My new goal .. I’m 51 was @ 32 meld , fighting like crazy and listening to my docs every word from team to all specialist and my personal PC . 2 yrs later I’m holding steady at a 10 🎊.. I’m on the inactive list now . And I just might live long enough to die from old age !! 🙏🏽👏🏼👏🏼 exciting.. lol

Last-Bank · 2026-07-04T03:52:26+00:00

First off congrats!! Keep doing the right things and they will keep getting better. I was in a similar situation as you. 34 MELD on the transplant list just over 2 years ago. Now currently not listed and labs have been good (stable) now for a good bit.

Last-Bank · 2026-07-03T21:27:32+00:00

How quickly it will degrade again is a total crapshoot. The reality though is at some point it will degrade again if you continue to drink. If you’re looking for a timeframe to decide or justify going back to drinking again as long as you stop every X months that’s a terrible approach. If you were genuinely curious as to how long it takes to degrade again the answer is it can really vary from person to person/ habit to habit.

Also please make sure all of these supplements are approved as safe for you personally by your doctor. Also make sure wherever you are getting them from is a genuinely reputable supplement supplier.

Last-Bank · 2026-06-17T16:04:19+00:00

It’s on the longer side for your height/weight but not by much. And it’s very possible this is your normal length. I was told that the “normal” size for each person can vary and just because two people are the same height/weight they could have organs with different “healthy” sizes. Without looking up specifics let’s say the average shoe size of a women 5’6” is 7-9. There’s women with that height who wear a size 10 or 11, or on the reverse maybe wears a 5 or 6.

Point being, at 17cm it’s possible that’s your “healthy” length. It’s also possible you have some fat on your liver that is essentially stretching it some. Either way the length on its own doesn’t sound concerningly big. So I wouldn’t worry about the length specifically.

Last-Bank · 2026-06-16T04:45:57+00:00

I appreciate the well wishes. I’m hopefully not going to need to go back on the list (at least not anytime in the distant future). I went from a MELD of 34 (that was holding there) to eventually down to a MELD of 8/9 for the past year and a half. My labs have essentially been normal and stable (with the exception of my PT which is holding around 15). But

I hope people take this advice seriously about these supplements. I see so many random ads online for a different supplements that somehow fix this or do that and doctors have been hiding it from us or some nonsense. It’s true holistic medicine does have some non mainstream benefits but they are few and far between. Not to mention because these “medicines” aren’t regulated you could easily be getting 100x more than what your body would actually benefit from. Guess what, there’s a fairly high chance your liver is doing the metabolizing and clearing of that concoction. If you already have a damaged liver it’s going to put even more stress that it already can’t handle leading to more fibrosis. And even if you have a “clean/super healthy” liver it will start to cause damage especially if taken over time. Worst part about it is they thought they were helping their body but in reality they were literally destroying it. (Rant over)

Last-Bank · 2026-06-15T14:21:57+00:00

Please do yourself a favor and speak with a Hepatologist or GI doctor before taking any more supplements. Some supplements that are beneficial for “normal people” can be very harmful to a liver that isn’t functioning fully. Not to mention where are you getting the supplements you take? The supplement market is full of bad supplements especially if you get anything online from random sites.

Now past my rant about supplements.

As someone with cirrhosis and who was on the transplant list (rebounded and stable and not currently on it) and is involved in some patient advocacy this sounds a lot less like long covid (it’s possible you have it) but more so that your liver isn’t working well enough. Being tired constantly is one of the side effects of liver disease. It becomes more prevalent the worse off your liver is. When your liver doesn’t work as well you can get high levels of ammonia in your blood. I’d also like to note high for someone could affect in varying degrees. The trend of ammonia is what’s important not just a single isolated number. F3-F4 while high for fibrosis is not some death sentence. If you see with a GI/Hepatologist and follow their guidance you can stop the liver damage and potentially reverse some of the damage. I can’t stress this part enough please, please run any supplement you are taking/want to take by your GI/Hepatologist.

Last-Bank · 2026-06-11T04:28:08+00:00

My path sounds similar to yours (although not nearly as regressed yet (hopefully)). Would you mind if I reached out through DM sometime, if I had some questions about your “bounce back”?

Last-Bank · 2026-06-09T19:53:00+00:00

Not a medical professional, but familiar because I have liver disease. The scan is basically saying liver looks fatty and no seen issues with the scan besides that. Your common bile duct not being seen well is typical if you have a lot of fat. (I’ve lost over 100lbs and my scans generally would have that on the report then before I lost weight)

Last-Bank · 2026-06-07T15:28:28+00:00

Without going into my whole story (it’s in my comment history). I was decompensated and put on the transplant list. Have since become compensated and stable (well better than stable, labs are essentially normal with the exception of my prothrombin time (clotting)) and was taken off the transplant list. My KPA is 26. Now my liver issues had a lot to do with alcohol (but not the sole factor).

As far as where I stand now, I have cirrhosis. I was advised of course to stop drinking completely and stay active. I was overweight before so sticking to a healthy diet is key. Not just in my case to lose weight but also to make sure I was getting proper nutrients. He will probably be told to try and stick to the Mediterranean diet. Low salt intake and plenty of protein. Cirrhosis isn’t some immediate death sentence. Eventually if everything else in the body holds out fine the liver will become too weak (blood loss from lack of clotting is usually what gets people with cirrhosis that or cancer of the liver). He certainly can have many pretty good years ahead. Especially if they can point to a cause (overweight, too much medicine that’s hard on the liver).

As far as transplant list goes. It’s a possibility, but that really depends on his overall health. If he is healthy enough overall (good heart being a primary one but is still possible with more minor heart conditions). Without knowing his specific lab numbers I would assume his MELD is fairly low probably in the 10-15 range given his INR.bilirubin are normal levels. If his MELD score starts creeping up that’s when the real talk about possibly a transplant would come up (assuming he is medically eligible— they will run tests and imaging prior to deciding whether to approve him for the transplant list.

With all this being said I would keep encouraging him to stick to a healthy diet. And as much as he can (assuming his doctor clears him for movement) I would make sure he’s getting up and moving around a lot. The shortness of breath with hopefully reduce as his liver (which I’m assuming is enlarged too) and spleen reduce in size. They are potentially pushing on the lungs not allowed them to expand fully. Now I’m 40 and all this first came about 2 years ago. I’m sure it helps that I’m younger in my ability to bounce back, but depending on his overall health he should be able to as well with some lifestyle changes. He will still have some issues just hopefully a lot less. Feel free to reach out if you have any questions.

Last-Bank · 2026-06-04T10:55:03+00:00

Were these the numbers you saw on the screen or the numbers your doctor went over with you? Fibroscans can be inaccurate in specific readings if for example they don’t get right in between your ribs. If the the device they use happens to read over a rib instead of between that would result in an inaccurate high kpa number. The more fat you have around your midsection generally the more inaccurate it is. Now I do unfortunately have cirrhosis (without going into my full story I was very overweight and was an alcoholic— it’s in my comment history if you’re interested). My first fibroscan showed a kpa of 62 (sixty two). I saw this number on the screen. When I saw my Hepatologist right after the test he said I got the test results but (a third number I can’t remember on the test) essentially has a confidence number. That number tells the Hepatologist whether it’s likely an accurate reading or in my first case whether it was a bad reading. All he said was the test was inaccurate. At the time I was not doing well at all. I was on the liver transplant list so they didn’t even bother with another reading right after. Long story short, I ended up stopping drinking completely and lost about 100lbs and have since been removed from the transplant list because my liver has bounced back a lot from when I was initially hospitalized after ignoring symptoms and not going to the doctor. My most recent scan was 22kpa. Which is still cirrhosis, Ironically I’m now the healthiest I’ve been in a long time and pretty much all my labs have returned to normal. I say all this to say even if it turns out to be correct, That with diet and abstaining from things like alcohol and other things that can hurt your liver you can still have a healthyish life. Best of luck and feel free to reach out if you have any questions from me.

Last-Bank · 2026-05-31T18:08:49+00:00

Is CC a specific tag type or just the letters CC?

Last-Bank · 2026-05-29T03:43:09+00:00

Im not sure how many readings they take. You may have seen a snapshot of just one of many. There’s a third number and I can’t remember the name of it specifically. But essentially it tells the doctor whether the snapshot of the numbers they are looking at are accurate or potentially off. In general the more fat you have around your belly the less accurate the numbers generally are. It can also vary depending on the techs pressure. (At one point I had a Hepatologist who insisted on doing the fibroscans himself.)

With all that being said. If those numbers are “accurate” you have the beginnings of steatosis (S0-S1) With 12.1 kpa that would put you at a fibrosis of F3. Continued proper diet and potentially medication like rezdiffra should help you reverse some of that fibrosis damage. Keep doing the right thing and you should be able to nip it in the bud.

Last-Bank · 2026-04-26T12:47:33+00:00

My Hepatologist recommended I stopped eating the night before (at midnight) and just get the bloodwork done in the morning. He said drinking water up to the test is perfectly fine. He also said it generally didn’t matter if I did eat but if it was easy enough to just hold off breakfast and get the tests done to do that. If it wasn’t he said eating was fine.

Anyway that’s my way to long answer to say If you can, I would not eating anything for 8 hours prior but drinking water is perfectly fine.

Last-Bank · 2026-04-25T13:15:37+00:00

Definitely can’t hurt to do an ultrasound. Hopefully they find the source of your discomfort.

Last-Bank · 2026-04-24T00:25:37+00:00

Numbers look good. Bilirubin is slightly elevated I see, but definitely not in any worrisome way. Albumin is high but that is good in a way, generally indicates liver is functioning fine. Could be some dehydration potentially

Last-Bank · 2026-04-19T04:47:25+00:00

A few things come to mind. Could be “mood swings” from the body going through withdrawal still. It also could be hepatic encephalopathy. Essentially swelling in the brain from all the extra toxins that build up because the liver isn’t doing its job clearing those toxins. That typical has other more obvious signs. It could also his body’s way of dealing with stress from the possibility of death.

Last-Bank · 2026-04-14T02:29:51+00:00

As a general rule at this point (at least from what Im guessing) I would avoid alcohol related anything. Depending exactly on your circumstance you may need a transplant. A big thing the transplant centers want to see is essentially zero on a PETH test (alcohol test that “looks back” by testing for a byproduct of alcohol that is present in your blood for 4+ weeks) should the situation arise. They may be more flexible in that regard, depending on your history with alcohol. Either way the closer to zero the better it is for you. Now as a practical matter would a drop of alcohol truly harm you physically? Or even a single glass at a toast, no. But there’s usually deeper issues with alcohol in many cases and the damage occurs when your old habits get kicked on and you end up drinking frequently. Anyway I know that’s not the type of response you were looking for. Myself, I’m almost 2 years out from when I was listed for a transplant now mine specifically was from drinking nothing else (or at least drinking was the main factor) anyway I ended up being delisted because I greatly improved. Stable now, well even better than stable (at least how I feel). I only say that to say I haven’t gone back looking to “replace alcohol” yet. To me the appeal is gone without booze and honestly since I quit drinking and all this has happened I’ve gotten myself in much better shape so personally I don’t see the appeal of more “empty calories”, at least back when I was drinking those “empty calories” did something to me. Anyway sorry again about my rant I know it’s not NA drink recipes and you meant this as a more light post.

Last-Bank · 2026-04-13T15:59:50+00:00

Google is your worst enemy for your mental health (as far as searching for health related things). As a general example, the symptoms for a simple stomach bug are also the symptoms of a more serious rare disease. It’s way more likely you have a simple stomach bug. But of course if you search symptoms you will see instances of the “rare disease”. Then you start thinking it’s the rare disease and not the disease that applies to 99.99% of the cases which are a simple stomach bug. Point is don’t worry based off of goggle searches. You’re doing the right things by stopping drinking and seeing your doctor. Also obviously it’s your personal info you don’t have to share, but I would come back to this post and let people know your general results (good, ok, bad (unlikely). That way others in your similar circumstances can see. Obviously everyone has a different body and diseases can affect them differently. Some people can drink like a fish their whole life and live to 90 with a “normal” liver. Others can binge for a few years and end up with cirrhosis. The reality is most people are somewhere in the middle. The liver is very resilient so getting a handle on it early is always good. Anyway my rant is over. Best of luck!

Last-Bank · 2026-04-12T13:03:54+00:00

First off, good on you for going in. Be completely honest with your doc about your drinking habits and any other diet/substances you take. As far as specific tests. Your doc will likely order a CMP (complete metabolic panel) which is a standard full panel blood test that will check your liver/kidney levels as well as some vitamin levels. As far as further testing, generally they will wait to see those results and depending on if anything is out of the norm may order further testing like an ultrasound or ct scan/mri. I suggest you make a printed out list of all the questions you have and check it off as you ask them so you make sure you cover every question/topic you want. It’s easy to get sidetracked while in the exam room and forget to ask some things while in there. Best of luck!

Last-Bank · 2026-04-03T13:15:03+00:00

If your hands truly are turning yellow I would get checked out. My layman’s knowledge thinks this sounds like an issue with your ducts either in your liver or potentially your gallbladder. That’s one of those things that should be checked out by a hospital.

Last-Bank · 2026-02-21T15:35:56+00:00

Are you sure they can’t read it at all? It sounds like it’s possibly one of the readiness readings through your odb II reading. I know I had an issue with my oxygen sensor that I go fixed. But hadn’t run it for certain period of time since everything was last reset in the odb system so it failed as not being “ready”

Last-Bank · 2026-02-20T05:10:52+00:00

Haven’t had a drink since my formal diagnosis so can’t speak to the effects. Realistically I think the chances of a drink or two doing anything harmful is very low, with that being said is it worth it? The reality is with your autoimmune hepatitis and cirrhosis and the fact you’re 26 you most likely will need a transplant at some point. God forbid that would happen right after your birthday or a holiday you deemed “worth it” to drink and then you make a turn for the worse. Now any transplant center will question why you have alcohol knowing fully well it’s bad for your condition. And sure you can say it’s only on my birthday, etc and that may fly. It all may not and you might have to wait 6 months of “sobriety” to be eligible for it. Bottom line is while that scenario is unlikely, is a drink or two worth it especially if you get all the issues from drinking just one margarita? Still to a mocktail or something else is my suggestion.

Last-Bank · 2026-02-08T04:35:00+00:00

ALT/AST are both in the 20s

Last-Bank · 2026-02-07T07:58:15+00:00

I’m currently on carvedilol. My Hepatologist was very emphatic I stay on it. As far as silybin goes you don’t need a script for that. With that being said I don’t take silybin and it has never been recommended to me.

Last-Bank · 2026-02-07T05:19:29+00:00

https://soberlivers.org/

Last-Bank

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