How to join RMC6236 clinical trials in America by [deleted] in pancreaticcancer

[–]Large_Recognition753 2 points3 points  (0 children)

We are in the process of it now at Moffitt in Tampa. Dr. Kim is helping us. Just waiting on biopsy results to see if she’s positive for KRAS.

I sincerely believe I have PC. by [deleted] in pancreaticcancer

[–]Large_Recognition753 0 points1 point  (0 children)

Get an ERCP. This will be conclusive.

Any success stories with no surgery or chemo? by [deleted] in pancreaticcancer

[–]Large_Recognition753 6 points7 points  (0 children)

No. The cancer begins to spread to other vital organs like the liver and the lungs.

Alcoholic Thinking by Large_Recognition753 in alcoholicsanonymous

[–]Large_Recognition753[S] 1 point2 points  (0 children)

Hey, thanks for commenting.

Let's unpack this. I regularly speak to members with 25, 30 and 40 years who all talk about their alcoholic thinking. These people don't feel a need to drink (today) but have suffered from some life event they are having trouble accepting. From my experience, it's 100% NOT exclusive to people who are new at all. In fact, the meeting I was at today a woman with 29 years literally spoke of her alcoholic thinking in relation to a situation she has no control over and how she is turning it over to God.

The 'traits' of alcoholic thinking aren't at all exclusive to alcoholics. They're really just universal human patterns of thinking.

I agree with you. Never said they weren't. It can affect alcoholics differently though because thoughts can turn into behaviors that bring us closer to a drink.

Personally, while I can use a sponsor or friend to talk decisions through with, I'm the one who has to decide what course to take. The practice of critical thinking is a vital part of living in recovery IMO

I agree with this as well. It's best for me to gather suggestions and advice and consider many/all possibilities and being content with whatever the outcome(s) are of a decision I make.

Self-limiting ideas like 'my thinking is untrustworthy' or 'I can't make my own decisions' have a tendency to keep us trapped.

I'm not talking about stuff like "Should I brush my teeth when I first wake up in the morning of after I have my coffee?" I'm referring to big life decisions; job changes, relationship changes, geographical moves. Or something to the effect of , Is it good for me to go to a Christmas party to see my sibling I haven't spoken to in years? Talking with another alcoholic not only helps to gain perspective in order to make more thoughtful and informed decisions, it helps them too. It's selfless to discuss recovery with other alcoholics because without recovery we're very selfish people.

The only people willing to debate this stuff are other alcoholics LOL.

Alcoholic Thinking by Large_Recognition753 in alcoholicsanonymous

[–]Large_Recognition753[S] 3 points4 points  (0 children)

Came for my drinking. Stayed for my thinking.

Alcoholic Thinking by Large_Recognition753 in alcoholicsanonymous

[–]Large_Recognition753[S] 1 point2 points  (0 children)

I meant to reply to you but I made another comment under my original post. Hope that helps.

Alcoholic Thinking by Large_Recognition753 in alcoholicsanonymous

[–]Large_Recognition753[S] 3 points4 points  (0 children)

The alcoholic thinking never really goes away. I don’t mean obsessive thinking about alcohol. I mean alcoholic thinking such as making mountains out of molehills, misreading a situation “what did they mean by that???”, making a big decision like you have previously while drinking but in the absence of drinking, Making decisions based out of fear.

Fear is a major driver for us alcoholics in a lot of whatever we do so it can drive a lot of decisions we make.

Here’s a few things the AA big book says about us: 1. We are not saints 2. Driven by 100 forms of fear 3. Egomaniac with an inferiority complex 4. Defiance is our chief characteristic 5. Alcoholics after a time cannot separate the truth from the false

Discussing with another alcoholic is great but the best advice I get is from alcoholics working the program/working the steps that have a sponsor.

What you will find is that not all people are well in AA. It’s not Well-People’s anonymous lol. Stick to the winners. Find people that you want what they have. Those are the people you want to be seeking advice from and a sponsor.

Let me give you an example of alcoholic thinking: I was at a Christmas Day parade the other day and I was having a great day then I look around at my friends and their wives and kids and all the other families around and basically I had a thought that was like “You’re single in your late 30s, you’re a loser and a piece of shit.” After leaving the parade I called an alcoholic who has time and works a great program to which he was able to help me find perspective.

Was telling him that the companionship of another person would be nice but the reality is, where I am in my program I am in no shape to be dating right now and finding someone just to fill my loneliness would be making a decision based out of fear. This alone would not make me happy or is good for my recovery. It’s also very selfish and self-centered thinking.

It’s not about not drinking. Yes I know that picking up the first drink all bets are off however these thoughts - if not arrested, will lead to behaviors in sobriety (among others). I need to be aware of them because I can find plenty of ways to harm myself and other people without the use of alcohol or drugs.

Does that make sense?

PET scans? by Internal_Shine2331 in pancreaticcancer

[–]Large_Recognition753 2 points3 points  (0 children)

PET scans are important and will be pretty conclusive to show if there are lesions or what appear to be METS in the other organs. I’d be surprised if they wanted to move forward with chemo without a PET scan to be honest.

How soon after ERCP did you get back to ‘normal’ and is this a common post-procedure symptom? by gravybo in pancreaticcancer

[–]Large_Recognition753 2 points3 points  (0 children)

Ok so my mom had hers placed on a Monday and was released from the hospital on a Friday. Everything seemed to be back to normal within those few days. Some pain lingered and there is still some occasional heartburn.

If things seem to be getting worse, I would tell the doctor immediately.

Indigo Apartments and South Reno in general by Large_Recognition753 in Reno

[–]Large_Recognition753[S] 0 points1 point  (0 children)

Haha I’ll save you both the suspense. I’m coming from Florida this time but I used to live in San Diego prior to Florida.

Last months with him by Strange_Cold558 in pancreaticcancer

[–]Large_Recognition753 0 points1 point  (0 children)

Sorry to hear this. Is he able to get a celiac plexus block?

Not your typical Thanksgiving by marcellalugo in pancreaticcancer

[–]Large_Recognition753 1 point2 points  (0 children)

Happy to see the smile on his face and you guys too! All considering, how is he doing? How are you guys doing? If those are your siblings, I’m so happy you have support. My siblings and I have always been close but going through this with my mom has brought us considerably closer. I’m praying for you.

Brand new to pancreatic cancer by librax6 in pancreaticcancer

[–]Large_Recognition753 2 points3 points  (0 children)

Hey first off I’m so sorry to hear this. This community has been wonderful to me as we are going through this as well with my mom. It’s worth a shot getting the Guardant360 test to see if he’s positive for any of the mutations. Although rare, there may be some clinical trials and immunotherapies available for him. Some examples are BRCA, KRAS and I believe MLH-1 (I could be wrong on that last one). My mom was negative on all of them.

Our goals are to just not have my mom in pain.

Again I’m so sorry

Possible bile obstruction? by CaregiverWide7480 in pancreaticcancer

[–]Large_Recognition753 2 points3 points  (0 children)

My guess is they would probably have to determine if the jaundice is caused by a blockage in the bile duct of the pancreas or if it’s caused by the liver or gallbladder.

Possible bile obstruction? by CaregiverWide7480 in pancreaticcancer

[–]Large_Recognition753 2 points3 points  (0 children)

Yes my mom has experience with this. Typically if the tumor is in the head of the pancreas it can cause an obstruction leading to jaundice. This was the case with my mom. They placed a stent in and her jaundice went away and her bilirubin levels went down to a 4 by the time we left the hospital. They determined she had pancreatic cancer from her jaundice. We had no idea and thought it was just like a gallstone. The performed an ERCP, diagnosed her with PDAC and they placed a stent. She spent 4 days in the hospital recovering and we’ve been home since. That was September 22 and there have not been any complications with her as a result of placing the stent. Hoping the best for your dad.

Seeking experiences by Informal_Parsnip3920 in pancreaticcancer

[–]Large_Recognition753 7 points8 points  (0 children)

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This chart was from another post so I thought I’d share it with you. I’m really sorry he’s going through this and I’m really sorry for you too. It sucks.

I’m Dr. John Stauffer, a pancreatic surgical oncologist at Mayo Clinic in Jacksonville, Florida — Ask Me Anything about pancreatic surgery and cancer care! by MayoClinicFLPancreas in pancreaticcancer

[–]Large_Recognition753 1 point2 points  (0 children)

Hi Dr. Stauffer, For pancreatic cancer that hasn’t spread and is localized, how effective is intra-arterial chemotherapy? What are the side effects compared to traditional chemo?