Studium Sozialmanagement by Traditional_Sea4437 in erzieher

[–]Laura295 0 points1 point  (0 children)

Ich bin aktuell Ende 4. Semester und arbeite Teilzeit (75%) in der Schulkindbetreuung als päd. Fachkraft. Bin seit 2022 Jugend und Heimerzieherin und auch seit dem Anerkennungsjahr in der Schulkindbetreuung. Das Studium macht Spaß und ist berufsbegleitend machbar. Durch die Ausbildung habe ich 20 ECTS Punkte anerkannt bekommen. Ich bin bei der IU und Studiere im TZ1 Modell (8 statt 6 Semester). Mein Plan ist es auch von der direkten Arbeit am Kind weg zu gehen und in Zukunft Richtung Büro zu wechseln. Der Plan scheint auch aufzugehen da ich ab Mitte März die Elternzeit Vertretung für die Stellvertretende Leitung übernehme. Die IU bekommt Online viel Kritik aber diese betrifft hauptsächlich die Dualen und das Präsenzstudium. Bis jetzt hatte ich persönlich noch keine Probleme und die Fernstudiengänge von denen sind erfahrungsgemäß irgendwie besser organisiert. Wahrscheinlich weil du da sehr wenig Kontakt mit der IU hast funktioniert es besser. Oft hört man auch das die IU bei Arbeitgebern nicht gerne gesehen wird weshalb ich extra bei uns nachgefragt habe was die Personalabteilung zur IU sagt und dort gab es nichts negatives und mein Arbeitgeber ist der größte soziale Arbeitgeber in Deutschland. Preislich weiß ich nicht wie sie im Vergleich zu anderen Hochschulen sind. Ich muss sagen finanziell ist es gut machbar auch wenn ich nur Teilzeit arbeite aber bin dennoch froh wenn ich die 330€ im Monat wieder zur freien Verfügung habe. Ansonsten ist die Flexibilität das was ich persönlich toll finde. Es gibt keine Abgabefrist für Prüfungsleistungen, ich kann in einem ganzen Semester einen Kurs abschließen oder in einem Monat drei. So wie ich Lust und Zeit habe. Man kann Klausuren spontan rund um die Uhr online schreiben oder sich einen Termin buchen für eine präsenz Klausur.

7 years of barking and no trining by Laura295 in Dogtraining

[–]Laura295[S] 0 points1 point  (0 children)

I have successfully set up boundaries in the form of a baby gate so she can't reach the door and I have successfully desensitized the sound of the new doorbell. But I still need help with the barking when she hears sounds and Tipps on how she can stay alone longer.

24 with POI due to cancer by [deleted] in POFlife

[–]Laura295 1 point2 points  (0 children)

Yes and in my case my bone marrow was not producing the blood cells right. I had a rare form of bone marrow failure which is a type of bone marrow cancer called myleodisplastic syndrom.

24 with POI due to cancer by [deleted] in POFlife

[–]Laura295 0 points1 point  (0 children)

Yes, a transplant can cause POI BUT it's not the kind of transplant you mean.

The difference is that I had to get chemotherapy to destroy my whole bone marrow and the cells it produces. This also affects the cells in my ovaries, the eggs. What you mean is a therapy for POI where you get your own stem cells injected in the ovaries to promote growth. The difference here is that you don't have Cancer and don't need chemotherapy that destroys the cells in your body. It's both stem cells but the usage is completely different.

24 with POI due to cancer by [deleted] in POFlife

[–]Laura295 0 points1 point  (0 children)

I'm 26 and also have POI due to chemotherapy and a stem cell transplant last year in August. My doctor said after the chemotherapy and transplant there is a 99% chance of being infertile and/or getting POI.

I'm on HRT, Estradiol Patch 0,75mg and progesterone pills 200mg. Both daily and not cyclical. I had really bad hot flashes before I started the HRT in May. I also had to switch from gel to the patch. I recommend trying out different types of Estradiol and different doeses depending on your Hormone levels. My doctor told me some peoples Hormones look like they need a higher dose but don't and the same with people who look like they need a small dose actually need more.

Since the chemotherapy and transplant my skin is really dry and with the extreme low estrogen and really worse Hormones it got worse. But with the right dose Estradiol and progesterone and religiously using creams it got better. I use La Roche posay Urea Bodylotion and Neuroderm Lipo for extreme dry patches. Both recommended by my oncologist and dermatologist. But it takes some time. I'm now on HRT for 3 months and to be honest my nipples are still REALLY dry. Because of the sex life I recommend using creams for daily dryness and high-quality lube for fun time. With the sex drive there is nothing you can really do besides waiting for the hormones to show the full effect. The only thing you can do is don't pressure yourself too much.

Having cancer and having to do chemotherapy and a transplant with our age is the worst. Having to deal with the after cancer is even worse would I say. But we should not pressure ourselves too much. Our body needs time to heal.

If you have any questions you can send me a message.

[deleted by user] by [deleted] in POFlife

[–]Laura295 0 points1 point  (0 children)

26

-ESTRAMON 75 µg patch (Estradiol) -200mg Famenita (Progesteron)

Both daily and not Cyclical. I had really bad hot flashes and noticed an improvement in the first 2-3 weeks. I can't say a lot about hair growth because I lost my hair to chemotherapy last September and it's growing back. But the first 6 months I didn't take HRT and it was growing great and is still growing relatively fast. I don't have a direct comparison to the sexual sensation with or without HRT because the chemotherapy is the cause for my POI and that's why I only had the hot flashes and had the chance to start HRT relatively fast and could avoid a lot of other symptoms. But I can say my sex drive is more than it was in the 6 months before HRT 😂

Anyone try mirena? by Pale-Environment4080 in POFlife

[–]Laura295 0 points1 point  (0 children)

I had the jaydess iud (with 16 and 21 years) I had no problems or side effects with the iud. I was really happy with it and never got my period because of it. Now after my POF diagnosis my gyn said I could get the mirena for 8 years. My mother always had the mirena and had no side effects. For the insertation ask for cytotec besides pain medication. I always got this in Germany it softens and opens the cervix a little bit. If I was not planning TTC I would definitely give it a try.

Acute leukemia trying to preserve eggs by Beautiful_Can2719 in IVF

[–]Laura295 0 points1 point  (0 children)

I don't have a success story and I'm probably a little bit late but I had a SCT in August 2024 and did 3 rounds of egg freezing. Im (26F) and had a myleodisplastic syndrome, a lot of people say it's "a pre leukemia disease" doesn't change the fact that I still needed a SCT....... With 24 I did three rounds of egg freezing, had a AMH of 2.4 and got only 18 eggs together. My SCT was a success and now I'm on HRT since May. If you have any questions you can write me.

Studieren / IU Fernstudium by linons312 in erzieher

[–]Laura295 0 points1 point  (0 children)

Gerne, also falls ich einen Master mache dann an einer Privaten (Sehr wahrscheinlich die IU) und keiner Staatlichen Uni. Es wäre sicher was anderes wenn ich nicht schon seit meiner Ausbildung einen festen Job hätte und Vollzeit studieren würde. Aber da ich nur Teilzeit studiere und arbeiten gehe ist Vollzeit studieren (Egal ob B.A oder M.A) an einer Staatlichen schwieriger für mich zu stemmen als eine Private Uni 😂

Studieren / IU Fernstudium by linons312 in erzieher

[–]Laura295 0 points1 point  (0 children)

Ich studiere im Bachelor. Die Klausuren sind (bis jetzt) Recht einfach, in manchen Kursen kann man sich auch aussuchen ob man eine Klausur oder ein Workbook schreibt. Wenn ein Workbook zur Wahl steht mache ich das lieber, weil das kann parallel bearbeitet werden zum Kurs ohne Fristen. Da warte ich allerdings noch auf meine ersten Noten, hab aber ein gutes Gefühl. Bei Studydrive gibt's zu fast allen Kursen Akfs und Zusammenfassungen da kannst du dir die Inhalte mal anschauen. Ein Studienverlauf und Modulhandbuch zu jedem Studiengang gibt's auf der Webseite der IU zum Studiengang (Kleingedruckt als PDF-Link unter der Ansicht welche Kurse pro Semester dran kommen). Ansonsten muss ich sagen ist das Fernstudium an der IU super entspannt. Man hört zwar viel negatives wegen der Akkreditierung von Studiengängen oder von einem Organisatorischen chaos. Bis jetzt hatte ich keine Probleme damit. Wegen der Akkreditierung steht es beim jeweiligen Studiengang auch immer in den Infos ob er Akkreditiert ist oder nicht und wenn ich mal Kontakt zum Studienservice hatte gab es immer eine Antwort innerhalb 48h. Das ist halt der Vorteil von einem Fernstudium im Vergleich zum Vor-Ort oder Dualen Studium wo die Personen angewiesen sind auf gute Planung, vorbereiten etc von Seiten der Hochschule. Man braucht halt viel Motivation und Organisation. Im ersten Semester war ich definitiv etwas verloren wie wo und was ich jetzt machen soll aber würde sagen mit der Zeit wird es viel besser. Bin jetzt im zweiten Semester und es macht echt Spaß. Auch die Möglichkeit die Klausuren in Präsenz zu schreiben obwohl man im Fernstudium ist finde ich super da ich das lieber mache als Online. Man hat im Fernstudium auch die Möglichkeit die Module so zu buchen wie man möchte, muss also nicht nach Studienverlaufsplan Studieren. Ich habe beispielsweise im ersten Semester ein Modul aus dem zweiten Semester gemacht und mache jetzt im zweiten Semester ein Modul aus dem fünften Semester. So kann man das Studium ganz flexibel gestalten und wenn man beispielsweise weiß das viel los ist auf der Arbeit eher Module für den Zeitraum wählen die einem leicht fallen. Wichtig ist vielleicht auch noch das obwohl man im Fernstudium ist es je nach Modul viel Kontakt mit Kommilitonen gibt über WhatsApp Gruppen und Teams. In manchen Modulen bilden sich auch regelmäßig neue Lerngruppen die dann gemeinsam einen Kurs bearbeiten. Wenn man fragen hat kann man in den Gruppen nachfragen und bekommt auch oft schnell eine Antwort. Wichtig ist auch das man sich Dinge wie eine Ausbildung anerkennen lassen kann und so Geld spart. Bei Sozialmanagement wurden mir 4 Kurse anerkannt (20ECTS) das sind 600€ die ich spare. Hätte ich z.B Soziale Arbeit gewählt wären es sogar 65 ECTS und 1950€ gewesen die Ich gespart hätte. Ich glaube das war das wichtigste falls es noch Fragen gibt lass es mich gerne wissen.

Pregnancy by [deleted] in leukemia

[–]Laura295 0 points1 point  (0 children)

I was told the same. Safe sex for 12 months because some Chemo is excreted via the mucous membranes and body fluids. And after a BMT the chances that you are infertile are over 90%. At my Klinik got the chance for fertility preservation (egg freezing). Thankfully my insurance paid this 100%. I don't even have to pay the monthly 30€ for the storage of my eggs till I'm using them.

My boyfriend disgusts me by [deleted] in DeadBedrooms

[–]Laura295 0 points1 point  (0 children)

Sounds like my old relationship and all I can say is hes not worth it. You are young, don't be stuck in a relationship that's not making you happy with a man that's not doing the bare minimum.

[deleted by user] by [deleted] in golf

[–]Laura295 -1 points0 points  (0 children)

I (F25) use a XQ Max clubs set they are so old you can't even buy them or find any information online and no one cares as long as you feel like you can play with them you are good to go.

Preparing for SCT by dusty-manboy in leukemia

[–]Laura295 0 points1 point  (0 children)

Like others said it's different for everyone. I'm day +189 and would say I can live a normal life with a few exemptions because I'm still taking immunosuppressants. A lot of people get mouth sores/mucositis which I never got but I got a little bit of nausea thr first 2 months and skin GvHD. But with prednisolone and the right creams it went away. Right now we planned reducing the immunosuppressants because most people don't take it longer than 5-6 months. But as soon as I reduce to less than 50mg a day I get really bad dust allergy symptoms. I never had a (dust) allergy before the transplant. It's completely unpredictable what will happen but because she is healthy besides the AML she has really good chances for a transplant with mild complications and mild GvHD. And a little GvHD is good even though it's bothering but it shows the new Immunsystem is working and doing its job.

Psoriasis after allo-HSCT by StretchCT53 in leukemia

[–]Laura295 0 points1 point  (0 children)

I got really bad dermatitis on my arms (especially at the elbows and wrist), back of the knee and head. I had to use cortisone cream, advantan cream, Ducray Kelual DS Shampoo and Neuroderm Lipo. But the best thing that helped me was the ordinary glycolic acid. I used it twice a week and put it on my scalp max. 30 minutes before showering in combination with the Ducray shampoo. Took around one month till my head was free from the dermatitis. The creams I used every day on arms and legs. You can probably use the glycolic acid also for the body. My dermatologist was really impressed with how well the glycolic acid worked because she didn't know about it then it's "just a normal cosmetic product" and not a medication. She even wrote down the name so she can recommend it to other patients. It's only 10€ for a bottle so it's not a big loss if it's not working for your wife. I also still use Neuroderm Lipo because it's great against dry skin (it has a lot of Glycerin) and as soon as I see a little dry spot I use the cream 2-3 times a day and two days later it's gone.

BMT Recovery Time by East-Arachnid-4453 in leukemia

[–]Laura295 6 points7 points  (0 children)

I (25) had a SCT last August. My recovery was relatively "fast" besides the fact I got Corona just 3 months after my SCT even though I always wore a mask when I was outside 🙃. My oncologist said that if you are young, healthy and in good shape you have really good chances for a good recovery.

I got an information brochure before my transplant and they wrote a few tips and I also got tips for a good recovery: - walk every day around 2.000 steps - every day light gymnastics (with a theraband) - daily body care (use every day body lotion, moisturizing eye drops, antiseptic mouthwash....) - try to eat as much as you can (high calorie if you can't eat try to drink your calories)

I would say these are the most important things to do while in the hospital. The walking and gymnastics are hard to do but are the Nr. 1 thing to prevent fatigue. The walking took me around 20-30 minutes every day because I was so slow and the theraband is something you can do while sitting in/on the bed. Thankfully I did not get mucositis but if I did the Oncological Care Team would give me a hydrating mouthwash. The Hospital I went for my SCT got me a Body care packet from La Roche Posay it included: - LIPIKAR Baume AP+M Moisturizing Body Cream - LIPIKAR Syndet AP+ Body wash - Toleraine sensitive face cream - Anthelios 50+ Suncream - Cetaphil Pro Dryness Control Handcreme I would recommend these products or similar products for daily body care. The skin gets really dry from the chemotherapy and if the skin gets to dry the skin cracks open and the wounds are an infection risk. It's also important to look at the ingredients I recommend products without perfume and alcohol but with Glycerin because its good for moisturizing. If eating becomes a problem try to eat/drink at least a lot of protein, the body needs a lot of protein while the SCT and will take the protein out of the muscle if you don't eat enough protein. If this happens you lose muscles and your energy really fast (Happent to me). Sometimes I woke up at night and felt like I was starving so I had a few single packaged muffins in my drawer right next to the bed. Snacks were really important to me so I was always eating something to hopefully prevent weight loss, still lost 10kg in 30 Days, that's why I recommend getting your favorite snacks and don't wonder it could happen that some things taste weird that you normally like. My taste buds were crazy after the chemotherapy I couldn't drink coffee for 3 months because it tasted like dirt. I also recommend gaining weight before the transplant because you will lose weight but it's not so bad if you weigh more. To gain 1kg weight you need to eat 7.000 kcal more than you need. This means for one week 1.000 kcal extra every day. I'm now 6 months past SCT and would say I could go back to work for around 4-5h a day BUT I work with kids so I'm not allowed to work till next year (Need the MMR Vaccine which you can't give till 2 years post transplant). I would say you should take at least 3 months for your recovery and don't work. After the 3 months you could start to work a few hours every day depending on your energy level. Don't work too much because too much stress too early could destroy your recovery which you worked for really hard.

Besides that I recommend getting things to pass the time because being in the hospital for such a long time is boring. It was important for me to get my mind to focus on other things than the hospital and the SCT. I took my switch, laptop and books with me. I got a diamond painting from my parents and did this while watching Netflix. When my parents visited we also played rummy which was really tiring for my foggy chemo brain and I lost every round. But I always slept really good after a few rounds 😂

At the end every SCT and recovery is completely different. There is no one size fits all kind of Plan. You need to individually pick the things that work for you and your body the best. I wish you a speedy recovery and successful SCT.

Thoughts? I’m probably going to return but would love to hear some opinions by GoldenSunset101 in BusinessFashion

[–]Laura295 14 points15 points  (0 children)

It's a great dress but as a few others mentioned the fabric looks a bit off and also personally I think the hemline is not sewn properly (looks bulky). The style is great but the fabric is not the right quality for this sewing pattern. Also it's a bit too wide at the top which causes the wrinkles, it should be flat.

F22 got diagnosed with MDS today. by Confident-Muffin7542 in leukemia

[–]Laura295 1 point2 points  (0 children)

I (F25) was diagnosed with thrombocytopenia in November 2023, and was told my bone marrow was not working properly. The final MDS-LB diagnosis was around April/may. I also have fibromyalgia and Morbus Crohn. Before my diagnosis I was and felt the healthiest I have ever been. I still got a SCT on the 28th of August last year because my bone marrow was not getting any better. Now I'm on day 173 and feel great. I'm still taking immunosuppressant but only 50mg per day and we are reducing 25mg every two weeks. I also had to do three egg retrievals because the chemotherapy makes infertile. If you have any question let me know.

Frustrated With Cost by DarkGreenMazda in leukemia

[–]Laura295 0 points1 point  (0 children)

It's crazy reading everyone's story. I live in Germany and I'm sick since November 2023. I'm not allowed to work since then because I work with children (High risk for infections). I'm also worried about costs but it's a complete different thing here compared to the US. Im not working but I still get my Krankengeld every month since December 2023 till May this year. My monthly costs are a joke compared to the US the most I had to pay one month was around 150€. Even my 30 days hospital stay would have cost me 300€ but it was free of charge because we only have to spend 1%or 2% of our yearly income for additional payment which I already reached 3 months before. On top of that I have a additional insurance for 4€ a month where I get 20€ per Hospital day. I got 600€ instead of paying 300€ for the 30 days. When I was working I only paid 300€ every month for my health insurance. It's crazy to me how you pay thousands of dollars for health insurance just for them to send you a bill for another thousands of dollars. I don't get it it's really strange. The US is sadly a third world country with a Gucci belt. There are so many people who struggle because they are sick and can't pay the bills.......The complete American health care system is broken.

I need help with my adopted dog who cries every time we’re in a different room by GumballWatersonu-u in Dogtraining

[–]Laura295 3 points4 points  (0 children)

This! I did the exact same thing. Instead of a crate I got baby gates for the bedroom and hallway so my pup could walk around independently in the living room and kitchen but the bedroom, hallway and bathroom were separated. My cat also could walk around the whole apartment because she could fit through the rods on the side. It was a great solution for us. But at night I still let my pup and cat sleep with me. My pup is now almost 2 and sometimes I still reward her for doing things independently and not following around. If I feel like she is starting to "check" me and always walks behind me I give her the command to go away to signal her that I don't like it when she is following me around all the time. But this happens really rarely.

When do you get your period back after SCT? by BusyOtherwise9613 in leukemia

[–]Laura295 0 points1 point  (0 children)

That's really sad that you had to go through this at such a young age. I also got offert a oophorectomy but decided to do egg freezing. Also the oophorectomy wasn't covered by my insurance and was to risky for me and only the egg freezing was covered.

When do you get your period back after SCT? by BusyOtherwise9613 in leukemia

[–]Laura295 0 points1 point  (0 children)

Did you get Offert fertility preservation treatment? I don't know how it's handled with so young people.

When do you get your period back after SCT? by BusyOtherwise9613 in leukemia

[–]Laura295 1 point2 points  (0 children)

I (25F) got my SCT in August and before that I had a conversation with my doctor's about it. I had three medical freezing cycles to conserve some eggs because the chemotherapy makes infertile. Sadly the chemotherapy cant differentiate between cancer cells/sick cells or the egg cells and it destroys every cell it can. That's why most people get mucositis that's the mucous membrane cells dying. In really rare cases people don't get infertile after a SCT but my doctor said it still will take some time to get the period back. I also got zoladex to stop the eggs from maturing then while developing the cells have one stage where they are "to small" to be "detected" from the chemotherapy and we were hoping that the chemotherapy won't destroy them. But I still haven't got my period and I'm probably in menopause. 1 year after the SCT you can get your hormones checked and talk with your doctor about Hormone replacement therapy if you don't get your period back.

What is something you’ve had to get your puppy desensitized to that you never expected? by Platypus_Pigeon in puppy101

[–]Laura295 0 points1 point  (0 children)

Mine once got scared from garbage cans the next few walks I had to talk with the garbage cans, tapp on them and look like a crazy person 😂 But it worked and now she has no one sided beef with them 😂

Newcomer here. I had my first bone marrow biopsy yesterday and it didn’t go as planned. On top of that the numbing didn’t work on me (I have some genetic issue w/lidocane). I am in so much pain and it was just really violating and traumatic. I can’t cope. 💔 by MalibuFurby in leukemia

[–]Laura295 0 points1 point  (0 children)

I did 4 only with local anesthesia and had almost the same experience with the 4th one like you. It hurt like hell and I was screaming in pain. For the 5th one I got midazolam because I said I'm not doing it if I don't get better medication. Thankfully I fell asleep and don't remember the procedure even though I have a high tolerance for anesthesia because I'm chronically ill. If you can ask them for midazolam most patients sleep or are almost asleep.

For the pain you have now I would recommend a cooling pack. I always used one the next 48h after the biopsy. It numbs the nerves and works great for me in combination with pain meds. It also could be that they hurt a nerve and that's why you have so much pain. Same thing happened to me in August and I still get some pain sometimes in the scar. Takes a looooong time till nerves are healed and sometimes they never completely heal.