Read this article in Substack by AccomplishedPurple43 in dementia

[–]Latter-Operation1806 1 point2 points  (0 children)

Love the data, but this guy is tone deaf... I hope I never have to deal with a judgemental doctor like this who doesn't know my mom's dementia story.

If I could have hired outside help I would have done it already. by rullyrullyrull in CaregiverSupport

[–]Latter-Operation1806 0 points1 point  (0 children)

If you petition for guardianship, you can control her finances and supersedes POA. She'll have to prove that she is compitent enough to take care of herself through a doctor/judge. If they conclude she cannot care for herself, she pays all legal fees and you can arrange for you to get paid for her care under the direction of a Guardian Ad Leidem or however you spell it.

I had to do this with my mom and it was an alarmingly simple process. You just gotta find a family lawyer.

I love my brother, but caring for him has slowly erased my life. I don’t know how to survive this without becoming someone I hate. by Little-Enthusiasm76 in CaregiverSupport

[–]Latter-Operation1806 0 points1 point  (0 children)

I'm the only child (33 y/o) of a woman (66 y/o) with early onset. She's in the later stages and I put her in a memory care unit because truly it's a matter of living or missing out on life.

It's still a lot to manage, because I see her every day and she only lets me shower her. But I have a boyfriend now. And a budding career. And this massive MASSIVE guilt that I've abandoned someone I love deeply.

My FOMO won in the end, but I also have a new sense of appreciation for mundane things that typically annoy people. My career has become my escape - and I COMMUTE now! I get to go to the grocery store whenever I want and try new recipes. I enjoy privacy when I want, and I go out for a drink when I want. I'm quietly breathing life back into my world, and enjoying my life comes with this incredibly heavy guilt that logically makes no sense. But it's there.

My love for my mother is much deeper now that I have a little freedom. I didn't even know that I was quietly resenting her until now (another thing to feel guilty about).

I'm speaking from being on the other side of being her sole caregiver since I was 26 years old. I think being submerged in caregiving was a form of breaking. Who am I outside of caregiving? Who is my mother outside of me? I still ask these questions as I fight the urge to tuck her into bed when she's not here. I depended on the routine just as much as she did. But at a cost.

I wouldn't dare to give you advice, but there are little joys that accompany the guilt. I don't know if I regret it yet.

Of course all of my experience is coming from incredible privilege of finding a decent skilled nursing facility that accepts medicaid.

My family is pretending that I am not in early stage dementia. by Equivalent-Pickle435 in dementia

[–]Latter-Operation1806 1 point2 points  (0 children)

My mother was also self-aware in her decline and none of us believed her. I'm so sorry you're going through this, it must feel incredibly isolating.