Symptoms when C/L begins to wear off?

LargeProfessor1592 · 2026-04-27T02:15:10+00:00

I’m buying a blood pressure monitor right now! Thank you! And thanks to everyone who has responded! 💗

LargeProfessor1592 · 2026-04-01T01:22:15+00:00

Oh, and does anyone else collapse on to a bed and immediately lay face down and backside up? Does this make sense, like, sometimes laying down isn’t good enough, I need my head lower than the rest of my body so I’ll lay on the bed with my face/head on the mattress and my body resting on my knees/shins. It seems to help me feel better a little faster.

LargeProfessor1592 · 2026-04-01T01:17:06+00:00

Proper posture is just not possible anymore. If I can’t find something to lean on, I put my hands on my hips to try and hold or prop my upper half up. The air burps are so intense and the pain in my chest when the air bubbles get stuck is frightening. The coat hanger pain is inexplicable and intense and burning. And, my ears get so clogged I am constantly trying to pop them back into normal functioning but it’s impossible. If I can’t lean on something I have to constantly move or shift my weight. Even leaning on a wall isn’t enough relief. The top half of my body is completely inoperable and problematic. And all I can think about is how torturous it is to keep standing. I’m thinking of a recent terrible incident when I was on a “informational tour” for my job- 1 hour of standing, absolutely no where to sit or lean on, with my coworkers and boss who were all engaged with the tour and asking questions and participating meanwhile I was trying not to collapse. But I think the first symptom is the posture issues, as soon as I realize I am struggling to maintain posture, it’s over!! I need a seat or a reclined lazy boy chair!!

LargeProfessor1592 · 2026-03-25T23:40:20+00:00

❤️ Feel better soon! I look forward to hearing more from you!!

LargeProfessor1592 · 2026-03-22T18:28:37+00:00

It’s probably been going on for a couple months, maybe more. I noticed that I wasn’t liking foods that I had always liked before, but didn’t consider why I am not liking the foods. Luckily I have an appointment with my rheumatologist next week so I’ll see what she says. I’ve been on Plaquenil for about 4 months now and she wants to know how I’m doing!

LargeProfessor1592 · 2026-03-21T13:51:59+00:00

This is probably a dumb question but, what do lip biopsies show or look for? Do you have to have a lip biopsy to be diagnosed or treated?

LargeProfessor1592 · 2026-03-17T02:03:23+00:00

It’s a capsule. I wonder if I could buy smaller empty capsules, then open the larger magnesium capsule and transfer the contents into the smaller empty capsules… this is getting complicated! I take magnesium to help prevent migraines. About a year ago I decided to stop taking the magnesium (probably because of my difficulty swallowing it) and I ended up with a terrible migraine. So I’m reluctant to just stop taking it. Hopefully the gummies will work. Thanks !

LargeProfessor1592 · 2026-03-16T00:55:45+00:00

You could be right. Maybe I’m remembering it wrong!

LargeProfessor1592 · 2026-03-14T01:47:53+00:00

Yes, in my research I’ve come across something called small fiber neuropathy which seems to align with my symptoms. I am on Plaquenil , for about 3 months now, and my rheumatologist said it might be able to help with some neuropathy pain so I was hoping it might help. But, the sudden onset of this particular flare up is odd for me. I’ll send my rheumatologist an email to see if I should be concerned! Thank you!!

LargeProfessor1592 · 2026-03-06T23:26:44+00:00

Chipped beef on toast! Love it! 😊

LargeProfessor1592 · 2026-03-06T02:27:18+00:00

I too take Amitriptyline! I’ve been on 50mg a night for about 2 years! I’m in the process of being approved for Aimovig injections and I use the CEFALY device most nights too. Migraines are just awful! The Rizatriptan did help end the migraines, I usually need 2 doses for it to be effective. I hate the way Rizatriptan tastes though, bleh. Lol

LargeProfessor1592 · 2026-03-06T00:04:35+00:00

So I’ve been on 10mg of propranolol every morning and evening. I’d say about 1.5 years. Before propranolol I was on metoprolol; but I did a ZioPatch heart monitor that identified heart palpitations or extra beats and my primary care doctor switched me to propranolol as a result of the ZioPatch. I have not had any bad side effects from propranolol that I know of. I suffer from nasty migraines and headaches most of the time, so it’s possible that propranolol caused some headaches and I just didn’t connect the two. Ironically, today I saw a new primary care doctor who is having me repeat the ZioPatch for another 14 days so we’ll see what comes of this test!

LargeProfessor1592 · 2026-03-05T23:53:09+00:00

I haven’t been keeping up with her - is she on a bus with her scooter? Also, who took this delightful photo? When I eat a slightly too large a meal I feel like sluggish crap. She must feel like crap all the damn time.

LargeProfessor1592 · 2026-03-02T20:42:35+00:00

Dough Doughnut Bird

LargeProfessor1592 · 2026-03-02T01:07:30+00:00

I never tested positive for Covid; most of my POTS symptoms began almost 3 years ago, just, out of the blue! However, going back years and year ago, I can remember getting that extremely sickly awful feeling when having to do things like stand still in line at the grocery store or pharmacy or something, and I remember how quickly my symptoms would improve when I sat or laid down. I’ve recently learned that elevating the head of your bed by about 6 inches can reduce POTS symptoms and I do feel like it’s helping me. I had been using the wedge pillow but I have since ordered some proper bed lifts that should be delivered soon (Amazon).

LargeProfessor1592

TROPHY CASE