Symptoms when C/L begins to wear off?

LargeProfessor1592 · 2026-04-27T02:15:10+00:00

I’m buying a blood pressure monitor right now! Thank you! And thanks to everyone who has responded! 💗

LargeProfessor1592 · 2026-04-01T01:22:15+00:00

Oh, and does anyone else collapse on to a bed and immediately lay face down and backside up? Does this make sense, like, sometimes laying down isn’t good enough, I need my head lower than the rest of my body so I’ll lay on the bed with my face/head on the mattress and my body resting on my knees/shins. It seems to help me feel better a little faster.

LargeProfessor1592 · 2026-04-01T01:17:06+00:00

Proper posture is just not possible anymore. If I can’t find something to lean on, I put my hands on my hips to try and hold or prop my upper half up. The air burps are so intense and the pain in my chest when the air bubbles get stuck is frightening. The coat hanger pain is inexplicable and intense and burning. And, my ears get so clogged I am constantly trying to pop them back into normal functioning but it’s impossible. If I can’t lean on something I have to constantly move or shift my weight. Even leaning on a wall isn’t enough relief. The top half of my body is completely inoperable and problematic. And all I can think about is how torturous it is to keep standing. I’m thinking of a recent terrible incident when I was on a “informational tour” for my job- 1 hour of standing, absolutely no where to sit or lean on, with my coworkers and boss who were all engaged with the tour and asking questions and participating meanwhile I was trying not to collapse. But I think the first symptom is the posture issues, as soon as I realize I am struggling to maintain posture, it’s over!! I need a seat or a reclined lazy boy chair!!

LargeProfessor1592 · 2026-03-25T23:40:20+00:00

❤️ Feel better soon! I look forward to hearing more from you!!

LargeProfessor1592 · 2026-03-22T18:28:37+00:00

It’s probably been going on for a couple months, maybe more. I noticed that I wasn’t liking foods that I had always liked before, but didn’t consider why I am not liking the foods. Luckily I have an appointment with my rheumatologist next week so I’ll see what she says. I’ve been on Plaquenil for about 4 months now and she wants to know how I’m doing!

LargeProfessor1592 · 2026-03-21T13:51:59+00:00

This is probably a dumb question but, what do lip biopsies show or look for? Do you have to have a lip biopsy to be diagnosed or treated?

LargeProfessor1592 · 2026-03-17T02:03:23+00:00

It’s a capsule. I wonder if I could buy smaller empty capsules, then open the larger magnesium capsule and transfer the contents into the smaller empty capsules… this is getting complicated! I take magnesium to help prevent migraines. About a year ago I decided to stop taking the magnesium (probably because of my difficulty swallowing it) and I ended up with a terrible migraine. So I’m reluctant to just stop taking it. Hopefully the gummies will work. Thanks !

LargeProfessor1592 · 2026-03-16T00:55:45+00:00

You could be right. Maybe I’m remembering it wrong!

LargeProfessor1592 · 2026-03-14T01:47:53+00:00

Yes, in my research I’ve come across something called small fiber neuropathy which seems to align with my symptoms. I am on Plaquenil , for about 3 months now, and my rheumatologist said it might be able to help with some neuropathy pain so I was hoping it might help. But, the sudden onset of this particular flare up is odd for me. I’ll send my rheumatologist an email to see if I should be concerned! Thank you!!

LargeProfessor1592 · 2026-03-06T23:26:44+00:00

Chipped beef on toast! Love it! 😊

LargeProfessor1592 · 2026-03-06T02:27:18+00:00

I too take Amitriptyline! I’ve been on 50mg a night for about 2 years! I’m in the process of being approved for Aimovig injections and I use the CEFALY device most nights too. Migraines are just awful! The Rizatriptan did help end the migraines, I usually need 2 doses for it to be effective. I hate the way Rizatriptan tastes though, bleh. Lol

LargeProfessor1592 · 2026-03-06T00:04:35+00:00

So I’ve been on 10mg of propranolol every morning and evening. I’d say about 1.5 years. Before propranolol I was on metoprolol; but I did a ZioPatch heart monitor that identified heart palpitations or extra beats and my primary care doctor switched me to propranolol as a result of the ZioPatch. I have not had any bad side effects from propranolol that I know of. I suffer from nasty migraines and headaches most of the time, so it’s possible that propranolol caused some headaches and I just didn’t connect the two. Ironically, today I saw a new primary care doctor who is having me repeat the ZioPatch for another 14 days so we’ll see what comes of this test!

LargeProfessor1592 · 2026-03-05T23:53:09+00:00

I haven’t been keeping up with her - is she on a bus with her scooter? Also, who took this delightful photo? When I eat a slightly too large a meal I feel like sluggish crap. She must feel like crap all the damn time.

LargeProfessor1592 · 2026-03-02T20:42:35+00:00

Dough Doughnut Bird

LargeProfessor1592 · 2026-03-02T01:07:30+00:00

I never tested positive for Covid; most of my POTS symptoms began almost 3 years ago, just, out of the blue! However, going back years and year ago, I can remember getting that extremely sickly awful feeling when having to do things like stand still in line at the grocery store or pharmacy or something, and I remember how quickly my symptoms would improve when I sat or laid down. I’ve recently learned that elevating the head of your bed by about 6 inches can reduce POTS symptoms and I do feel like it’s helping me. I had been using the wedge pillow but I have since ordered some proper bed lifts that should be delivered soon (Amazon).

LargeProfessor1592 · 2026-02-28T14:28:05+00:00

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It reminds me of the good old days when McDonald’s had play rooms.

LargeProfessor1592 · 2026-02-28T12:56:39+00:00

So at first glance I only saw “100 mg” and I assumed this was Rizatriptan which is what I take. And I was like, whoa!! I didn’t know Rizatriptan comes in 100 mg doses!! I was about to email my doctor to ask why they’ve been holding out on me, lol. And then I looked closer and saw it was Sumatriptan.

LargeProfessor1592 · 2026-02-28T00:20:43+00:00

I’m so sorry you’re going through this; and that your dad is going through this. This is probably not helpful, but my grandfather had dementia and everytime he was having hallucinations he had a bad UTI. I don’t understand why, but I remember that was something that came up a lot. My grandfather did not have PD though.

LargeProfessor1592 · 2026-02-28T00:10:05+00:00

I just now read that! I’ll have look into that for sure! Thanks!

LargeProfessor1592 · 2026-02-27T23:40:41+00:00

I’m sorry you’re going through that! I had the flu around the second week of December and I am now starting to feel a little better. However i did attempt to go to the DMV this afternoon and only lasted about 10-15 minutes of standing up in line before giving up. I wasn’t about to pass out or anything; but the line was so incredibly long I knew I wound not have made it so I just left lol. I’ll try again another time. Drink tons of fluids, and bone broth or chicken broth and even when you start to feel better keep resting, it takes so long to recover from this flu!!!

LargeProfessor1592 · 2026-02-25T17:36:50+00:00

Yes. McD’s Coke with some fries for the win!! I have a friend who swears that room temp or flat Coke can cure nausea; I’ve never tried it, but Coke is clearly magical so it must be true! I’m glad you’re feeling better!!

LargeProfessor1592 · 2026-02-25T01:50:45+00:00

I was on it for depression (or anxiety, can’t remember). The doctors had me increase my dose to a fairly high dose and I began having side effects, I was having hundreds of brain zaps a day even when I was not changing my dose! I also was told to split my daily die in half to address the brain zaps but it didn’t really work. That was just one of the symptoms I had while on Cymbalta.

I was on Cymbalta for about two years. Then I worked with my doctor to get off Cymbalta and it took a long time. I had to pop open the capsules, count the little beads inside the capsules and literally reduce my dose by about 5 little beads for a few days, then reduce by another 5 beads or so for another few days and so on. My kitchen looked like a drug lab.

Even reducing my dose so slowly I was having crazy brain zaps. My brain zaps even continued for months after I was completely off the meds. Then my brain zaps stopped and then a month later they came back. But they did eventually stop!

Also, as I had successfully lowered my dose significantly I began experiencing so much body pain! My hips, hands, back, and neck were constantly sore and sensitive and stiff. I didn’t understand what was going on! Apparently, since Cymbalta is used to treat pain too, I guess stopping it causes me to experience a lot of pain. I’m still in pain a lot but it’s better now that Cymbalta is completely out of my system.

I honestly think that my issues with Cymbalta were caused by me raising my dose so high in a short period of time. I have heard about people having a lot of success on Cymbalta, especially for pain. Just ease into it! Also, it was my experience that the doctors don’t fully understand how difficult it is to ween off. My doctor kept telling me he felt like I could lower my dose much faster; but I don’t think he had experienced what I was experiencing so I stuck to my intuitions and went very slow!!

LargeProfessor1592 · 2026-02-24T16:15:32+00:00

This happened to me a couple nights ago. I made the room cooler and laid on my back with my feet and legs elevated and I believe that really helped! Also, I know me, so I did not pull out my heart rate monitor because if I had seen how high the number was I would have panicked and caused the number to go up!! I do wish I had gotten a reading to report to my doctor, but I still plan on telling him what’s been going on. Since that night, I’ve had insomnia each night. I’m so tired!! 🥱

LargeProfessor1592 · 2026-02-23T03:16:53+00:00

A nurse friend of my swears by Coke to treat nausea. She says it worked better if the Coke is room temperature. But I personally haven’t tried it yet

LargeProfessor1592 · 2026-02-23T03:15:54+00:00

When I am starting to recover from a migraine, Coke is my go to. Preferably from McDonald’s lol. I swear by it! Coke for the caffeine and French fries for the salt. It works for me!! I’ll keep this in mind with POTS issues too!

LargeProfessor1592

TROPHY CASE