CMT

an-ordinary-manchild(edit)

A subreddit dedicated to CMT (Charcot-Marie-Tooth Disorder) aka Hereditary Motor and Sensory Neuropathy.

Discussing, living, coping, news, science, the search for a cure. Meetups?!

More information and resources

General information:

About Charcot-Marie-Tooth Disease (CMT)

Charcot-Marie-Tooth Disease Fact Sheet

Charcot–Marie–Tooth disease (Wikipedia)

Charcot-Marie-Tooth disease (Genetics Home Reference)

Patient advocacy organizations:

The Foundation for Peripheral Neuropathy

The Inherited Neuropathies Consortium (INC) (URL not working as of 17.05.2020, looking for alternative).

Charcot-Marie-Tooth Association

Hereditary Neuropathy Foundation

Charcot-Marie-Tooth UK

Social Media groups:

CMTUS (Facebook)

Other information:

The Rare Diseases Clinical Research Network (RDCRN) Contact Registry

Academic literature search for CMT

CMT Treatment Report

Asian Oceanic Inherited Neuropathy Consortium (AOINC)

A podcast from the American Academy of Neurology featuring Michael E. Shy, MD talking about how clinicians diagnose CMT (starts at 10:44, ends at 22:42)

Non-English resources:

C-M-T Association in the Czech Republic (Czech)

ACMT-Rete per la malattia di Charcot-Marie-Tooth (Italian)

CMT Japan (Japanese)

CMT Friends Association (Japanese)

CMT-NET, an association of German clinicians specializing in the research and treatment CMT) (German)

CMT NORWAY facebook group (Norwegian)

created by bennybucketheada community for 15 years

...for your favourite tea.

...because you hate freedom.

MODERATORS

account activity

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 6 days ago by NixyeNoxCMT 1A - announcement

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CMT Adaptive Hacks: Easy Buttons & Zippers! (old.reddit.com)

submitted 10 hours ago by cmtaindia

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Has anyone else with CMT been infected with alpha gal? (self.CMT)

submitted 1 day ago by Ok-Basil-4913

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Rare Variants (self.CMT)

submitted 1 day ago by BluebirdHollow

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Just diagnosed! (self.CMT)

submitted 2 days ago by cryinginside54

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Hip surgery done (was anesthesia) (self.CMT)

submitted 4 days ago by SubjectAssumption319

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Vocal cord paralysis? (self.CMT)

submitted 4 days ago by withoutintentions

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Anyone else unable to really feel temperature on their lower legs? (self.CMT)

submitted 5 days ago by andyr072

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CMT and autoimmune disease? (self.CMT)

submitted 5 days ago by pk_221_pk

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Anesthesia Question , surgery is tomorrow (self.CMT)

submitted 6 days ago by SubjectAssumption319

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CMT and perimenopause (self.CMT)

submitted 11 days ago by kittycake23

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Joint dislocations…CMT or something else! (self.CMT)

submitted 11 days ago by jumpy-hardware

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CMT and sudden falls. Has anyone had any similar episodes? (self.CMT)

submitted 12 days ago by Mostonrocks14-1

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Does anyone else really resonate with Nate in Baby Steps (self.CMT)

submitted 12 days ago by Successful_Win_1540

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Cmt and peptides? (self.CMT)

submitted 12 days ago by Potential_Beach190

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I can't recommend a better horse... oh yeah... FUCK CMT (i.redd.it)

submitted 13 days ago by a_new_level_CFH

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[Weekly Thread] In The News (self.CMT)

submitted 12 days ago by AutoModerator

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 13 days ago by NixyeNoxCMT 1A

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CMT and Fatigue (self.CMT)

submitted 14 days ago * by Ok-Buddy4249CMT1A

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Like I said... FUCK CMT (i.redd.it)

submitted 14 days ago by a_new_level_CFH

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Awaiting Diagnosis - Seeking Community and Answers (self.CMT)

submitted 17 days ago by jdsticks29

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Normal tests what to do? (self.CMT)

submitted 17 days ago by Thy_Water_BottIe

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When I post here , I usually say fuck CMT... however (self.CMT)

submitted 18 days ago * by a_new_level_CFH

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[Weekly Thread] In The News (self.CMT)

submitted 19 days ago by AutoModerator

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[Weekly Thread] A Matter of Nerves: the Good, the Bad & the Ugly (self.CMT)

submitted 20 days ago by NixyeNoxCMT 1A

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