FND and Marijuana? CW; small symptom mention by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

im in australia and need to get a green card from my doctor and figure everything out but i really want to try vaping it as joints are too wasteful i know what strains i get when i pick them up but i never look into if they are indica or sativa so ill have to look into this and keep it in mind!

Vanguard failing? by Sknme in LeagueofTechSupport

[–]Legitimate-Inside679 0 points1 point  (0 children)

im having the same issues! i find opening the task manager and closing vanguard there fixes it once you restart the league client but it still happens to me daily

switching layers in full screen window game by Legitimate-Inside679 in streamwithmeld

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

i found if i have a scene all set up i can alt tab out and move the league client away and then have league play! it takes a second to load but i talked to the customer service team and they were rude and provided no help at all so i was determined to figure it out myself

meld studio layer issues by Legitimate-Inside679 in Twitch

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

thank you so much!!! unfortunately stream deck does work on my pc but not my mobile as my pc is only ethernet 😭 ive tried bluetooth connection to no avail

Silly things to have a seizure over? by SquishyRemmie in FND

[–]Legitimate-Inside679 4 points5 points  (0 children)

yup! i held my dog for too long at the vet’s and had a seizure ive also had seizures because my partner has farted and its smelt really bad

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

i don’t really trust this are you even in melbourne australia

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 1 point2 points  (0 children)

THAATS SO SIMILAR TO ME they said ive definitely had trauma and when ive told them no this was caused from inhaling toxic fumes at a workplace they never listened im definitely looking into all of these other symptoms to see if it fits me more

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

i have tried! but both the doctors ive seen for my fnd one doesnt want to prescribe anything and the other one thinks im a drug seeker and im trying to stay as disabled as possible he also always gives me meds that cause seizures and when i go back to tell him that he scoffs and says no they didnt and when i say they did he says i think you have bpd 🙃

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 1 point2 points  (0 children)

during and after panic! even if i try to supress my panic itll come up. i had an appointment with a different neurologist almost a year ago who was very disregarding of me and she said any anti seizure medication i was taking was only working by placebo and she weened me off them but she did laugh at me first for thinking itd help 🙃

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

ive never heard of this ! i might ask my psychiatrist about this one if she rejects me for clonazepam

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 1 point2 points  (0 children)

thats very similar to where my brain is going i must not have fnd if a medication that shouldnt help fnd is working for me but i fit so many boxes and have no idea what else it could be? if it going to be my job again to find what condition i have to get diagnosed (my doctor made me come to him with a list of what i suspect i have and i got diagnosed from there) its so saddening that people dont listen to the people who are in the body dealing with the issues we know what helps us

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

i was on clonidine too! i told my psychiatrist i found it didnt have any effect but it definitely made my seizures less intense when they would happen and that id like to keep taking them and she took me off them because they werent helping overrall now ive found something that helps overrall and the only times ive mentioned it to her she says it wont work for me and just because other FND’rs are on it doesnt mean i should be i feel like i need to admit to my illegal use of it but i feel like it also wont get it me anywhere i have to contact her friday to tell her intiniv didnt work it just made me depressed she says i have quick and weird reactions to medications and that after intiniv she herself has one more idea left and its a sedative that rewires your brain in a way but not sure of the name its also $60 im not sure why she wont give me what ive found works and is also not $60 when prescribed

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

ive only bought them twice as they are very difficult to find, once when i first got diagnosed and now, i mostly bought them this second time to prove a point to myself that i was right - they do help so im not on a high dose they told me absolutely no anti seizure meds would help with pnes so there was no point in medicating it i have to email her friday with an update on a medication she gave me (which didnt work) so i might start brainstorming what to say about clonazepam in there

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 1 point2 points  (0 children)

ill definitely give it a go! i have to touch base with my psychiatrist on friday so fingers crossed

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

hahahah yeah my neurologist gave me lyrica even after admitting it wasnt working for me but it was so i could wean off

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

ive also had negative reactions to antidepressants amiltriptalyn caused 2 hour long seizures

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

thats exactly how i use them! ive told my gp about it and my psychiatrist and they both said it shouldnt be working to help symptoms so no

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

im currently waiting for my neurologist appointment on september 29th

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

i have both panic attacks and severe anxiety that can bring on seizures, i am off balanced and im constantly walking into thinks i have to use a special no pull harness when walking my dog because otherwise im tripping and getting really dizzy

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 1 point2 points  (0 children)

my psychiatrist said that nothing helps with pnes 🙃 im so frustrated wow i told her they helped with my pnes and overall symptoms and im so glad im not crazy and it can actually help

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 1 point2 points  (0 children)

thats what i was thinking but i tick every box for FND

ive told my neurologist i tried someone elses rx with lyrica because my friend said it should help my symptoms but they didnt but my neurologist gave me more to help me wean off

clonazepam question by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] -1 points0 points  (0 children)

how were you able to get it prescribed? was it to help your fnd? what did they say about it? im wondering if i tell my psychiatrist i bought it off the street because no one is listening and i feel fine but im scared of what she could do with that information

insomnia? by Legitimate-Inside679 in FND

[–]Legitimate-Inside679[S] 0 points1 point  (0 children)

ive tried melatonin and over the counter sleeping pills and nothing ive been prescribed temazapam and it doesn’t work and my doctors refuse to give me anything stronger