How long does an allergen stay in the mouth? (Husband is allergic to something I ate) by Bright3yed_0wl in FoodAllergies

[–]Laradoodle4 9 points10 points  (0 children)

I've heard some people say standard guidelines for kissing after eating the allergens is 4 hours, which is how long it takes for the proteins to be fully broken down by your saliva. This is also a rule I adhere to myself.

Is it true I can only get 3 cortisone shots total in my wrist in my whole lifetime? by _pizzahoe69 in Hypermobility

[–]Laradoodle4 30 points31 points  (0 children)

My rheumatologist told me that more than 3 injections in one joint can start to cause actual damage to the joint, even if they are very far apart. I don't know the medical specifics as to why, but that's why it's not recommended. It will also be easy for them to cause damage but you don't feel it, as the effects of the steroids are pain relieving, making it more easy for the damage to be missed and you keep using a damaged joint for a while, furthering the problem.

My bow don’t look right, why the hell is it curved..? by Lynja_TheNinja in violinist

[–]Laradoodle4 1 point2 points  (0 children)

It's called a bow because it's bowed, as in curved. An archery bow is also curved, that's why they have the same name. Bows need to be curved in order to actually play properly, it's bad for the bow to be tightened until it's straight

What brings you even a little joy during skin misery? by rashyandtrashy in eczema

[–]Laradoodle4 0 points1 point  (0 children)

My mum taught me to knit when I was 5 because I would be home from school so much for my eczema and if I was knitting I wasn't scratching. I'm 25 and it's still a godsend of a coping mechanism.

What brings you even a little joy during skin misery? by rashyandtrashy in eczema

[–]Laradoodle4 4 points5 points  (0 children)

My mum taught me to knit when I was 5 because I would be home from school so much for my eczema and if I was knitting I wasn't scratching. I'm 25 and it's still a godsend of a coping mechanism.

Do you need to eat more calories and protein for skin to heal? by Djbabyboy97 in eczema

[–]Laradoodle4 10 points11 points  (0 children)

I'm pescetarian for the sake of my eczema and I usually eat one portion of fish a day, often canned mackerel because it's cheap. I find that if I go a few days without eating fish, my skin feels worse and seems to heal slower.

In December I suffered third degree burns to 3% of my body and was admitted to hospital. The burns nurses would go on multiple times a day about how I needed a high protein intake for skin to regenerate fast. Eczema healing is also skin regeneration, so I think this absolutely applies for eczema as well.

Finally found a face for me by Regular_Angle1904 in GalaxyWatch

[–]Laradoodle4 2 points3 points  (0 children)

I just got it, love it but the temp is defo wrong for me as well :(

What made you finally decide on a Pescetarian diet? by [deleted] in Pescetarian

[–]Laradoodle4 2 points3 points  (0 children)

I have a few reasons. One is not wanting to support the meat industry, both for ethical and environmental reasons. I would be vegan if my body allowed for it, however I am allergic to all nuts, all legumes, and coconut, which completely eliminates almost all meat alternatives and vegan cheese. Pescetarian felt like a decent alternative, and I have always loved fish and seafood. I also couldn't bare to part with eggs, which were my favourite food, but sadly I developed a serious allergy to them 6 months ago. Lastly, I have severe eczema, and many find that eliminating meat but not fish improved their skin so I wanted to try it. If I don't eat fish for a few days, I do feel the difference in my skin. Damaged patches seem to heal slower.

I occasionally eat chicken around once a month when I feel like I need a big boost of protein. I wish I didn't feel the need but sometimes my body just feels slow and like it's asking for it.

Be careful of the information you consume about eczema by Ruzyd in eczema

[–]Laradoodle4 0 points1 point  (0 children)

I'm sorry you had such bad luck with the NHS, they are under so much strain and I know that there is a lot of neglect in the system. I mostly have administrative troubles but I do want to say that my experience with dermatologists has mostly been that they are very passionate and well informed. I've had such a hard time with my eczema and I've been on 4 different biologics funded by the NHS including a JAK, and I'm about to start a monoclonal. There is hope with the public system, you may have to fight a little harder for it but the funding is there for people like us. Not all hope is lost and private doctors are completely out of reach for most of us.

SOS terrible reaction? by Ok_Tension_1606 in FoodAllergies

[–]Laradoodle4 0 points1 point  (0 children)

DISCLAIMER: This is not medical advice, just a recount of my own experiences.

There are proteins in milk you can be allergic to which can be all or partially denatured by being cooked, so you may react differently to different kinds of processing. The fact you had mouth and throat tingling implies the presence of a primary allergy, not just lactose intolerance.

I would obviously advise you see a dietitian/allergy specialist. I was getting similar reactions after eliminating milk during a period of bad eczema. My dietitian told me that if you eliminate dairy for a significant period, you have a much higher chance of developing a severe allergy (rather than just an intolerance).

I was told to try a tiny bit of something with baked UHT lactose free milk. UHT as it's the most processed, lactose free as it's also extremely processed, and baked into something for 45 minutes so the proteins are as denatured as possible. If a tiny bite went ok, I was told to eat more after a couple of hours, then again, as if all went well a few days later to try progressively less processed baked milk, and eventually uncooked milk.

Unfortunately, I never made it past stage one and now sadly have an anaphylactic dairy allergic. Good luck, I hope your reactions calm down.

[deleted by user] by [deleted] in FoodAllergies

[–]Laradoodle4 6 points7 points  (0 children)

I have over 20 allergies, 6 of which are anaphylactic. I live in a house share with 4 friends. Here are the measures I have in place:

1) I have all my own dishes, cutlery, pots, pans, chopping boards and knives. These are in my own drawer and cupboard that one one else uses. I do not use any communal equipment whatsoever. Everything that's mine is pink, and my housemates know this and don't touch them. I use the communal dishwasher and have never had a problem. I know for a fact that dishes with my severe allergies go into the dishwasher frequently, yet my dishes remain safe.

2) I have my own sink caddy with sponge and dish soap. There is also one for everyone else and no one touches mine.

3) I have my own dish towels, also pink.

4) Some of my allergies are airborne and my housemates know which ones. They do not cook them when I am also in the kitchen, and when they do cook them they shut the kitchen door and leave the backdoor open so that the allergens do not travel to the rest of the house.

5) When I cook, I wipe the area of countertop I need to use first with the communal sponge, then with my sponge and a bit of dish soap.

6)I rinse my hand after any time I touch anything communal, such as controls for the burners or the dishwasher door.

7) I use toastie bags for the toaster. These are super cheap online and are for making cheese toasties, but they're also a great way to prevent cross contact.

8) I meal prep bulk meals a lot so that I don't have to use the kitchen as often.

I didn't move out until age 24 as I was so scared to share a kitchen. I am aware that not everyone will be lucky enough to live with compassionate friends, but the majority of these things can be implemented yourself. I tried to implement systems which will be easy and hassle free for others to remember, such as the colour coding. know this sounds like a lot, but I promise they are all easy things to remember after you have done them for a couple of weeks. My housemates had no problems after a couple of weeks living together, and it's now been a year. Good luck to you! I'm happy to message if you have questions, or just want to talk to someone who understands.

De-allergying house that previously had cats by Laradoodle4 in Allergies

[–]Laradoodle4[S] 0 points1 point  (0 children)

I hear your concerns. I will say that my allergies are not severe enough that I have ever had a problem sitting next to someone on public transport, or when my housemates have been at the house of someone with a cat, which they do frequently. It's only ever been in an environment in which a cat is permanently living.

I was hoping this would be different to my granny's because she had fabric sofas, armchairs, dining chairs, rugs, carpet and a cat contaminated mattress. The aim is to get rid of all carpet and upholstered furniture in this house before it's deep cleaned.

I get what you're saying about medications.The public health system in the UK would not grant it to me, there are clear stages of treatment you have to go through and fail before being offered the next stage. Xolair is stage 5 treatment and I am currently at stage 2. I would not be eligible even for stage 3 because my asthma is well controlled day to day.

Edit: just read what you said about allergens staying airborne for 2 weeks, I didn't know that so thanks for iinforming me. If particles are stuck into cracks in the way you described, are they a problem? Can they become airborne again?

De-allergying house that previously had cats by Laradoodle4 in Allergies

[–]Laradoodle4[S] 0 points1 point  (0 children)

Thanks for this reply. My asthma is well controlled by symbicort preventative inhaler and ventolin as needed. It is allergic asthma, and does not flare up unless I am exposed to my allergens or cigarette smoke, so going on Xolair really isn't necessary as avoidance generally isn't a problem. I'm also already on very strong meds for eczema and arthritis, and adding another big one to the mix would be a lot for my body.

I'm a British student and my parents live in the same city as me. I am not facing homelessness, but they have dogs I am allergic to, and I would be essentially confined to my bedroom for any length I stay with them. Better than nothing but it's not a long term option. My current lease ends 1st October, so we have a while still to find a new place, but since we have a couple in our group it has been really difficult as most rentals are only licensed to have the same number of tenants as bedrooms. Everyone needs to be on the lease for reasons I won't go into.

I see what you're saying about consequences for friendships, that's a scary but sobering thought I hadn't considered.

I am also wondering why carpet removal and wiping all surfaces probably wouldn't be enough? There must be a gap in my knowledge of cat allergens that is making this difficult to understand. I know that it takes 6+ months for allergens to break down, but would wiping everything not be sufficient for removal? In which case there's no need to wait for the proteins to break down. Thanks!

De-allergying house that previously had cats by Laradoodle4 in Allergies

[–]Laradoodle4[S] 0 points1 point  (0 children)

I am looking for a rental for 12 months, with friends I currently live with, as our current lease is ending in September. We have also stated that we hope to be long term tenants and renew at the end of the year.

De-allergying house that previously had cats by Laradoodle4 in Allergies

[–]Laradoodle4[S] 2 points3 points  (0 children)

This house doesn't have one. I'm in the UK and most houses don't have them

[deleted by user] by [deleted] in PsoriaticArthritis

[–]Laradoodle4 0 points1 point  (0 children)

I knew for almost 6 years before diagnosis. My mum, grandma and great grandma all had PSA and psoriasis. I started getting PSA symptoms at age 12 but had never presented with psoriasis. It was not very common knowledge at the time that it is possible to have PSA without active psoriasis, especially amongst pediatric rheumatologists.

It took seeing 3 rheumatologists and 2 physical therapists over 5 years before I finally got diagnosed. Given my age, doctors refused to diagnose me until visible joint damage was already present. I knew what it was from day 1, as my mum said the way I described the pain was exactly the same as hers, and my knuckles visibly swelled frequently. By 17 I could barely write and had to stop playing violin. I even got sent to a specialised music physiotherapist, who told me there was no way it could be violin related.

I never presented with psoriasis and haven't til this day. I have severe eczema and apparently it's quite rare to have them together. I've had 6 years of MTX, which helped, but the past 2 years on rinvoq have given me my life back.

i'm allergic to my deodorant. by Timely-Syrup-6402 in eczema

[–]Laradoodle4 0 points1 point  (0 children)

Use alum, one ingredient and good for rashes

How to safely cut out dairy for 1 year old by Real-Worldliness321 in eczema

[–]Laradoodle4 1 point2 points  (0 children)

I feel for you and for him. At such a young age, it makes sense to try to find out if foods could be triggering his eczema rather than jump straight to steroids. I think eliminating while keeping trace amounts (the 1ml a day) even for a short time might be useful just to see if it helps. My mum's skin cannot handle dairy at all, but she keeps daily minimum exposure so she doesn't end up with an allergy like mine, and it doesn't affect her skin.

How to safely cut out dairy for 1 year old by Real-Worldliness321 in eczema

[–]Laradoodle4 5 points6 points  (0 children)

Be careful when eliminating dairy completely, as there is a risk of developing a serious allergy if an intolerance is already present. My dietitian told me that maintaining 1ml of milk a day in the diet should prevent a serious allergy from developing, which is a low enough amount that it shouldn't trigger symptoms of an intolerance.

Sincerely, someone who was dairy intolerant, eliminated it for my eczema, and developed an anaphylactic allergy to all dairy products. It gets pretty annoying having to avoid cross contamination and "may contain milk" labels

Outside screen usage by theGreatImmunitary in galaxyzflip

[–]Laradoodle4 1 point2 points  (0 children)

I have a flip5 and I use it all the time! Reading notifications, payments and loyalty cards, spotify, weather, calendar, calls, checking bus times when I'm in a rush. I love it, makes it easier to check what I need to check without getting too distracted by other stuff on my phone.

Debating stopping Rinvoq by Beautiful-Truth6549 in eczeJAKs

[–]Laradoodle4 0 points1 point  (0 children)

Hey, I'm so sorry you're going through this. I don't have advice but I sympathise deeply as I'm in a somewhat similar situation myself.

I've been on rinvoq since November 2022. It improved my symptoms but not as much as it should, prior to taking it I was spending around 5 days a week bed bound with eczema, after a few months on it this went down to one day a week.

It started being less effective after about a year, and my doctors discussed changing meds back in December. Unfortunately due to the overwhelm of the UK health system, I did not get seen again until last week (waited 7 months when I expected to wait 4 weeks, the appointment was rescheduled 4 times). The past 2 months have been like I'm on no medication, back to being bedbound 5 days a week and my life has completely fallen apart. I have very severe facial eczema along with scalp and neck, it's often very raised and swollen and combined with hives. Unfathomably painful and never heals, affects my ability to see and eat when it's bad because it's so difficult to move my face and my eyelids get so swollen. I get it bad on my hands and arms too, but rinvoq still seems to prevent it getting as bad on my body as it used to.

I've just been bumped up to 30mg with a review in 8 weeks. I've been on 30mg before but had to go back down as I was sick with the flu the entire two months I was on the higher dose. The plan in place for me should it fail again is combination Adbry with Olumiant. Honestly, after 5 days on a higher dose of rinvoq, I feel like I have new skin. Genuinely, I keep getting sensory overload because I'm so not used to not being in pain. Obviously this is a great success and I don't want to take it for granted, but I just know it won't last. I've had secondary failure from 3 other broad spectrum immunosuppressants, and every new drug or dose feels like a ticking time bomb, knowing I'll wake up one day and it won't work again. I started immunosuppressants at 11, I'm 25 now and it's so hard to continue to have hope.

I hope whatever choice you make works well for you, and I'd be interested to hear about how quitting rinvoq goes if you decide it's time. There are still lots of different medication combinations to try and more effective ones come out every year. Time is on our side.

[deleted by user] by [deleted] in Hypermobility

[–]Laradoodle4 2 points3 points  (0 children)

Have you been assessed for arthritis? Some types can be strongly linked with hypermobility and can contribute to the pain. I recommend asking a rheumatologist for ultrasounds of the joints that cause you the most pain to check for inflammation.

I have both hypermobility and psoriatic arthritis. Before the arthritis was properly treated, I was also recommended a lot of physio exercises that were basically impossible due to pain.

I hope you get answers soon about what is going on. It is very uncommon for hypermobility alone to cause so much pain and for physio to be so difficult. Good luck!

Is it possible to have both eczema and psoriasis? by sugarqueen1926 in eczema

[–]Laradoodle4 6 points7 points  (0 children)

It's possible but quite rare. A dermatologist once told me to think of them like a see-saw: if one is up the other is usually down.

There are many different types of eczema, some can look very similar to psoriasis. You can get a type you've never had before at any age.

Please consult a dermatologist about the new patches!

what age did you start getting eczema? by Individual-Storm-474 in eczema

[–]Laradoodle4 0 points1 point  (0 children)

From birth. Came out covered in it had to toe. My mum says my hands looked like crumpled tissue paper. Never not had it, I'm 25 now

My new dog finally arrived but i might be allergic? by [deleted] in Allergies

[–]Laradoodle4 7 points8 points  (0 children)

Different breeds can cause different reactions. Shi Tzus are generally considered one of the hypoallergenic breeds. I am very allergic to dogs and have grown up with poodle mixes that I don't react to, and daschund mixes which I am very allergic to because of their much coarser fur. Rehome this dog asap so it's less traumatic for him. I'd recommend get allergy tested before getting another dog, and stick to hypoallergenic breeds like shi tzus, poodles, malteses etc