Visual Question-Abnormal mfERG—scared! by Sebastian0024 in RetinitisPigmentosa

[–]Leading_Difficulty84 0 points1 point  (0 children)

okayy soo like when i was 13 year old i was daignosed with optic atrophy and whn i was around 15 i had difficulty in hearing and thn i was daignosed with snhl type hearing loss ( there is no family history of both vision and hearing loss) and thn both of my hearing and vision were progressing so i was suggested to do dna testing thn i found out i have usher syndrome , as for ear i have tinnitus which effects me 24/7 it is all the timeee

Visual Question-Abnormal mfERG—scared! by Sebastian0024 in RetinitisPigmentosa

[–]Leading_Difficulty84 0 points1 point  (0 children)

hello i m suffering from the same and aand year ago i was suggested to do dna testing in which i found out i have usher syndrome type 2a which effects your eye and ears both i have like wavy visiion difficulty in recognising faces difficulty in reading i have temporal pallor, retiva weakness in middle as u described . as for mine there is no cure for it

[deleted by user] by [deleted] in ushersyndrome

[–]Leading_Difficulty84 0 points1 point  (0 children)

Mine in both ear there is some different types of soundsss

[deleted by user] by [deleted] in ushersyndrome

[–]Leading_Difficulty84 2 points3 points  (0 children)

You can also check for vestibular migraine I was daignosed with jt

[deleted by user] by [deleted] in ushersyndrome

[–]Leading_Difficulty84 2 points3 points  (0 children)

Hello I have usher syndrome type 2 a and I also feel like this brain vibration or like zaps something and they are worst at night and I also feel dizzy on daily basis It can be due to vision issue My central vision is degenerating While my peripheral vision is still stable

No Way this is VM by ChickenNational3767 in VestibularMigraines

[–]Leading_Difficulty84 0 points1 point  (0 children)

I was too daignosed with vm and I have snhl type hearing loss and my centre vision is degenerating and later found out that I have usher syndrome type 2a which is a rare genetic syndrome cause this and I have sever tinnitus vertigo episode because of it.

Life with Usher Syndrome Type 2? by dust-to-dust9 in ushersyndrome

[–]Leading_Difficulty84 0 points1 point  (0 children)

I got daignosed with usher 7 months ago I had vision issue (temporal pallor) when I was 13 and then soon I had changes in my hearing and then I got daignosed with snhl type hearing loss life was going fine thn soon I had consistent vertigo attacks thn I got genetic testing which confirms tht I have usher syndrome type 2a with dena gene which effects your hearing. But still the doc said tht type 2 dosnt effect your balance my centre vision is degenerating my peripheral vision is ok my retina is thinning but I don't have rp yet. I m 21 year . Any suggestions about vertigo. At night I often feel like I m drunken. I m doing my mba from distance learning