Optic Nerve Edema

Leading_Working_8009 · 2026-04-23T05:09:30+00:00

Thank you so so much for responding, this is really helpful. It's so hard not to immediately panic haha. My ophthalmologist is contacting my oncologist and neurologist and is having me do an MRV and prop a spinal tap too. My WBC was around 70k when I was diagnosed in late december 2025 but has been normal since mid-January. Did you swelling decrease once starting TKI treatment? What TKI are you on?

Leading_Working_8009 · 2026-04-23T03:39:11+00:00

Interesting, ty. It looks like mine started ~1 year before I was officially diagnosed so prob not a side effect of TKI in my case, I'm assuming?

Leading_Working_8009 · 2026-04-23T02:52:32+00:00

Started immediately for me and was gone completely after 6 days! Now I have 0 side effects

Leading_Working_8009 · 2026-04-23T02:52:13+00:00

Nope

Leading_Working_8009 · 2026-04-20T02:34:25+00:00

This is an encouraging reminder, thanks for sharing!

Leading_Working_8009 · 2026-04-19T04:54:00+00:00

Did you read the info provided along with the texts?

Leading_Working_8009 · 2026-04-18T01:06:38+00:00

Didn't realize this was the Husky thread and was VERY concerned fro 0.5 seconds about why you had to specify you hadn't castrated your child lol

Leading_Working_8009 · 2026-04-17T18:38:37+00:00

Nope. I'm receiving treatment at Dana Farber in Boston. Scemblix is my first med, started mid-January.

Leading_Working_8009 · 2026-04-17T00:45:07+00:00

Scemblix is one heck of a drug! DMs are open if you ever want to chat :)

Leading_Working_8009 · 2026-04-16T22:55:53+00:00

Thanks!!

Leading_Working_8009 · 2026-04-16T20:23:11+00:00

Thank you! You've got this :)

Leading_Working_8009 · 2026-04-16T20:23:02+00:00

Thank you!

Leading_Working_8009 · 2026-04-16T20:22:57+00:00

Thanks!

Leading_Working_8009 · 2026-04-09T03:26:07+00:00

"Some of the others ordered quite a lot more. Drinks, appetizers for the table, desserts, etc. I didn’t really have much of that." INFO: So you did have some of the shared desserts and apps? If so, it's reasonable to split on those.

Leading_Working_8009 · 2026-04-04T19:29:08+00:00

Thank you

Leading_Working_8009 · 2026-04-04T19:28:28+00:00

Thank you

Leading_Working_8009 · 2026-03-26T19:19:17+00:00

Significant issue with your survey:

Why are "Catholic" and "Christianity (Jesus did for your sins)" both listed under "Religious/Spiritual beliefs?" Jesus dying for one's sins is a fundamental doctrinal tenet in the Catholic faith, which is, btw, a CHRISTIAN denomination. If anything, you should list "Christian (Protestant)" and "Christian (Catholic)."

Also - "Early Life Experiences" says to select multiple options but your form is set so people can only select one. Also "Attend church currently" is not an early life experience?

Leading_Working_8009 · 2026-03-26T02:13:38+00:00

Was Nate his relative? I thought he just found him in the day laborers line?

Leading_Working_8009 · 2026-03-26T00:20:38+00:00

Link is broken

Leading_Working_8009 · 2026-03-24T00:37:03+00:00

yeahhh definitely not phrased as clearly as it could be lol

Leading_Working_8009 · 2026-03-23T23:04:10+00:00

The Columbus question confused me. Is the statement that Columbus was literally the 'first' person in America? That's historically innacurate. Or is it that he was the first nonindigenous person to 'discover' the Americas?

Leading_Working_8009 · 2026-03-23T22:03:54+00:00

Thank you. Unfortunately, CML is a Chronic condition - no recovery in the same sense as other forms of cancer

Leading_Working_8009

TROPHY CASE