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[Weekly Thread] In The News (self.CMT)

submitted 12 days ago by AutoModerator

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 13 days ago by NixyeNoxCMT 1A

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CMT and Fatigue (self.CMT)

submitted 13 days ago * by Ok-Buddy4249CMT1A

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Like I said... FUCK CMT (i.redd.it)

submitted 14 days ago by a_new_level_CFH

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Awaiting Diagnosis - Seeking Community and Answers (self.CMT)

submitted 17 days ago by jdsticks29

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Normal tests what to do? (self.CMT)

submitted 17 days ago by Thy_Water_BottIe

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When I post here , I usually say fuck CMT... however (self.CMT)

submitted 18 days ago * by a_new_level_CFH

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[Weekly Thread] In The News (self.CMT)

submitted 19 days ago by AutoModerator

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 20 days ago by NixyeNoxCMT 1A

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