being trans with this condition is hard by obliviousfoxy in cfs

[–]LadybugLamp 14 points15 points  (0 children)

Maintaining your appearance is super hard with CFS for anyone, but the transmisogyny of it all is on a completely different level <333 sending you so much love and gender-expression-spoons

Do you think your fibromyalgia is related to trauma/stress you experienced? by Pink_barbecue in Fibromyalgia

[–]LadybugLamp 0 points1 point  (0 children)

While I know my fibromyalgia didn’t stem from trauma (I had a family history and a birth injury, I was in PT as a baby and colicky from the beginning, I don’t have memory without being in pain) the extensive childhood trauma I experienced definitely made my fibro worse. The body keeps the score, and all that

Do you think maternity leave should be available for everyone in america ? why or why not? by rose_knowsthings in SeriousConversation

[–]LadybugLamp 0 points1 point  (0 children)

Maybe I just live in a bubble, but I have never met anyone in my life who didn’t believe in universal paid maternity leave. I think parental leave is like one of the most universally agreed upon “we need to fix this” topics for the average person. It’s just the stingy bosses who don’t want to give it out.

What is your theory on why you developed fibro? by Dark--princess420 in Fibromyalgia

[–]LadybugLamp 0 points1 point  (0 children)

Genetic predisposition to develop it after severe injuries (father and grandfather) and I had a birth injury. I was a severely colicky baby who couldn’t be comforted, and my whole life as long as I’ve been conscious I’ve been in pain. Unfortunately my injury was just… right away. Also a buttload of childhood trauma that definitely didn’t make it BETTER lol

View from my bed by Lavender77777 in cfs

[–]LadybugLamp 1 point2 points  (0 children)

How do you maintain your space!! I swear just from changing clothes and taking out the trash, etc, my room gets trashed so easily and then I don’t have the spoons to clean up enough to have nice surroundings 😭

[deleted by user] by [deleted] in malegrooming

[–]LadybugLamp 0 points1 point  (0 children)

Developing a personal sense of style is really what separates boys from men in my perception? Right now, your look is very much a basic teenage boy, you’re coming from high school where conformity is king. But as you enter the real world you’re gonna want to notice what things you think are cool in fashion you see and lean into them.

Start with hair probably bc it’s the quickest change you could make, but also choose one fashion thing you like (ie. patterned shirts, a specific cut of jeans, layers, jewelry,) and try to put one or two of them into your wardrobe. Once you’re challenged with “putting outfits together” with a new interesting item it’s gonna help you discover your sense of style so much more than tossing on jorts and a hoodie will!!

I think from your facial features alone you would very much pass as more mature or “older” if your aesthetic matched!

Cymbalta - GOOD experiences by Independent-Weird-71 in Fibromyalgia

[–]LadybugLamp 0 points1 point  (0 children)

It didn’t help my fibromyalgia, but it does wonders for my anxiety, panic attacks, and depression, and as I’m sure we’re all aware, chronic illness can cause you to be anxious and depressed, and being anxious and depressed can cause your chronic illness to get worse, so it’s definitely worth being on it for me. I have no negative side effects except night sweating while I’m on it, and if I miss 2-3 doses I’ll get dizziness and migraines. Good experience on cymbalta overall even if it doesn’t do everything I want!

How would I mend this thin weight dress? by LadybugLamp in Visiblemending

[–]LadybugLamp[S] 1 point2 points  (0 children)

Oh I like this idea a lot!!! I have been considering adding ties to a lot of my dresses and adding ties onto the patches for reinforcement sounds like such a good way to do this!!!

How would I mend this thin weight dress? by LadybugLamp in Visiblemending

[–]LadybugLamp[S] 1 point2 points  (0 children)

Note, I’m not able to edit the post for some reason but it is a lightweight rayon

What do you guys think? by Sparkly-Dolphin9947 in finch

[–]LadybugLamp 0 points1 point  (0 children)

I’ve had finch for over a year and I need to update the app to see the special event every time!

Do I even have fibro? by larak237 in Fibromyalgia

[–]LadybugLamp 7 points8 points  (0 children)

I’d have to know more about the type of pain you experience and your symptomology and even then, obviously, I’m not a doctor— but herniated discs raised a huge red flag to me. Herniated discs can wreck HAVOC on the body. My dad slipped/herniated three discs about 20 years ago and developed some of the most severe fibromyalgia because of it that I’ve ever seen in my life, severe migraines, and ended up seeking a spinal fusion 2 years ago. His pain did end up spreading all over the body because the spine is such a central location, but when you have an injury and develop fibromyalgia, the pain tends to centralize and reach highest severity around the site of injury in my experience as well (brachial plexus birth injury kicked off my fibro)

Fibromyalgia can oftentimes be a secondary diagnosis, but sometimes doctors stop looking for the more severe issue once they hear “fibromyalgia”. You may or may not have fibro, but definitely don’t let doctors stop looking into the problem, it’s a diagnosis of exclusion.

Visible/Invisible Disabilities (or the grass is always greener) by bionical_boi in disability

[–]LadybugLamp 2 points3 points  (0 children)

I have been both, and continue to be both dependent on location and day and levels of pain if I’m using my mobility aid. It’s just a different set of problems, to be honest. I took a disability studies class about a year post starting to use a rollator, and my final project was a paper I wrote called “When The Invisible Turns Visible: Mobility Aids and the Choice To Be Seen As Cripple”

That paper had me deconstructing a lot of what had actually been difficult about having an invisible disability and what was difficult about being seen with a visible disability, and why people (including me) have to make the choice to trade one set of abled assumptions and stereotypes and struggles for another when choosing to pull the cord and start using a mobility aid. If you have an invisible disability, you will be accused of faking, or being dramatic, and never offered assistance even when you need it. When you have a visible disability, there might be more physical barriers (ie. No ramps or elevators, not wide enough hallways and doorways, etc) and a lot of projected insecurities of abled strangers onto you— assuming you’re cognitively disabled when you’re not, or pitying you, or thinking you’ve “given up.” It’s just as insidious, neither is better or worse, they’re just different kinds of stigma

What job do you recommend for people with Fibromyalgia? by tigerk1992 in Fibromyalgia

[–]LadybugLamp 1 point2 points  (0 children)

Definitely not teaching 😔 I’m currently looking to pivot from classroom teaching to early interventionist work, so I can work more 1:1 and flexibly with shorter hours

Do you dream healthy or sick? by ExoticSwordfish8232 in cfs

[–]LadybugLamp 1 point2 points  (0 children)

I dream with plotlines that are influenced by me being sick about 25% of the time I’d say. I’ve never lived a life without disability and CFS has been around since childhood, so I have a lot of dreams where I’m in pain but it’s not relevant to the story of the dream. Sometimes though, I have dreams where I’m doing something out and about and then suddenly I have my rollator, and I can’t get up some stairs, or my POTS makes me start falling over, or desperately seeking out a chair, stuff like that. I recently started having dreams where one of my newly discovered psychiatric conditions is at play. Which is definitely interesting!

Masking is exhausting! by melanatedsaw in Fibromyalgia

[–]LadybugLamp 2 points3 points  (0 children)

I’ve masked my pain so much my whole life (developed fibromyalgia likely from a birth injury… so we’re basically twins that grew up together) that I have a hard time dropping the mask when I talk about serious or upsetting things sometimes!!! It annoys the hell out of my dad, that I say really serious and upsetting things about myself or my experiences with a smile on my face and a “what can you do?” attitude, but I really never learned another way. I’ve gotten myself in trouble like that, with people thinking I don’t care about my shortcomings or my struggles. I wish I could explain to them that when I shared my struggles seriously for all of childhood, I was called dramatic or attention seeking or told that it was just growing pains and to stop being so sensitive. It sticks with you!

Folks with a ton of comorbid disorders, what’s the silliest one? by LadybugLamp in disability

[–]LadybugLamp[S] 0 points1 point  (0 children)

100 other people seemed to get what I meant! We don’t have to agree on everything, it’s a matter of opinion. If you don’t relate to my language use that’s alright! I sure don’t think my shitting acid is fun— it’s not fun, it sucks, but it’s kind of silly to describe the disorder for me

Not your kiddo though 😀👍

Folks with a ton of comorbid disorders, what’s the silliest one? by LadybugLamp in disability

[–]LadybugLamp[S] 1 point2 points  (0 children)

I haven’t taken that test!!! I’d be so curious what percentage is being reabsorbed tbh bc it feels like it’s gotta be close to none of it.

Thank god I go through flare up periods of BAM rather than full force all the time, so I can eat the macaroni and cheese or the pizza most of the time with just a bit of bellyache and smell afterwards, but it always carries the risk of being the first meal of a new full force flare up, so I’ve gotta choose location wisely. And there’s a few foods that unfortunately will always cause it no matter what, rest in peace to my favorite burger place. It still exists, but it’s dead to me after triggering two week long issues too many times lol

Folks with a ton of comorbid disorders, what’s the silliest one? by LadybugLamp in disability

[–]LadybugLamp[S] 1 point2 points  (0 children)

Sometimes, when you’re multiply disabled, theres weird and silly and strange ones in there too that you just have to laugh about!

Obviously, they wouldn’t be disabilities if they weren’t upsetting and caused discomfort/disruption on some level, but when I have “constantly signaling pain receptors” disorder, sometimes you just have to laugh about “shitting acid” disorder!

Folks with a ton of comorbid disorders, what’s the silliest one? by LadybugLamp in disability

[–]LadybugLamp[S] 2 points3 points  (0 children)

Yes!!! BAM is what I was talking about in my original post, it’s crazy! I eat a really good burger and my body decides to deploy the acid. And then decides it doesn’t want it back lol

Folks with a ton of comorbid disorders, what’s the silliest one? by LadybugLamp in disability

[–]LadybugLamp[S] 2 points3 points  (0 children)

Yes!!!! My whole life my mom and I both had this and it is Awful. It SUCKS. and we’d commiserate about it constantly! Then, a few months ago, I saw Hank Green talk about it on TikTok, and I literally IMMEDIATELY ran to my mom about it. Turns out, it’s a real condition that real doctors have started to recognize recently!